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They faced the heartache of losing their teenage
son when he collapsed and died on the way home from a game of football.
But the parents of Josh Fell, 15, faced more agony
as their nine-year-old daughter Jasmine underwent test to see if she had the
same heart condition.
Now, Rich and Donna Fell have been told Jasmine
has been given the all-clear after being tested for Sudden Arrhythmic Death
Syndrome (SADS) - the condition that claimed her brother's life.
Rich, 40, said: "They have said Jasmine is
absolutely fine.
"It means a lot to us and we are really happy.
But it's the unknown. We really wanted answers as to why Josh died.
"I was in the resuscitation room with him and I
keep thinking back to that.
"We still find it difficult because there is
nothing to blame."
Josh, of Hornsea, had been playing football with
his friends one night in June and sat down to rest on the grass after
complaining of feeling tired.
His friends thought he had fallen asleep, but when
they turned him over, he had gone blue.
They called an ambulance before attempting to
resuscitate him.
Josh, who did not have any other major problems,
suffered from an irregular heart rhythm.
Unless it is immediately regulated by specialists,
it cannot be treated.
In July, tests revealed Jasmine also had an
irregular heart rhythm, which could have meant she had a rare heart
condition, and had to undergo further checks.
She was prescribed beta blockers but no longer has
to take any medication. However, she will now be monitored every year
until she is about 17 to check for heart conditions.
Rich and Donna also face one more test.
Donna, 37, said: "It is what caused SADS that we
don't know. It's quite frustrating that we still don't have any
answers.
"We thought the tests might have shown something
up."
Since Josh died, the family have been fundraising
and campaigning for screening tests to be carried out among young people in
East Yorkshire.
They have raised £10,606 through donations and
fundraising events.
Now £5,000 will be donated to the Cardiac Risk in
the Young charity and the rest of the money will be spent on a two-day
screening event in Hornsea.
Two hundred people aged 14 to 35 will be screened
for heart rate abnormalities, which could lead to other heart conditions.
People will be able to register through the charity's website before
screening in April.
Rich said: "We want to bring this unit to Hornsea
every year and that is what we are going to do for the rest of our lives.
"We don't want anyone else to go through what we
are going through.
"I would like to say a huge thank you to everyone
who has supported us over the past 15 weeks."
Up to 500 people affected by heart problem each
year
Sudden Arrhythmic Death Syndrome (SADS) causes one
in every 20 deaths in the UK each year.
Up to 500 people are affected by the condition
each year.
The charity Cardiac Risk in the Young (CRY) has
been campaigning for more than 15 years and champions research into SADS.
It has led the European Society of Cardiology and
International Olympic Committee to recommend cardiac screening for any young
person taking part in competitive sport.
In Italy, screening sports participants is
mandatory and there are moves in Scotland to have the same processes put in
place.
Sudden Death Syndrome is an umbrella term used for
the many different causes of cardiac arrest in young people.
CRY provides medical information on the most
common causes of unexpected sudden cardiac death in people under the age of
35.
for information on SADS , call 01737 363 222,
visit www.c-r-y.org.uk or email
cry@c-r-y.org.uk
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