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Appeal to combat Sudden Death Syndrome in young nears its target

North Wales Daily Post - 22nd November 2002

Support from the public will result in a potentially-lifesaving unit being brought to Flintshire early next year.

Provisional bookings are now being taken from 14 to 35 year old wishing to take advantage of cardiac screening sessions, which are likely to be held in February – following the success of a Chronicle backed appeal.

However, CRY (Cardiac Risk in the Young) campaigner Doreen Harley was keen to remind the public that their ongoing support was vital in ensuring the £6,666 target was reached.

‘We are very close to the final figure,’ Doreen said.  ‘But we still need the public to carry on supporting us in the way they have done to make sure we don’t have to cancel the sessions.’

Earlier this year, Doreen called on Alyn and Deeside MP Mark Tami to launch the North Wales Screening Fund to prevent young lives being needlessly lost.

The brave mum lost her 27 year old daughter Lisa in 1998 to Long QT Syndrome, one of the 11 main causes of Sudden Death Syndrome.

She has teamed up with Geoff and Maureen Rutherford, who run the Miners Arms in Maes Hafn, to raise the cash to detect early signs of cardiac abnormalities in the young.  The couple also lost their son Jonathan to the condition.

Husband and wife team Paula and Simon Hughes are the latest in a line of fundraisers to support the worthy cause.

The Maes Hafn couple have handed a cheque for more than £744 to CRY after taking part in the Great Northern Run.  The donation gave Doreen the confidence to provisionally book the screening venue, which is still to be announced.

‘Paula and Simon’s help has been fantastic,’ she said.  ‘I’m extremely gratefully to them and want to thank them for all the hard work they’ve put in.’

The Connah’s Quay grandmother is confident the premier of Christmas panto Snow White, being staged by Northop Presents at the village institute on November 27, will boost the fundraising effort.

A concert is also being organised at Clwyd Theatre Cymru in Mold on January 19, the anniversary of Jonathan’s death, which Doreen hopes will raise the final amount.

‘I cannot stress how much we need people to continue supporting us if these sessions are to go ahead.  They have been booked on the understanding we raise the final amount’

The free cardiac screening sessions, which will operate on an appointment basis, will involve an ECG, an echocardiogram, and a consultation with a cardiologist.

‘There will be no charge to the individual.  However, on the day of screening, any donation to CRY will be gratefully accepted.’

Experts estimate that up to eight young people in the UK die suddenly each week of cardiac abnormalities.
 

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