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Four members of the same family are ticking time
bombs - they have a genetic "sudden death" condition that could kill them at
any moment.
Rob Griffiths, 44, and three of his children -
Rhys, 20, Rhiann, five and Nelly, two - all suffer from Long QT syndrome,
which can cause the heart to stop suddenly.
Strong emotions and sudden shocks can trigger an
attack. Even the bleeping of an alarm clock could be fatal.
The family were alerted to the condition four
years ago when Rhys, Rob's son from a previous marriage, collapsed while at
an adventure training camp.
Tests revealed Rhys, now a university student, had
the hereditary heart condition.
He had to be fitted with an internal defibrillator
which delivers electrical impulses to jolt the heart back into a normal
rhythm. Rob and Rhiann were also tested and confirmed as having Long
QT. Nelly was diagnosed at birth.
Rob, from North Wotton, Norfolk, said: "What
happens is the heart can end up short circuiting and completely shutting
down. It's like a power cut of the electrical supply to the heart."
Rob, a logistics manager, served 20 years in the
Army and was amazed to discover he could have keeled over at any time.
He said: "I have been in operations in Bosnia and
Northern Ireland carrying heavy guns and packs, but I've always been fine.
"It just goes to show you can't let this rule your
life. Some people have cancer and they're a lot worse off than us."
Rob and his wife Jan, 43, said their priority was
to make life as normal as possible for brave little Rhiann and Nelly.
He said: "You can't wrap them in cotton wool. That's not the life we
want them to have. Rhiann tells everyone she ha s special heart."
Jan said her family's condition was a constant
worry but she had learned to cope.
She
said: "It was pretty scary when I first found out about the girls having
Long QT. It was bad enough having Rob confirmed.
"It
was such a shock to the system, especially as nobody knows much about it."
Jan
said before Nelly was born it was difficult to decide whether to have
another baby.
"Eventually we decided it would be wonderful for Rhiann to have a brother or
sister," she said.
Last
month Rob and Rhiann completed a five-mile walk across eight London bridges
to raise £400 for the charity Cardiac Risk in the Young (CRY).
The
family have been grateful for the help of CRY, which is campaigning to raise
awareness of the condition and other cardiac abnormalities.
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