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My cousin Keith
Newton died suddenly in 1985 at the age of 22 after stepping out
of the bath. The cause of Keith’s death was recorded as “Viral
Pneumonia”. His son was 3 weeks old.
Eight years later on 14th
October 1993, my brother Howard English age 32, collapsed and
died during rugby training. The cause of Howard’s death was
recorded as “Floppy Mitral Valve Disease”. He left his wife
Stephanie and three children; Sebastian, 5, Sabrina, 3, and
Titus, 14 months.
It was only after Howard’s son, my
nephew Sebastian, died during a rugby match on 15th
February 2004 at the age of 15 that the true cause of all three
deaths became apparent. They had all died as a result of ARVC –
Arrhythmogenic Right Ventricular Cardiomyopathy.
We now know the gene causing this
condition has been present in at least three generations of our
family and it is desperately sad to think that we had to lose
three wonderful people before this was identified. |

Phil, Chris
and Dave after the run |