CRY Representatives

The role of a CRY Representative is to be an advocate for CRY and to have input in the development of CRY’s aims and initiatives in their designated area. 

Deborah Anderson – Durham

My name is Deborah Anderson and I was truly blessed to have four healthy fit children. Three daughters and one …

Martin Appleby Cardiac Risk in the Young County Representative

Martin Appleby – West London

When I was a young (20) Insurance Agent, I insured a young girl – single parent. She died suddenly, and …

Paula Beck – Surrey

I have chosen to be a CRY Representative to help raise awareness of genetic heart conditions and to help provide …

The Bowens

Maralyn Bowen – Teeside

“We lost our 19 year old son Ian in October 1996. Ian had played golf in the morning, been to …

Diana Bower

Diane Bower – Worcester

My husband John and I have always treasured our family holidays, salve especially now as our three daughters grow older …

Mallory Brand – London

I’m Mallory, a director at an events agency and live with my boyfriend in South London. I enjoy making home-made …

James Brown – Kent

On July 2nd, 2006, my world was turned upside down. My wife Katrina and I had just completed the British …

Cat Burns – Hampshire

I first became aware of CRY in 2008, health shortly after the sudden death of one of our cousin’s, buy …

Angela Butler CRY County Repersentative

Angela Butler – Staffordshire

My name is Angela Butler. I live in Newcastle under Lyme with my husband Phil – we had 2 sons, …

Tim Butt – Essex

“Please feel free to send chocolates and make charitable donations to…” As I lay in ICU moments after waking from …

Lucy Challis – Surrey

We first found out about CRY in January 2006 when we lost my brother to undiagnosed ARVC after he collapsed …

Jackie & Alan Cousins – South Yorkshire

I live in Swinton, near Rotherham, and am now retired and hoping to help CRY as their representative for the …

Paul Daniels – Kent & London

Paul Daniels has been a CRY representative since February 2015. Paul Daniels – Kent & London was last modified: February 2nd, …

Benita Davies – West Midlands

County Representative My name is Benita Davies. I live in the Halesowen, West Midlands. I had three children, my daughters …

Sue Dewhirst – Shropshire

I found out about CRY on 20 July 2012, the day after my only son, Matthew, died aged 17½. It …

Deborah Dixon – Cheshire

Aaron James Dixon born on the 23rd September 1987. Aaron was a much longed for child and I loved him …

Julie Donnelly – Kent

Our 17 year old son Adam died suddenly on 30th July 2004. That is the day my life changed forever. …

Sian Donnelly – Kent

I suppose my ‘story’ starts in 2004. We were a few days into a family holiday when my fit and …

Donna & Rich Fell – East Yorkshire

We live in Hornsea, East Yorkshire which is a small seaside town on the East coast. We are honoured to …

Tara Field – Kent

My name is Tara Field and I am the eldest from a family of 5 children. My family consists of …

Sue Fisher – Southampton

I still find it hard to believe that June 28th 2012 was the last day of my then 30 year …

Sarah Gadsby – Derby

Sarah Gadsby has been a CRY representative since November 2007. Sarah Gadsby – Derby was last modified: January 27th, 2016 by …

John Gallagher – Northern Ireland (Strabane)

John Gallagher has been a CRY representative since February 2009. John Gallagher – Northern Ireland (Strabane) was last modified: February …

Peter & Caroline Gard – Essex

We live in Frinton-on-Sea, on the Essex coast, a place famous for its fish and chip shop and “soon to …

Rebekah Goddard – Dorset

After almost seventeen years of suffering what I was initially told were ‘panic attacks’, I was finally diagnosed with Long …

Geoff & Linda Goodwin – Gloucester

On Saturday 21st July our eldest son, recipe Tony, contacted us to say that our daughter-in-law, Rachel, had been trying …

Shelagh Green – Lothain

Having been together since meeting at Aberdeen University, treatment James and I finally got round to getting married in November …

Rishka Haughton – Manchester

John died on his 30th Birthday, click 31st May 2009. We met in 2001 and moved in together in 2002. …

Charlotte Henderson – North Devon

My brother Martyn moved up to Swindon with me in April 2005 to find work and to get a bit …

