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Maralyn Bowen: We lost our 19
year-old son Ian in October 1996. After playing a round of golf
in the morning, Ian had gone to his part-time job in the
afternoon before going to have a night out with his mates. He
collapsed and died one hour after leaving home. Ian’s death was
due to a condition known as Wolff Parkinson White (WPW). |
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Diana Bower: My son-in-law Andrew
was a healthy, successful and proud father-to-be. When he died
suddenly aged 30, my daughter’s dreams were shattered. Having
supported her through the ups and downs, I would now like to
help others. Although times can still be difficult, watching my
daughter and grandson laugh together brings me a happiness I
couldn’t envisage after Andrew’s death. |
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Irene Broughton: My world changed forever on Sunday 2nd
September 2007 when we found my 17 year old daughter Steffani
had died in her sleep after going to bed a fit and healthy
teenager. How could this be? I had never heard of SADS. The
Internet led us to CRY who were a tremendous help to me in the
early days and are still there for me. I hope I can help others
by sharing my experience and being there to listen to and
support people who have had a similar devastating experience. |
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Jennie Crean: Ben, a successful
businessman who died aged 28 following a massive heart attack,
touched the hearts of all who knew him. I wanted to keep his
joie de vie spirit alive by becoming a Bereavement Supporter
supporting those who had suffered a similar tragedy. We are all
slowly moving on with our lives but Ben will be there forever in
our hearts. |
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Julie Donnelly: It is hard to describe the devastation of
losing our son Adam. He collapsed and died aged 17 of sudden
death syndrome while playing in the swimming pool when we were
on holiday in 2004. There isn’t a day that goes by where I don’t
think of him and wish things were different. CRY helped us
realise that we are not alone in this tragedy and that this most
unimaginable loss happens to many other young people. |
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Linda Goodwin:
Our son
Ashley completed London Marathons in 2005 and 2006. He died
suddenly at home in July 2007 of Hypertrophic Cardiomyopathy (HCM)
the day after his 35th birthday. Words cannot describe the
feeling of utter devastation in the following hours, days and
weeks. Only the support of family, friends and CRY have enabled
us to slowly rebuild our lives. |
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Julie Hatton: I lost my son Leon when he was only four and a
half years old. Unbeknown to us, Leon was born with a congenital
heart defect called bicuspid aortic valve. This valve was too
narrow for the blood to flow through and it eventually fused
together. Leon died peacefully in his sleep. |
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Joan Hillier: Laura was
working during her vacation in her father's GP surgery. She
suddenly collapsed and died on 20 June 2003, aged 21, from
undiagnosed arrhythmogenic right ventricular cardiomyopathy (ARVC).
She was lively, witty, a fun person, a joy to know and is deeply
missed by all who knew her. |
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Barbara Holland: In 1988 my brother-in-law Hugh died
suddenly from an undiagnosed heart condition. When our son Phil
had palpitations we had him checked at the local hospital but
were told there was nothing to worry about. We were devastated,
therefore, when he suddenly collapsed and died in December 2002.
He was 23. We now know that both Hugh and Phil probably had a
form of cardiomyopathy. |
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Bruce Lord: Our daughter Rachael (24) died suddenly in March
2008 from Cardiac Arrhythmia when swimming in the hotel pool
whilst on holiday abroad with her partner. Doctors were
investigating her fainting episodes. She was
talented, level-headed, much loved and is sadly missed by
everyone who knew her. |
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Ruth Lowe: I had never heard of SADS
until 12 April 2004 when my only child Andrew died suddenly at
21, shortly before he was going to be married. Andrew rarely
went to the doctor but had been experiencing symptoms no-one
thought could be serious. We were left bewildered after his
sudden death. I feel privileged to be a Bereavement Supporter
and hope through my own experience I will be able to help
others. |
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Stephanie Paterson: Investigations into my son James’ 'heart
murmur', twice dismissed as irrelevant in childhood, did not
prevent acceptance for the RAF. He died suddenly at 24 playing
football. We yearned to understand the mystery of his death from
long QT. A ray of light was CRY. Since then the world has become
a different place and we are different people. I now hope to
help others with the changes that such a tragedy brings. |
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Sian Regan: My brother Gareth died in his sleep age 21 in
February 2007. He was fit, healthy, had just returned from his
first skiing trip and recently graduated from university. It
made no sense, was devastating and we miss him every day. I'd
like to be there for others who have suffered a similar loss,
just as CRY was there for us. |
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Anne Reynolds: Pete, an outgoing, lively young man, lived
life to the full. Excelling at most sports, he never experienced
sickness in his life. Dizzy spells several weeks prior to his
death were dismissed. At 27, Pete was found dead in bed. We
shall never get over losing him but are learning to live with
it. With the help of family, friends and CRY we are rebuilding
our lives. I hope to help others find a way through their
tragedy too. |
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Carly Sykes: My husband, Paul, died aged 28 playing football in April
2005. Extremely fit and healthy, he showed no signs of any
problem. His death left me and our baby son devastated. CRY's
help and persistence enabled me to obtain a diagnosis other than
‘natural causes' and ensured Thomas has ongoing screening, as
Paul died of the genetic condition ARVC. CRY has proved to be
the support network I needed on so many levels. |
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Vanessa Tardif: My fit and vibrant brother Simon (35) died
suddenly in July 2004 of undiagnosed ARVC, leaving a traumatised
wife and four young children. We are still devastated and
shocked at his sudden death and miss him every day. I have ARVC
and was fitted with an ICD soon after my brother died. I trained
as a Bereavement Supporter to try and help others through their
grief. |
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Jenny Thomas: Our son
Nicholas, 25, died suddenly at the wheel of his car while waiting
for the traffic lights to change on the 13th January 2005, from
Long QT syndrome. No words can describe our devastation. He is
thought of every hour of every day. With the support of family,
friends and CRY we have been able to carry on and I hope my
training as a Bereavement Supporter will enable me to help
others. |
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Diane Tolley: My 15-year old
son Robert was on a bike ride with his two best friends. During
the ride, Robert got off his bike complaining of feeling dizzy.
He collapsed and died, despite the best efforts of passers-by
and paramedics. Robert died from hypertrophic cardiomyopathy.
There were no warnings, signs or symptoms of this condition. |
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Sarah Willis: Our son, Jo, collapsed and died suddenly
and unexpectedly on the 26th February 2005, after
going for a Saturday morning run. He was 19 and in his first
year at university. Jo was a good listener and always made time
for people. In becoming a CRY bereavement supporter I want to
help other parents or relatives who are facing similar tragedies
– and to remember Jo by listening to others. |
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