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Every week around a dozen
apparently fit and sporty youngsters die from undetected heart
conditions. Adrian Monti talks to one teenager about his lucky
escape.
Throughout his childhood James
Bailey was obsessed with football, playing every day until he
discovered quite by chance that the sport he loved could have
killed him.
It was only when he took the
opportunity to skip a Spanish lesson and, along with his pals,
have a simple screening test held at his school that James
discovered he had a potentially life-threatening heart
condition.
"I didn't expect anything to be
wrong," said James, now 18.
"I'd only gone along as my friends
were doing it and some older relatives in my family had suffered
heart-related problems in the past."
The 20-minute test was organised by
Cardiac Risk in the Young (CRY) as part of its campaign to
screen young people for undetected heart defects. The charity
raises awareness of sudden cardiac death in seemingly healthy
young people. A mobile screening unit toured the UK last year
testing 2,500 under 35s . James was one of around 14 found to
have serious cardiac conditions.
He was diagnosed with
Wolff-Parkinson-White (WPS) syndrome, a congenital abnormality
of the heart's electrical system. Sufferers have an extra
electrical pathway connection which causes a rapid heartbeat, a
potentially dangerous condition.
It is one of a group of heart
conditions that can cause sudden cardiac death including
cardiomyopathies and myocarditis.
Ironically sporty youngsters such as
James who have an underlying cardiac abnormality are more likely
to be at risk because exercise can aggravate the condition. It
might not have felt it at the time but James was one of the
lucky ones. When the electrocardiogram (ECG) test - which
measures the electrical activity of the heart - revealed he had
WPW syndrome doctors were able to start treating it.
Many people are never aware they
have WPW and it does not present any symptoms.
Others suffer palpitations,
blackouts and light-headedness. Approximately three people in
every 2,000 have it and while it proves fatal for only a tiny
percentage it is impossible to predict how likely that is to
happen in each case.
James underwent further tests at
hospital which included an echocardiogram, which shows how well
the heart is pumping. The tests confirmed the first diagnosis.
"Looking back I had sometimes
suffered
palpitations after doing sport, but just thought it was normal.
"After the diagnosis I made the
mistake of reading about WPW on the internet which really
frightened me, says James who lives near Bristol with parents
Nick and Charlotte and younger sister Rebecca, 15.
James was on medication for two
months to stabilise the irregular heart rhythm.
in June last year he underwent a
procedure called ablation. This involves having long wires
inserted into the groin along veins leading towards the heart.
Electrical activity of the heart can then be 'mapped' and when
the location of the abnormality is found radio frequency energy
is sent via the catheter to destroy the abnormal heart tissue by
burning it away.
On the first attempt his cardiac
surgeon was unable to correct the problem.
"At first they said nothing more
could be done - this operation has a 97 per cent success rate,"
says James. "I was so disappointed, I thought I'd never be
able to play football again."
His cardiac surgeon decided to try
again in October and this time it did work.
"I was delighted," he says. I
was even more nervous the second time and only had a local
anaesthetic. I went home from hospital the same day.
As a precaution I didn't play football for three weeks but I
felt fine virtually straightaway. It's not been a problem
since.
"After what happened to me I have
realised how many people aren't as fortunate in having heart
defects detected - the first time they discover they have a
problem it's too late."
CRY wants all young people to have
routine heart scans to spot any potential abnormalities.
It argues this would help reduce the
numbers dying from an undiscovered heart defect. CRY is
launching a new initiative to give free cardiac screening at St
George's Hospital in Tooting, London, to teenagers who were born
in 1995 - 14 is the youngest age when the heart is mature enough
to be tested. It will be the first of 50 sessions to be
rolled out over the next two years.
CRY's consultant cardiologist
Professor Sanjay Sharma, based at St George's Hospital, says:
"We are trying to identify conditions which cause cardiac death
in young people. Although deaths are rare they do occur
and there are around 500 to 600 in the UK every year.
"James is a perfect example of how
screening can pick up something which has the potential to kill
a young, sporty person."
Young people in the South-East born
in 1995 who want a free screening (or their parents on their
behalf) can visit
www.c-r-y.org.uk/1995.htm
For more information on screening
and the charity's work call 01737 363 222 or visit
www.c-r-y.org.uk
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