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A Devon grandmother who has lost three family members
unexpectedly, is awaiting the Government’s latest ideas on how to tackle
cases of sudden death.
Kathy Moyle, of East Budleigh, near Exmouth, believes her grandson Matthew and
her daughters Lynn and Pauline all died from a rare genetic syndrome which
causes sudden cardiac death.
Tests showed that Mrs Moyle, 61, also has the condition and she has since been
fitted with a special machine to prevent her heart from stopping.
Later this week, healthy secretary John Reid is due to unveil national
guidelines about sudden cardiac deaths and disorders of the regular, rhythmic
beating of the heart, known as arrhythmias.
It
comes after 10 years of lobbying by the Cardiac Risk in the Young group (CRY),
the British Cardiac Society, and more recently, the new Arrhythmia Alliance.
It
coincides with National Arrhythmia awareness week, which started yesterday.
About 700,000 people across the UK are thought to have heart rhythm
disorders. However, the country lags behind Europe and America, where doctors
use a far higher number of medical implants for patients whose hearts beat too
slowly, too fast, or abnormally.
Mrs Moyle was found to have a potentially fatal hereditary disorder that can
occur without warning in otherwise healthy people. She has campaigned for
routine testing to be introduced for young people in schools.
She said: “I wouldn’t want families to go through what I have gone through,
losing three people.
“By setting up guidelines we will get a truer picture of how many people are
involved with this and we hopefully won’t be having these tragic deaths.”
Mrs Moyle’s grandson, Matthew, died in 2001, aged 17. A year later his
mother, Mrs Moyle’s daughter Lynn, 38, died. Her other daughter Pauline also
died suddenly in 1978, aged 16. Other members of her family are undergoing
tests.
She added: “I do have a worry that it (the policy) won’t go anywhere near what
we want.”
Alison Cox, from CRY, said: “We have put in a tremendous amount of work. I
live in hope the guidelines will be good news.”
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