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Claire Graham - living with Tetralogy of
Fallot
I was born with Tetralogy
of Fallot in 1983, which meant that I was very ill indeed; I gather that
I was given a 20% chance of survival as a baby. I couldn't move very
much, I was permanently out of breath, so instead of walking I learned
to talk and to read.
At the age of three I
underwent open heart surgery to patch up my heart, the surgeon's name
was Miss MacKay and I remember her quite clearly. I was in theatre for
more than four hours - the surgeon patched up both the inside and the
outside of my heart, lessening (though not eradicating) the backflow of
blood into one of the chambers.
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I went to school, where thanks to my
early reading and speaking skills I excelled at most things. I was
never any good at sport, though, and I suspect this has a lot to do
with my heart condition. I wasn't able to run around very much
anyway, but I also think that the earlier priority of reading over
walking shaped my preferences. As I grew up into teenagehood it also
became very apparent that I was not as strong as the other kids, and
that a night out for me came round once a month or so. I just wasn't
able to go out any more frequently. This disability became quite
frustrating after a while, not being able to do all the things your
mates can is very demoralising, and I would get quite upset about
it.
However, now I'm at
university studying for a PhD in Philosophy - a subject that
involves a lot of reading and talking! My heart condition has shaped
my life in many ways, some more subtle than others, and though it is
a hindrance in many ways I like to think that its overall effect has
been positive: I'm studying at one of the finest universities in
Europe under one of the greatest philosophers of our time. I don't
know how long I'll carry on being as healthy as I am - despite a
heart murmur and a tendency to get migraines I'm as fit as I aim to
be - but I have no reason to think that it won't last. For this I
thank Miss MacKay and my Specialist, Dr Ian Peart at Alder Hey
Hospital. I also thank my vigilant parents, who kept me from doing
anything too silly over the years.
My message to anyone
with a heart condition, no matter how light or severe, is to
remember that for you this is normal, and it shouldn't get in the
way of your life. It is a part of you, so turn it to your advantage
if you can.
Claire
Graham
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