Tony & Joan Hillier – Northamptonshire

Our daughter died suddenly in 2003 aged 21 years. It was two years later that we found CRY. Since then …

Paddy Jelen – East Midlands

Nina was an apparently healthy girl, happy and well-adjusted. She had had no major illnesses and was quite athletic – …

Carl & Eunice Johnson – South West London

County Representatives Our daughter, Lisa, was 30 years old when she died from left ventricular failure due to SADS. She …

Ruth Lowe – National Representative

Two and a half years ago I had never heard of CRY or Sudden Adult Death Syndrome. On 12th April …

John Lundy – Northern Ireland

On Saturday, September 18th 1999 my life changed forever. I received a phone call to come immediately to Coleraine Hospital. …

Rachael Marchant – Hertfordshire

CRY has been a big part of my life for the past 6 years. They were my first port of …

Sandra & Jeff Markham – Middlesex

When in November 2001 our son James collapsed and died outside the family home, ambulance generic we were devastated. How …

Maureen Marshall and Hayley Crosbie (nee Marshall) – Lancashire

My husband John and I had our eldest son, John, in Liverpool and we decided to emigrate to South Africa …

Ian McCall – Northern Ireland (County Armagh)

Ian McCall has been a CRY representative since February 2008. Ian McCall – Northern Ireland (County Armagh) was last modified: February …

Aoife McCann – Northern Ireland (County Fermanagh)

Aoife McCann has been a representative of CRY since April 2015. Aoife McCann – Northern Ireland (County Fermanagh) was last …

Aravon McCann – Northern Ireland (County Fermanagh)

I have chosen to be a CRY representative after the death of my 8 year old daughter, Aine, in 2002. …

Garry McGrotty – Northern Ireland (County Derry)

Garry McGrotty has been a CRY representative since July 2010. Garry McGrotty – Northern Ireland (County Derry) was last modified: February …

Louise & Bernard McShane – Northern Ireland (Strabane)

Louise & Bernard McShane have been CRY representatives since November 2010. Louise & Bernard McShane – Northern Ireland (Strabane) was last …

Ian Morris – Shropshire

Ian Morris has been a CRY representative since May 2008. Ian Morris – Shropshire was last modified: January 27th, 2016 …

Kathy Moyle – Devon (Exeter)

County Representative Sudden cardiac death syndrome has taken three members of my family, troche who all died from Long Q.T. …

Ulrike Rowbottom – Oxfordshire

As CRY Representative for Oxfordshire I hope to raise much needed awareness for CRY and all it stands for. Cardiac Risk …

Ian Scanlon – Manchester

Ian Scanlon has been a representative of CRY since July 2007. Ian Scanlon – Manchester was last modified: February 3rd, 2016 by …

Deborah Strathie – North Lanarkshire

Our precious, beautiful son, born 2 August 1999, passed away 7 January 2006 aged 6 years, he was our first …

Joseph Tanner – Brighton/Sussex

My name is Joseph Richard Tanner and I’m proud to be a representative for C-R-Y and all the work they …

Peter Teale – West Midlands

My name is Peter Teale, I live in Cheslyn Hay near Walsall, West Midlands. Our lives changed forever on the …

Jenny Thomas – Devon/Cornwall

I was in a deep sleep and somewhere in my dream I could hear a phone ringing. It took a …

Diane Tolley – Worcestershire

My 15 year old son Robert collapsed and died of an undiagnosed heart condition while out on a bike ride …

Katy Turberville – Hertfordshire

Our daughter Hannah died suddenly in her sleep in February 2007. She was just 7 years old. Hannah was the …

Elaine & Ian Ward – Derbyshire

It was Friday, 18th December 1992, our last day before the Christmas holidays: Neil aged 17, Alistair aged 15, my …

Maureen Ward – Pembrokeshire

Maureen Ward has been a resident of Tenby all her adult life and in that time has had a major …

Melanie Webster – Suffolk

I became aware of CRY early in 2012 following the sudden death of my daughter Lily. We live in Stowmarket …

Dani West – Derbyshire

I first met Sam Wright when we started the same secondary school at 11 years old. Before long we became …