| Date |
Source |
Press Release |
| |
|
|
|
16/10/09 |
CRY |
CRY 'paves the way' for how a national cardiac
screening programme could look
To coincide with Raising Awareness Week, CRY has announced the first
initiative in the UK to screen every 14-year-old born in 1995 (the year
that CRY was founded) across the South East. |
|
15/10/09 |
CRY |
CRY
Chief Executive Alison Cox MBE reacts to the death of Stephen Gately
"Every
week in the UK, 12 apparently fit and healthy young people – that is,
aged 35 and under – die suddenly from a previously undiagnosed heart
condition. The tragic death of Stephen Gately, aged just 33, is yet
another reminder of the cruel and indiscriminate nature of this
syndrome. Our thoughts go out to his family and friends as we understand
only too well (from our daily experiences with families who have lost a
son, daughter, sibling or partner) the truly devastating impact of
sudden cardiac death." |
|
22/09/09 |
CRY |
Local
woman takes "centre stage" in the heart of London to raise awareness for
leading charity
The shocking statistic that 12 young1 people die suddenly
every week in the UK from an undiagnosed heart condition2
will be ‘shouted from the rooftops’ at the end of this month [Monday 28
September] as a local woman takes her place on the infamous ‘Fourth
Plinth’ in London’s Trafalgar Square. Sian, (26) from Llantrisant,
tragically lost her brother, Gareth, in February 2007, aged just 21.
Gareth (who studied law international politics) died in his sleep from a
previously undiagnosed heart condition (Long QT Syndrome) and, at the
time, was sharing a house in Cardiff with two former school friends,
having graduated from Aberystwyth University. A fit, active and
apparently healthy young man, Gareth’s sudden death devastated his
family and local community. |
|
29/06/09 |
CRY |
CRY
Philips Test My Heart Tour 09 finishes in Brentford - 29th June 2009
Today,
charity Cardiac Risk in the Young and health and well-being company
Philips unveil the first results from their Test My Heart Tour 09.
The tour visited 13 locations in England and tested over 2,000
young people’s hearts to detect any abnormalities that could lead to
Sudden Death Syndrome. |
|
29/06/09 |
CRY |
CRY
supporter chosen to toss the coin at the Wimbledon Men's Singles Final
James Doherty, member of the CRY Surgery Supporters Network, will be
tossing the coin at the 2009 Men's Singles Final at Wimbledon.
James is a former Junior County Tennis Champion who was forced to give
up competitive sport after being diagnosed with Long QT Syndrome. |
|
02/05/09 |
CRY |
First
free heart testing tour of England
CRY
Philips Test My Heart Tour 09 aims to reduce number of heart deaths of
apparently fit and healthy young people.
A new national campaign aiming to reduce the number of undiagnosed heart
conditions will kick-off in Durham on the 2nd May.
|
|
06/04/09 |
CRY |
Families unveil new postcard to highlight tragic heart condition
Families from the
Liverpool area and across the North West are joining together to
help launch a
major regional campaign to highlight shocking new statistics that show
the number of young people who lose their lives to the tragic condition
sudden cardiac death now stands at 12 every week – a staggering 50% rise
on previous estimates. |
|
13/03/09 |
CRY |
Powerful campaign pays tribute
to the young faces behind sudden cardiac death
Families from Birmingham and across the Midlands are joining together at a
poignant event this week (Friday 13th March) as they help to launch a major
regional campaign to highlight shocking new statistics that show the number
of young people who lose their lives to the tragic condition sudden cardiac
death now stands at 12 every week – a staggering 50% rise on previous
estimates. |
|
13/02/09 |
CRY |
"Life Years
Lost..."
This
month (February 2009), the charity – Cardiac Risk in the Young (CRY) – is
launching an emotive campaign to highlight the devastating impact of sudden
death in young people (aged 35 and under). The results of a new
survey*, commissioned by CRY, show that awareness of sudden cardiac death -
that now claims the lives of 12 young people every week in the
UK – remains low, with less than half of people questioned (45%) saying they
knew about the scale of deaths in the UK. |
|
20/01/09 |
CRY |
The
feelings of bereaved parents finally to be recognised by the "system"
CRY has applauded the
launch of the reformed Coroners and Justice Bill which includes a number of
important changes that will affect those people suffering from bereavement
and facing complex and distressing inquests or inquiries. |
|
20/11/08 |
CRY |
Postcard Campaign
Highlights the Deaths of 12 People Each Week
Today in Belfast, Cardiac Risk in the Young launched its
Northern Ireland postcard campaign. The symbolic postcard
highlights the deaths of 12 young people from Northern Ireland
of undiagnosed fatal heart conditions most of which are genetic.
