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Ashleigh Hughes - living with SVT

Hi. I thought I would find the time to tell you my story and give you some updates on my condition! I'm such a busy girl!

 

Well where do I start? When I was 11 the doctor heard "a funny noise" in my heart. They thought it was a murmur so sent me for an ECHO of my heart, where they discovered I had a hole in my heart in between the 2 valves, and had to have it repaired.

 

Everything was fine for a couple of years - regular check-ups and medication until my heart had fully repaired. Then, playing hockey for my school became harder and harder. I thought I was just unfit and so did my coach, but it was only on the off chance of mentioning it to my doctor that he investigated it!

 

After a year or so, the doctors at Glasgow Yorkhill Children's Hospital diagnosed me with SVT - Supraventricular Tachycardia - and Epstein's Anomaly.  In the past 2 years, I have had 4 radio frequency ablations which have unfortunately been unsuccessful!

 

Despite all of this I am at Edinburgh University doing Primary Teaching, and am fast approaching my second year. Living with this is hard and sometimes very stressful and upsetting, but at the end of the day you just have to live with something until you can get it sorted!

I would like to say that I am living a normal student life but unfortunately I don't.  I can't drink and dance due to my heart condition and SVT - and the tablets I'm on make me worse!  At the moment I am in talks with my doctor about getting a Glenn's procedure done to correct my Epstein's and which will hopefully sort out my SVT!  We will wait and see I suppose!

I just wanted to write this because there are other people living with this, and even though I'm one of those unlucky people with Epstein's Anomaly (which affects less than 1% of patients with congenital heart problems) heart conditions don't have to ruin your life!

 

I just think of myself as being special that's all - although some people think that's because of my small brain size! But what I lack in brain I make up with it with my huge heart!


SMILE :) xxxxx

 

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