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Alex Archer-Todde - living with Myocarditis

At the end of March and the beginning of April 2007 I almost died.  A lot of people were asking me about this at the time of writing, so if you want to know or just want a read, then here it is.  I’ve put this in writing because it's a morbid thing to talk about and I’m not a morbid character.

This is what I wrote upon returning to England on my first night home.  I took part in an exchange to Sicily.  The Sicilians came to us and this is about my trip to Sicily.


On the second day of my exchange I began to vomit, unable to hold down anything.  Even when I drank water, I would throw up bile. I attributed this to having a long day of travelling and eating too late.  Then I began to feel tight-chested and dizzy, it would hurt when I would respire.  I thought this might be my asthma and thought to leave it a couple of days to get better.

That night I got a pain in my arm that is similar to when you lean on it and part of it goes dead - except this pain seeped into every part of my arm, the skin, the bone, and it wouldn't leave when I would move my arm.  I attributed this to leaning on it whilst I was sleeping and returned to sleep.

That night I experienced the worst physical pain I have ever felt and became delirious from the pain, thinking that my body was in halves and that I was wrapped in bandages.  It was as if there was a person in my chest, kicking to get out every time my heart beat.  To be honest, it was pure terror.

The next day I told my host family I was ill and they rang their doctor. He didn't turn up. The mother of my host family saw I was getting whiter and whiter and took me to accident and emergency.  I couldn't breathe and every time I did it hurt. There were no chairs in accident and emergency and so I sat on the floor.

After a series of tests I was told that my intercostal muscles were bruised from vomiting and that I could go home.  One doctor said however that it would be a good idea to run a test again, as they weren't too happy with it the first time.  I went to get a scan of my heart whilst waiting for the results.


A part of the membrane of my heart on the left side had come loose because there was an infection there, the infection had damaged my heart, similar to the damage you would get after a small heart attack.  I was admitted to intensive care in Tomaselli hospital in Catania, a specialist heart hospital, where I was diagnosed with acute myocarditis.

Within the next two days I could do nothing, couldn't get up out of bed, couldn't go to the toilet by myself or wash myself, I was rendered immobile.
 

On the anniversary of my grandfather's death, I made a miraculous recovery. This isn't an exaggeration of words, a nurse, prompted by my recovery, brought my mother some blessed bread - she thought it was a miracle. 

She would later tell my mother, who flew out with my sister as soon as she found out about me being taken ill, that she thought my mother wouldn't get there in time and that she'd be taking me home in a coffin.

I spent eleven days in hospital, four in intensive care and the remaining seven I spent sat in semi-intensive care.  I could do things for myself and move around but was useless, as I couldn't speak the language of the people around me.

Left to Right: Filippo (Nurse), Francesca (Alex's sister), Alex, Gaetano (Nurse)


I was subject to a barrage of tests every day, my arms are still bruised as I type this because of endless blood samples and I can still not stretch them out fully.

After eleven days, the insurance company sent out an English doctor to bring me home.  As he talked with the Italian doctors we became aware of three facts.  (1) My heart is surrounded by a bit of fluid; this acts as a constrictive sack, meaning my heart cannot beat to its full extent.  (2) My right lung had a small amount of fluid in. Because of the damage to my heart, which is a pump; the pump wouldn't function properly, causing a backpressure, which, in turn, pushed fluid into my lungs.  (3) Myocarditis makes up 20% of sudden death causes.

At the moment I can't really do anything to extremes, I can't be too excited, I can't laugh too much and I can't get scared.  I can't walk for long distances of time and can't lift anything.  I need to take fifteen tablets a day to sort out my heart and the problems within it.

Yet, I cannot be more glad to be not doing all of these things as I am still here, at home, with people I love.

My mother and sister are superstars; I can't imagine what I would have done without them. Even with them there I became institutionalised, trapped and caught in the routines of hospitals.  My mother can speak fluent Italian and so could tell me what was wrong with me and just translate.  Without them I have no doubt that I would have gone slightly mad.

Lynne Mary Calvert. She held the fort from home, rang and texted every day, managed the calls and messages and most importantly looked after the cats. She ventured into my bedroom and tidied it when I was away and bought me new pyjamas and vest tops and ginger nuts. She did everything to make sure I would be comfortable when I got back home and for this she is everything herself. I love her.

Zosia is one of my heroes, without her texts I would have had nothing to come home to.  Zia and Andrew, enough said really.  Anisha, you're awesome.  Eddy, Bob and Jaimie, you're legends and I love you.  Emma, I love you.  Everyone who sent a message or rang, you don't know how much you did for me.

Needless to say, I do have a lot of spare time on my hands, but that will be spent listening to music and playing Playstation three games - I feel it is a sound investment for a boy who has to spend four weeks in bed.

 

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