This is the latest leg in CRY's campaign promoting the value of
screening across Northern Ireland and the UK. |
|
07/11/08 |
CRY |
Leading heart charity
welcomes new initiative to 'track' sudden cardiac death in the young
National database hopes to cut deaths by making families & coroners more
aware of ‘heart health history’
An
announcement from the Department of Health and a collaboration of
pathologists and heart experts has received praise from the campaigning and
awareness raising charity, Cardiac Risk in the Young (CRY). |
|
04/11/08 |
Department of Health |
Launch of the Sudden Cardiac
Death pathology database
In most middle-aged and older
adults, sudden cardiac death is caused by coronary artery disease. In
contrast, sudden cardiac death in individuals aged less than 35 years is
frequently caused by inherited disorders of cardiac muscle (cardiomyopathy)
and cardiac rhythm (ion channelopathies). The genetic nature of many of
these diseases means that the relatives of young sudden cardiac death
victims are at risk. |
|
14/10/08 |
CRY |
Families gather to unveil striking new
postcard to help highlight tragic heart condition
Bereaved families from London and the South
East have been joined by MPs from all parties to launch a nationwide
awareness campaign to highlight shocking new statistics that show the number
of young people who lose their lives from the tragic condition sudden
cardiac death now stands at 12 every week – a staggering 50% rise on
previous estimates. |
|
10/10/08 |
Brentford FC |
CRY Awareness Week
C.R.Y. (Cardiac Risk in the Young), Brentford’s secondary Away
Shirt Sponsors, launch, for the fourth consecutive year, their
Raising Awareness Week today. The Week, which will
see many different events being organised throughout the
country, is specifically designed as the title suggests to raise
awareness of sudden death syndrome (SDS), specifically in the
young (under 35). |
| 07/03/08 |
CRY |
New labs 'promise' answers for
hundreds of bereaved families
The agonising wait endured by many
families following the sudden – and tragic – death of a child or partner
could soon be over as London opens the UK’s first ever ‘fast-track’
pathology laboratories to help analyse the causes of unexpected cardiac
death in ‘apparently’ fit and healthy young people. |
| 28/02/08 |
CRY |
New Secretary of State "kicks off" CRY
initiative to help young footballers
The Secretary of State for Media, Culture and
Sport - Andy Burnham MP - joins families whose children or partners died
suddenly whilst playing football, to raise awareness of sudden cardiac death
in the young at a launch at 11 Downing Street. |
| 20/11/07 |
CRY |
CRY Breakfast and Private
View of "Renaissance Siena: Art for a City"
On Tuesday 20th November 2007, CRY
held its first ever event at the prestigious National Gallery in Trafalgar
Square, London - a breakfast and private view of the exhibition "Renaissance
Siena: Art for a City". |
| 02/11/07 |
CRY |
CRY Chief Executive awarded MBE
Alison Cox,
CRY's Founder and Chief Executive, was awarded an MBE in the Queen's
Birthday Honours List 2007, for Services to Healthcare. Alison says
"This honour is a tremendous acknowledgement of the courage and
suffering of CRY families." |
| 04/09/07 |
South East London Cardiac Network |
‘Silent at Heart’ -
Local artist launches lifesaving art in the
heart of London
An emotive new art exhibition (which opened on
Monday at a prestigious Mayfair gallery) is helping to raise awareness of a
tragic cardiac condition, known as sudden cardiac death - which claims the
lives of at least 8 young people every week in the UK - by showcasing a
range of pioneering works, reflecting the heartbreak felt by many young
patients and their families. |
| 23/08/07 |
South East London Cardiac Network |
Lifesaving Art hits
the heart of London - ‘Silent at Heart’ exhibition opens at The Air Gallery
on September 4th 2007
‘Silent at Heart’ showcases the commissioned
artworks produced by 5 professional artists and 30 Art, Design and Media
A-Level students as part of an innovative arts & biomedicine project, which
uses Art to raise awareness of Sudden Cardiac Death in the Young.
