|
The tragic death of a young Wearside man from a rare
heart disorder, Wolfe Parkinson White syndrome, a year ago is giving new hope
to others who suffer from similar complaints.
A campaign
to raise funds for CRY (Cardiac Risk in the Young) has brought in thousands of
pounds and led to the establishment of a cross-party parliamentary group to
champion the charity’s aims.
Levon
Morland, 22, from West Rainton, who was an avid Sunderland supporter, died in
his sleep on 3 January last year after a night out.
His father,
Jeff, a trade unionist and lead singer with a well-known local rock band, Barkin’
Billy and the Scrapyard Dogs, launched the campaign in his son’s memory last
February and it has met with a tremendous response.
So far more
than £25,000 has been raised through a variety of activities – ranging from
gigs in local pubs to a sponsored 300 mile cycle ride along a route in the shape
of a heart and a fire-walking event.
Levon’s
death devastated his family, including his twin brother, Aran, and the local
community, but the fund-raising and political campaign to tackle the problem has
gained wide-ranging support.
His father,
divisional officer and regional political secretary with the Amicus – AEEU
union, has used his contacts, including Kevan Jones, a family friend and MP for
North Durham, to put the issue on the political agenda.
With Mr
Jones’s support, the cross-party group was formed, and the charity has now
gained official Government recognition with a £105,000 grant, which will be
used mainly to bolster up its bereavement counselling service.
Ian Botham
has also joined with Mr Jones in campaigning for mass screening for
schoolchildren to detect heart abnormalities.
Jeff, who
was ill with depression after his son’s death, said they knew he had Wolfe
Parkinson White syndrome, which causes heart flutters, but nobody told the family
it could be fatal – or that he could have been cured by an operation.
“We are
campaigning on all fronts to raise awareness of these little known heart
conditions which represent a significant threat to our young people.
“The young
people who are most at risk are those who try to keep themselves fit and live an
active, sporting life.
“CRY is
also about being on the trail of the silent killer that is stalking our young
people.”
The
charity now has a Co Durham based adviser, Jack Doyle, who is planning a big
fund-raising sports dinner later in the year
|