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Parents devastated by their sons' sudden deaths
say more should be done to check for hidden heart problems.
New research has revealed health authorities
across the UK are failing to identify those at risk from Sudden Cardiac
Syndrome.
Campaigners in Gloucestershire say GPs should be
equipped with electrocardiogram machines to assess those with undetected
heart conditions and increase their chances of survival.
But 97 per cent of the country's primary care
trusts have failed to put government guidelines into place a year after they
were introduced.
Josephine Coffey's 17-year-old son Jamie died
while having a kick about with his friends in July 2004. It was later
discovered he had a heart defect.
Josephine has campaigned to raise awareness of
sudden adult death syndrome, which strikes people who appear fit and
healthy.
She set up a memorial fund to provide a heart
monitor for her GPs' surgery in Bishop's Cleeve. She said PCT's
aren't taking the syndrome seriously.
"I'm angry because it sends out a message that
Jamie's death and other children's deaths mean nothing," she said.
"I wish the doctors could see the impact it has on
a family, then perhaps they would take more notice."
The government recommends people with a family
history of heart problems should be put forward for an assessment and a
scan.
Alexander Edwards, 12, died of an undetected heart
problem while playing cricket at Cheltenham College Junior School in 1997.
His parents Rachel and Peter, who live in
Withington, were outraged by the survey.
Rachel said: "It's devastating for families
because we're desperate for more screenings on the NHS."
She has had to get her other children Phillip and
Victoria tested privately.
Rachel said: "Phillip has shown symptoms including
near black-outs and we were supposed to be receiving yearly checks at
Cheltenham General.
"But now they've told us checks will happen every
three years, which is ridiculous."
Ann Meek's son Justin died suddenly from an
undiagnosed heart condition when he was 33.
A picture of Justin was used on a postcard
supporting a national campaign by charity Cardiac Risk in the Young, which
wants screening to be available to youngsters.
He died in his sleep at home in Bishampton, near
Pershore, in 2001.
Mrs Meek said: "The figures are disappointing.
So much work has gone into bringing these guidelines in."
Cotswold & Vale PCT spokeswoman Joanna Wynn said:
"The NHS in Gloucestershire commissions paediatric cardiology services
(hospital heart services for under-18's) from Bristol.
"The county group is working on its strategy
following the publication of the National Service Framework for Coronary
Heart Disease, and National Institute for Clinical Excellence guidelines.
"One of the actions we have taken is to make a bid
to the British Heart Foundation for a nurse with a specific remit for
arrhythmia care. We're also looking at the new guidelines for
implantable defibrillators."
There are 400 unexplained sudden cardiac deaths
among young people every year.
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