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Jeremy
Cole was just 14 when he died from sudden cardiac death at his home in
Victoria Drive.
His mother Jenny is now backing a nationwide campaign to raise awareness of
the condition.
Every week, eight young people die from sudden cardiac death but campaigners
say these deaths could be prevented if simple cardiac screening was more
widely available.
Cavendish pupil Jeremy was a perfectly healthy, normal teenager who, almost
without warning, dropped dead at the family home.
Mrs Cole reckons every parent in the country needs to know about the condition
and she is supporting a national charity, Cardiac Risk in the Young (CRY).
The charity has produced a thought-provoking new postcard, which features the
faces of eight young people who lost their lives suddenly to previously
undetected heart conditions.
The postcards will be circulated to CRY supporters and around the south east.
The aim is for people to send the postcards to MPs to encourage them to add
their support to the campaign and join the charity’s All Party Parliamentary
Group, which will, in turn, lobby for a national screening programme.
Mrs Cole explained to the Herald the tragic circumstances behind Jeremy’s
sudden death in October 1995.
She said: "I had just taken his sister to Oxford. I had driven her there for
her first day at university and when I got home I found Jeremy had dropped
dead – just half an hour before I got home.
"He had fainted
twice just months before his death and we now know these were warning signs.
"The first time
was at school and he was sent to the A&E department at the DGH, where he was
examined and they sent him home with a clean bill of health.
"They said it
was just a faint and there was nothing to worry about.
"The second
faint happened in June, three months before he died. On that occasion he had
just cycled home one evening and fainted.
"We didn’t take
him to hospital because he came round quite quickly, but I knew something
wasn’t right."
Mrs Cole made an appointment to take Jeremy to his GP, but tragically he died
the day before he was due to see him.
However, it was unlikely the family doctor would have known Jeremy had an
underlying heart condition.
But Jeremy’s heart problem could have been picked up if an ECG test had been
taken for evidence of the specific condition he suffered from.
Mrs Cole said, "Sadly ours is not a one-off case and I have heard many stories
which are very similar and it’s all too common a situation.
"Sudden death
syndrome can’t be cured but it can be treated and sudden death can be avoided
which is why it’s so important to have a national screening programme.
"It’s a
hereditary condition and once there is a death in the family the rest of the
family can be screened and treated if necessary.
"We need to make
every parent more aware of this condition because if people know about the
condition we can look for it and treat it.
"I liken the situation to meningitis because not so many years ago, people
didn’t know about that.
"Now parents know
what symptoms to look for and a national screening programme has been set
up."
Through fundraising effort,
the Cole family has been able to give the DGH two ECG machines, and a third
ECG machine to the GP surgery in Enys Road.
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