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Cardiac Risk in the
Young (CRY) is a national charity raising awareness of potentially-genetic
cardiac abnormalities in young people.
The charity also offers
bereavement support and promotes and subsidises screening for those at risk.
Surprisingly, the high-risk
group includes athletes, illustrated by the deaths of 25-year-old David
Longhurst, a York City footballer who died during a televised match, and
22-year-old Adrian Hawkins, a cyclist shortlisted for the Barcelona Olympic
squad. He died just after winning a major race.
The charity’s president is
former England cricketer Ian Botham.
The latest campaign follows
the work of Dari Taylor, the MP for Stockton South, who drew up a private
members’ bill, the Cardiac Risk in the Young (Screening) Bill.
The bill was not passed into
law but elements will be adopted in new legislation later this year into the
national service framework for coronary heart disease.
The South East regional launch
of CRY’s 12-month lobbying tour took place last week. The charity’s founder
and chief executive, Alison Cox, gave a speech.
“By showing just some of the
faces behind the stories we read and hear about all too often, we can help
people to understand this cruel killer and highlight the fact that it can
happen to anyone, at any time – usually without warning,” she said.
“Yet these eight faces –
representing the eight lives lost a week in the UK – show just a snapshot of
the problem.
“We need to keep up the
pressure and engage support from as many MPs as possible to make sure we can
prevent other families from experiencing such tragic losses.”
Stephanie Paterson has written
to Esher & Walton MP Ian Taylor to ask him to join the All Party
Parliamentary Group for Cardiac Risk in the Young.
“What we are hoping to do is
keep the profile of CRY in parliament with this parliamentary group,” said
Alastair.
There are 68 MPs in it so far,
with a target total of 100 members.
“We would like Ian Taylor to
be one of that 100,” said Alastair.
“It’s only through
parliamentary and media publicity that we can raise awareness, with a huge
amount being done on the medical side.
“Those two combined will
result in more screening and result in fewer people dying.”
A spokeswoman at Ian Taylor’s office said the
MP has already been sent several postcards and the MP has followed up the
issue by writing to the health minister, John Hutton.
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