This
impressive exhibition of 40 artworks gives visitors a unique insight into
the medical investigations designed to identify those at risk of Sudden
Cardiac Death. |
| 26/07/07 |
Philips Medical Systems |
CRY to
launch 5 year athlete cardiac research project to help understand the
causes of Sudden Cardiac Death
UK
charity Cardiac Risk in the Young (CRY) is launching the Save Our
Athletes Research Project, a 5 year inclusive athlete cardiac research
study lead by CRY, involving data from the USA and Germany. By
concentrating on all elite athletes, CRY will be able to gain a broader
understanding of the effects of heavy and light exercise on the heart.
|
| June 2007 |
Philips
Medical Systems |
David
Walliams launches Heart Screening Partnership with Philips and Cardiac
Risk in the Young
Philips and
Cardiac Risk in the Young (CRY)
have committed to raise heart awareness through the launch of
The Heart Screening Awareness Partnership, designed to help
families understand the simple steps involved.
David Walliams, comedian, TV personality and CRY Patron will be
supporting the launch of the partnership by appearing in a short
film designed to show young people that the screening process is
not a scary one. |
| 08/03/07 |
CRY |
Cardiac Risk in the Young
(CRY) launches hard hitting postcard campaign in Scotland, highlighting
tragedy of young sudden cardiac death
Leading charity
Cardiac Risk in the Young, is launching the final stop of their national
postcard campaign, bringing the tragedy of preventable sudden cardiac death
in the young (YSCD) home to MPs. Over 400 young people a year die from this
treatable condition. The postcards are addressed to MPs with the aim of
bolstering support for the CRY All Party Parliamentary Group and to raise
awareness about the tragic and preventable loss of life. |
| 01/03/07 |
CRY |
Cardiac Risk in the Young (CRY) invests
£300,000 to advance understanding of genetic silent killer – young sudden
cardiac death
Two years on from publication of the NHS
Chapter 8 strategy on Arrhythmias and Sudden Cardiac Death, leading charity
Cardiac Risk in the Young (CRY), has committed to fund coroner referrals to
an expert cardiac pathologist when a young person dies suddenly and the
cause is unknown. |
| 09/02/07 |
CRY |
CRY forges ahead as their All Party
Parliamentary Group gains its 100th member
Today,
Cardiac Risk in the Young (CRY), the UK’s number one charity for reducing
young sudden cardiac death, is pleased to announce that the Cardiac Risk in
the Young All Party Parliamentary Group (APPG) has gained its 100th
member. |
| 26/10/06 |
CRY |
Leading heart charity opens life-saving clinic in Northern
Ireland
This week Northern Ireland
sees the launch of the first independently-funded heart screening clinic at
the University of Ulster. The clinic, set up by leading heart charity Cardiac
Risk in the Young (CRY), will offer a screening service using the facilities
at the UU Clinic in the University at the Jordanstown campus. The official
launch is on 1st November and will be attended by former Ireland
and Ulster rugby star Gary Longwell. |
| July 2006 |
CRY |
CRY fund pioneering research into
sudden cardiac death in young people
Prominent heart charity,
Cardiac Risk in the Young (CRY) announced this month at a packed
Parliamentary Reception attended by its newest patron, David Walliams of
‘Little Britain’ fame, it will be funding new research into the causes of
sudden cardiac death in young people. |
| 06/07/06 |
CRY |
John Grogan, MP for
Selby joins TV comedian David Walliams in CRY to raise awareness of cardiac
risk in the young
Cardiac Risk in the Young
(CRY) were delighted to welcome newest patron David Walliams to open their
Annual Parliamentary Reception yesterday evening. The Little Britain
comedian, having just completed his fantastic channel swim in just over 10
hours, attended the event to raise awareness of CRY’s work in preventing
Sudden Cardiac Death. |
| 27/06/06 |
CRY |
Heart Charity
Cardiac Risk in the Young announce new Initiative to help prevent Sudden
Cardiac Death in the Young
At this year’s annual
Cardiac Risk in the Young (CRY) reception, as part of the CRY Raising
Awareness Week, CRY will be announcing a major new initiative funding
research which will be conducted by Dr Mary Sheppard of the National Heart
and Lung institute at the Royal Brompton Hospital. |
| 28/04/06 |
Doreen Harley |
Press release by Doreen Harley following
the re-opening of the Inquest of her late daughter Lisa Jane Browne
Lisa’s family wish to thank, most sincerely, Mr
Nicholas Rheinberg, the Coroner for Cheshire, for his help and support which
has enabled this new Inquest to take place. Grateful thanks also go to Dr Elijah Behr for his
care and dedication in screening us all, and for arranging for Lisa’s post
mortem tissue to be genetically tested. |
| 25/04/06 |
CRY |
Inquest re-opened after family’s five-year struggle
On Friday 28th April 2006 at 2pm, after a
five-year struggle by her family, the inquest into the death of the
paediatric nurse, Lisa Jane Browne (born Lisa Jane Harley) from
Stoke-on-Trent will be reopened in the publics' interest, following
personal intervention by the attorney general. The new inquest will be
held in the West Annexe of the Town Hall, Warrington.
