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The early morning rap on the door and the police
car parked in the street outside. As she went downstairs, Natalie
Cutler realised on that bleak early January morning that something awful
must have happened.
"I just knew," says Natalie, sadly.
"I heard the bang on the door. It was 4am.
I came downstairs. There were two police officers. I didn't want
to hear what they'd come to say. I didn't want them to tell me which
one it was.
Her first thought was that something must have
happened to one of her three strapping sons. Tragically, she was
right.
"One of them said, 'Natalie Cutler, do you have a
son called Stuart?', she recalls. "It was awful .... just awful."
Natalie pauses, takes a deep breath and remembers
through falling tears the nightmare of learning how Stuart, 22 years old,
fit, apparently healthy and just weeks earlier the life and soul of the
family's Christmas celebrations, was one minute in the kitchen getting a
glass of water, and the next, dead.
"We were told he was probably dead before he hit
the floor," explains Natalie, 52. "It didn't matter that the ambulance
was at the house within eight minutes and that they spent 20 minutes trying
to revive him. He was already gone."
There was, the family later learned, nothing that
anyone there could have possibly done. His heart had simply stopped.
Yet had Stuart - one of at least 12 young people to die in similar
circumstances every week - undergone two simple, non-invasive checks, then
perhaps his early death could have been avoided.
It's why today Natalie and a group of families
from around Scotland who have also been left to cope with the shock of
losing loved ones, will head to the Scottish Parliament to launch a fresh
appeal for every young person in the country to undergo heart screening.
At the root of the campaign, led by charity CRY
(Cardiac Risk in the Young) will be a powerful postcard featuring the faces
of 12 young Scots - among them Stuart - each one of them cut down by a
previously undetected yet often preventable heart condition.
Sadly, points out Natalie, each poignant portrait
represents what seems to be a growing and tragic problem. For the
number of young people who lose their lives to sudden cardiac death - often
described as Sudden Adult Death Syndrome (SADS) - has leapt 50 per cent from
previous estimates.
For most - around 80 per cent - there will have
been no warning, no previous symptoms and no hope of surviving.
"It's awful to think there are around 16,500 young
people in Scotland walking around right now with an undiagnosed heart
condition. Some might die tomorrow or next week, next year," adds
Natalie, a project manager for a telecoms company.
"And what's also really shocking is that the
equipment is there that can help save their lives. It just isn't being
used."
It was January 17, 2009. just weeks after Stuart
had travelled home to mid Calder from Cheshire where he had set up home with
his girlfriend.
"It was lovely to have him home, recalls Natalie,
52. "I got to be 'mummy' again and I loved it."
Stuart had been sitting at home watching a movie
with girlfriend Becky, the couple's cat snoozing on his knee, when he
complained of slight palpitations.
"He told Becky he had this strange feeling,"
Natalie recalls. "He felt his heart racing."
While Stuart's girlfriend went to call her mum to
ask for advice, he walked to the kitchen to get a glass of water. She
heard the glass smash. He'd collapsed. When she rushed through
she though he'd passed out and phoned 999. It turned out he was
already dead before he hit the floor.
The family was later told Stuart had an enlarged
heart, a treatable condition which he had either been born with or had
developed as a youngster.
While Natalie and husband David, 58, wrestled with
their grief, there was also panic that their two other sons, Michael, 30 and
Richard, 27, might also be affected. The brothers underwent emergency
tests. Luckily, both were clear.
"But for Stuart, it was a ticking time bomb in his
chest," she adds. "It's terrible to think that he died of an
undiagnosed heart condition, which, had it been found earlier, then
something could have been done."
That's the case in 90 per cent of sudden cardiac
death cases, and the reason why CRY is relaunching its original 2007 appeal
for a national heart screening programme for young people. Back then
its hard-hitting poster featured eight young people's portraits to represent
the number of deaths each week from previously undiagnosed cardiac
conditions. But new figures - perhaps the result of greater awareness
and post mortem tests - show the number of cases every week is closer to 12.
CRY's chief executive, Alison Cox, says: "As the
recorded incidence of sudden cardiac death rises it is timely for us to
return to Scotland to re-launch this powerful campaign as a way of
emphasising the importance of screening.
"These 12 faces are just a snapshot of the
problem. We need to keep up the pressure and engage support from as
many MSP's and MPs as possible to ensure we are doing everything we can to
prevent other families from experiencing tragedies."
CRY wants the Scottish Government to extend an
existing cardiac screening programme, which provides ECG and echocardiograph
tests for elite athletes. It was launched in 2008 following the death
from heart failure of Motherwell FC captain Phil O'Donnell, 35.
Natalie adds: "An ECG takes just 20 minutes and an
echocardiograph about the same. So 40 minutes of testing on equipment
that's already there could help save so many lives. It's just awful
when you know a simple test could be all that's needed."
WORLD UPSIDE DOWN
Cricket captain James Green was in the middle of a
cricket match in the Meadows when he suddenly collapsed and died.
The newlywed was playing for Marchmont Cricket
Club's first team in a league fixture. He was in the midst of
organising players between overs when, out of the blue, he dropped to the
ground. He was 34.
Wife Shelagh recalls: "James and I finally got
round to getting married in November 2011. Six months later James went
off to play cricket and didn't come home.
"He was rushed to nearby Edinburgh Royal Infirmary
- when I arrived the medics had been trying to revive him for some time, but
without success. My handsome, witty, intelligent 'other half' was
gone.
"As you can imagine, that sort of thing turns your
world upside down in an instant."
James, who lived in Easter Road, worked as an
analyst for Scottish Natural Heritage. Within months of |joining the
Marchmont club he'd made a mark as a prolific wicket taker and highly
accurate bowler and risen to become its captain.
His loss is understood to be the result of
arrhythmogenic right ventricular cardiomyopathy, was a second tragedy to hit
his family. For James' cousin Rupert had collapsed and died in similar
circumstances eight years earlier while playing tennis.
Too much of a coincidence, further investigation
suggested a genetic link -particularly as James and Rupert's mothers were
identical twins.
"At the same time as losing a son, brother and
husband we were dealing with the implications for the remaining family,"
recalls Shelagh, now one of charity CRY's county representatives, offering
support and help to other families affected by sudden death.
James is amongst the 12 people featured on the CRY
poster highlighti8ng the number of people who die in Scotland every week
from undiagnosed and often preventable cardiac problems.
"Three of my brother-in-laws and one of my
sister-in-laws have ICD's fitted, cousins are also being treated and my
gorgeous little nieces and nephews are being monitored.
"The loss of James and Rupert and the subsequent
knowledge that has given the family, means we are hopeful our families won't
experience the agonies of the sudden and untimely loss of a young person
again."
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