|
The mother of a nurse who died of shock when her
alarm clock rang is spearheading a nationwide campaign to raise awareness of
the condition which claimed her daughter's life.
Lisa Jane Browne was 27 when she died of sudden
heart failure in 1998.
Her mother, Doreen Harley from Connah's Quay, was
in Cardiff last week to launch the campaign and to raise awareness of the
risks of sudden cardiac death.
Lisa had a rare condition called Long QT Syndrome,
which was never diagnosed.
Doreen said: "We want people to know that we can
offer support, counselling and the screening of other family members who
might be at risk from Long QT Syndrome.
"We are sending out copies of the postcard to all
MPs and AMs and are hoping an all-party policitcal group will be formed to
support our cause.
"Not a day will go by that we will ever forget the
happy memories that we have of Lisa.
"Although her life was so tragically cut short, we
are so proud to have had her for 27 years."
In the last three years of her life Lisa was
suffering with tiredness, chest pain and palpitations but was only given
anti-depressants by her GP.
Since Lisa's death her sister Rachel has tested
positive for the condition and has been fitted with a pacemaker, and erring
on the side of caution Rachel's sons Jack and Adam are treated with beta
blockers.
An emotive new postcard featuring photographs of
12 people from Wales, including Lisa, who have died of undetected heart
conditions, was unveiled at the launch organised by CRY (Cardiac Risk in the
Young.)
Alison Cox, the charity's founder said: "We need
to keep up the pressure and get support from as many MPs as possible to
ensure we are doing everything we can to prevent other families from
experiencing similar tragedies."
Sudden cardiac death is the terms for heart
conditions which affect fit and healthy people and can result in a
spontaneous death if not reacted.
For more information on sudden cardiac
death, call CRY on 01737 363 222 or go to
www.c-r-y.org.uk
|