My lovely husband Peter Snr
was retired and seven and a half months after losing his son, he died. Peter
Snr and I were going to make it our life’s work to promote awareness of CRY
and hopefully if we could save just one life and that a family would not
live the rest of their lives as we do. The loss never leaves you.
On the day of our son’s
funeral, when Peter Jnr was going to be lowered into the ground, I said to
my daughter, “Please tell me this isn’t really happening". I turned
away, I could not watch.
Our daughter Suzie is married
to Peter - yes there were three Peters - they have Sam now nearly 10 years
and Poppy who was nearly 1 year when she lost the uncle she will never know
- but she will grow up knowing a lot about him.
Our daughter-in-law Helen and
Peter Jnr had Joseph who was 8 years old when he lost his Daddy.
Myself, I have to have a life,
its just not the same and never will be, but I have to live for my lovely
family. To the outside world Susie, Helen and I look fine; we laugh, we
enjoy things, but it’s never the same laugh or the same enjoyment.
My daughter and I were both
screened, we both have Brugada. I’m the gene carrier, the grand children are
monitored at Great Ormond Street Hospital.
Knowing that we lost our son
because I unknowingly passed the gene on to Peter Jnr is a huge burden.
I have to say sorry to him every day. I have to live with the loss of both
my Peters and the devastation that it has caused.
Peter Jnr was a fine carpenter
and lots of times he would phone for Peter Snr to collect something for him
or he needed a helping hand.
Peter Jnr would always say,
“Daddy can you do us a fave (favour).” After we lost Peter Jnr my husband
said, “I just want the phone to ring and Peter Jnr to say, "Daddy can you do
us a fave (favour)".” But it didn’t ring. Although Peter Jnr was
37 he always called his dad 'Daddy'.
If you are reading this and
haven’t had a loss, do us all a fave and get screened by CRY. What have you
to lose, but a life to save...