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A mother whose son died suddenly on his 17th
birthday said much more must be done to reduce cardiac deaths in young
people.
Gina Challen's son, Ricky 'Boo' Jones died in his
sleep two and a half years ago this week. An inquest in 2004 failed to
find a reason why the promising Hayes FC youth team goalkeeper died, but the
pathologist suggested he suffered from a possible heart abnormality.
The charity Cardiac Risk in the Young (CRY)
released a survey last week which found that the majority of primary care
trusts have failed to implement any of the recommendations to combat a
condition that claims eight young people a week.
Mrs Challen, 47, of Michael Gaynor Close, Hanwell,
said: "I am not at all surprised. If hundreds of youngsters were dying
it would get more attention. It could be down to lack of resources
because if costs £200 for an ECG.
"We should have screening of young people like
they do in countries like Italy and Cyprus."
A plaque is to be put up in memory of Boo, as he
was known to friends, on the Michael Gaynor Close Estate where he lived.
The money was part of a lottery grant to improve
the area and people living there decided to spend some of it on the plaque
because he was so popular. Mrs Challen said she was still struggle to
come to terms with the death of Boo, found dead in his sister, Jodie's house
in Hayes by Clare King, his girlfriend at the time, in September 2003.
Mrs Challen, who has put together a poignant
memorial website for her son, said: "It feels like yesterday. It
doesn't go away. I can function. I must don't just cry all the
time. The whole family is still affected. I racked my brains at
the time, wondering why he had died. He was fit and sporty. I
used to wonder if there was something that I had missed.
"I was very pleased with the website to Boo.
It took a long time and there were a lot of tears."
Cry was instrumental, with other campaigners, in
pushing for the guidelines on how the NHS should identify and access people
who are at increased risk to sudden cardiac death.
It sets out best practice for patients which
includes heart screening and referrals to specialists, counselling,
information and psychological support. Alison Cox, founder and chief
executive of CRY, said: "Electrocardiogram testing in the young is vital if
we are to reduce the number of unnecessary deaths - but this needs to be
followed up with a referral to a cardiac specialist."
Ealing Primary Care Trust said it does not have a
written strategy directly relating to young people and cardiac care but is
committed to following national guidelines and offering high quality care.
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