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By 13 the attacks were so
common and I got so used to them that they became a normality.
As
I got older things
got more serious. Four times
my response to the alarm going off was so serious that I ended up in
hospital. Once my Dad saved
my life by resuscitating me. Eight years later, one month before I
was married, I had a massive seizure.
One of the ambulance men remembered me from a previous emergency
eight years earlier!
I was diagnosed with
epilepsy but had another attack on the ward and was rushed into theatre.
I had a pacing wire put into my heart, ultimately my own pacemaker
and a diagnosis of Long QT Syndrome.
Best of all though I made
my wedding day despite of everything.
I couldn’t understand why so many people cried so much.
I never saw my Dad cry in my whole life, until he cried openly in
front of 100 people. I
couldn’t have made it as far as I have without him.
Nearly a year on, and
after a little tweaking here and there, that pacing box has become my best
friend. I can still feel it thumping me now and again, and I thought
I would never get used to it, but I wouldn’t ever consider not having
it. It’s a good
conversation starter!
CRY SS Club area a
fantastic group of young people who I can really relate to. I only wish I
had known someone who’d been through it at a time when I needed them
most.
I
feel I have someone to call on now when I need them.
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Rebekah with her daughter Grace, born in
2004
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Newspaper article: Western
Gazette 17/10/02 |
ICD
and Surgery Support Group. To contact anyone in the CRY SS Club please
contact the CRY office