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Swansea mum has welcomed news of a new Government task force to tackle
cardiac deaths in the young.
Paulette
Smith of Clydach lost her 24-year-old son Christian to an undiagnosed
heart problem in 1999. She
joined other parents and health campaigners outside Parliament calling for
better screening for heart defects in the young.
Now
Public Health Minister Melanie Johnson has announced plans for an advisory
group to tackle sudden cardiac death in the young and improve services for
people with irregular heartbeats.
Mrs
Smith said: “The news will be welcomed by families across the country.
Even to have selective screening is a step in the right
direction... Anything is
better than nothing.
“Unfortunately
every family will have to have lost someone before they can be screened.
“I
would like to see individual screening at a certain age the same as in
Italy and the US.”
An
estimated 400 apparently healthy young people die each year from sudden
adult cardiac death syndrome and a further 700,000 people in the UK suffer
from arrhythmia – a disturbance in the heart’s rhythm which can lead
to anything from minor health inconvenience to death.
The
new advisory group could lead to a new National Service Framework Chapter
setting out advice for doctors on standards and models of care for such
conditions.
Miss
Johnson said: “It is devastating for families when a young, apparently
healthy person dies suddenly without warning.
“The
majority of people with an underlying condition do not have any symptoms
for all or most of their adult life.
However, the condition can lead to sudden and unexpected death,
often in early adulthood.
“It’s
vital that we attempt to understand this condition further.
“The
new group that I’m announcing will help both raise awareness and drive
future policy.”
Mrs
Smith was in London supporting a private member’s Bill calling for
screening of people at high risk of sudden cardiac death syndrome.
The
Bill has now been dropped with the announcement of the set up of the
advisory group.
Labour
MP Dari Taylor, who put the bill forward, said: “This announcement will
help prevent such deaths and I am delighted that the Government has taken
this terrible condition seriously.
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