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"It is one year since
we lost Nathan - what a terrible year it has been.
As you know we have
all undergone extensive cardiac screening. We now feel that it
would have been better if Nathan's heart had been kept rather than
just small tissue blocks. I know this is a horrible thought
but we now know that the diagnosis of my husband's condition and
also the investigation of our younger son would be aided if they had
the whole heart to look at.
We were never asked
if Nathan's heart could be kept, but I am sure if we had been asked
and given a full explanation about the need for such research we
would have agreed. I would therefore advise any parent who is
faced with the terrible tragedy that we have suffered, to consider
giving their consent for the heart to be kept for future research -
not only for the benefit of their own family, but also to help other
parents avoid having to go through what we're going through." |
