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Joseph Tanner - Brugada Syndrome Type 3

I always considered myself a rather healthy person - I’d run roughly 20 miles a week and I ran The London Marathon in 2007.

On Sunday March 16th 2008 I entered the Hastings half marathon.  A couple of friends from the running group that I run with gave me a lift to Hastings.

I remember walking around the stands at Hastings and talking to some people that I had seen around before through running.

 

I don’t remember running, I finished in 1 hour 49 minutes; I collapsed at the finishing line.  My heart stopped, thankfully the St. John Ambulance were at the finish line and they had defibrillators at hand to give me the shock my heart needed.

 

I was in intensive care for 2 days, waking up on the Wednesday wired up to all of these machines.  I was then informed of what happened to me - I had a cardiac arrest at the finish line.  My heart had stopped for 7 minutes and I then had another attack in the ambulance.

 

Before the race I had texted 5 of my friends to say that I was worried something wasn’t right and to wish me luck.  I don’t remember sending that message, I don’t remember feeling odd or anything.  I think my body went into auto-pilot, to get me to the finish line.

 

It’s scary to think that this could have happened anytime, all those runs, especially those cross country runs.

 

After having an MRI scan at Brompton Road I was diagnosed with Brugada Syndrome.  It had already been decided that I was going to have an ICD (Implantable Cardioverter Defibrillator) inserted but had to wait on the MRI before getting the go ahead.

 

I took everything in my stride, which seemed to surprise a few people.  I looked at it that I was lucky to still be here, so I was like "do what you have to do".

 

On the day of my operation, I couldn’t think and I was scared, I was scared that I wouldn’t wake up.  4 hours later I was up and I had a room full of friends, a lot to take in. 

 

The very next day I was released from hospital, after 3 weeks I was so happy to be out.  I was told to take it easy, but on the day of release I was out walking along the beach.

 

A week and half later I was back a work, I wasn’t allowed to do any lifting or climb ladders - among many other things - for about 6 weeks.  I was able to resume a sex life within a week of having my ICD inserted.

 

Life is pretty much back to normal for me now, sometimes I even forget that I have an ICD - though it looks like a bar of soap under my skin.  I’ve had my first pacing test, and I’ve been told that I might be able to do marathon running again.

 

I will listen to my doctors, I’m not going to put myself at risk.  I haven’t ran since that day but my running shoes are at the ready.

 

It is shocking to know that 8 young adults die in the UK every week due to an undiagnosed heart condition.  So I hope to raise awareness through CRY and help give support to people that need it.

 

After what happened to me I wasn’t aware of CRY.  People that go through these experiences also need support, it is a very confusing time.


Joseph


 

Joseph's experiences have also been featured on the BBC South East Today news

 


 

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