|
|
01/03/06 |
CRY |
Early
findings show
Government framework to reduce
sudden cardiac deaths in young
people is ineffective
Cardiac Risk in the Young (CRY) publishes the results of a new
survey which indicates that one year on since the introduction of
Chapter 8: Arrhythmias and Sudden Cardiac Death of the National
Service Framework for Coronary Heart Disease, a staggering 97% of
all Primary Care Trusts (PCTs) interviewed said they had failed to
develop a strategy for implementing any of the new Chapter’s
specific guidelines for children and young people. |
|
31/03/05 |
Rugby Football Union |
RFU support cardiac
screening for young players
RFU
Performance Director, Chris Spice said “The work undertaken by CRY
is fantastic. We all want our young players to be in the best
possible shape and the CRY awareness campaign is a very effective
one." |
|
28/07/04 |
CRY |
CRY Chairman and Consultant nominated for
Screening Bill working group
CRY
Chairman Dr Greg Whyte and CRY's consultant Dr Sanjay Sharma are the first nominations
for the working group (Sudden Death in the Young / Screening) to be
chaired by Professor Bill McKenna, world expert on young sudden cardiac
death. |
|
05/07/04 |
CRY |
Game,
set and match to local girl, Laura
Laura John (14) from Southampton yesterday took on the prestigious
role as official ‘coin tosser’ for the Men’s Singles Final
at the Wimbledon Tennis Championships – representing the
national charity, Cardiac Risk in the Young (CRY).
|
|
12/03/04 |
Department
of Health |
Department
of Health Press Release
"I
have seen the tragedy of sudden death first hand, when the 22 year
old son of a good friend collapsed suddenly and died...Today's
announcement will help prevent such deaths and I am delighted that
the Government has taken this terrible condition seriously."
Dari Taylor MP. |
|
12/03/04 |
CRY |
Cardiac
Risk in the Young heart screening bill
Heart campaigners have thrown their support behind a new Private Member's Bill calling for legislation to grant effective, automatic screening on the NHS for all families at high risk of sudden cardiac death syndrome.
|
|
07/01/04 |
European Parliamentary Labour Party |
European
success in campaign to recognise "Sudden Death
Syndrome"
'Mission accomplished' Our campaign linking with MEP's Linda
McAvan and Catherine Stihler and the World Health Organisation
(WHO) to get an international code for sudden death syndrome
conditions has been achieved.
|
|
07/10/03 |
European Parliamentary
Labour Party |
Campaign to
recognise "Sudden Death Syndrome" goes to
Europe
On Wednesday, Labour MEPs Linda McAvan and Catherine Stihler are
launching a new pan European campaign in the European Parliament in
Brussels calling on the World Health Organisation to officially recognise
and name the syndrome.
|
|
02/05/03 |
British Heart
Foundation |
BHF
scientists Discover New Test for Sudden Adult Death, SADS
A
new pan European study released today and funded by the BHF, has
identified an abnormality in the heart that will help predict
those people who may be at risk from so-called sudden adult death
syndrome (SADS). |
|
29/04/03 |
British Heart
Foundation
|
Could
remedies be making people victims of
mystery heart killer?
The
BHF is funding a project to discover whether ‘apparently
healthy’ adults in could be at risk from potentially fatal heart
arrhythmias after taking over the counter remedies for common complaints
such as hay fever or indigestion
|
|
28/03/03 |
British Heart
Foundation
|
BHF
calls for research into Sudden Adult Death Syndrome.
Leading charity asks if mystery sudden adult deaths could be just the
‘tip of the iceberg’. |
|
08/07/02 |
House
of Commons
|
All Party
Parliamentary Group for Cardiac Risk in the
Young
MP
Kevan Jones has been working with CRY over the last few months, to bring together interested parties in Westminster
and form the group. |
| |
|
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