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My uncle had died of this condition when I was 13,
and I found my Dad lying dead on the floor from DCM three years after
my diagnosis, when I was 18.
My family panicked and so my aunt who worked in a hospital in the States
arranged for me to be tested there and they gave me a defibrillator.
After completing Uni,
doing lots of travelling and working in London for the last 2 years I can
honestly say that it has not affected my life physically in any way.
In the beginning I took a long time to adjust to it
psychologically, perhaps because I had it in so soon after my Dad died,
but now I don’t bother about it in the slightest, and tell
practically everyone I meet that I’ve got one!
If I can go from
despising having one so badly, to becoming quite fond of it (have even
given it a name!) then I think anyone can adjust!
I’ve had it so long now
that it has become second nature to me but I can still remember how
strongly I felt about it at first and could sympathise with those going
through that now. I would
like to help all I can.
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ICD
and Surgery Support Group. To contact anyone in the CRY SS Club please
contact the CRY office