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Save our young from early death

Lancashire Evening Telegraph - 13th March 2004

By Andrew Taylor

 

MPs join Eileen in battle for free screening

Two East Lancashire MP’s have backed a Private Member’s Bill calling for a change in the law to help prevent sudden heart deaths in young people.

The measures called for in the Bill, debated in the Commons yesterday, could prevent deaths from rare heart conditions, which currently claim the lives of hundreds of apparently healthy young people every year.

The Bill calls for effective, automatic screening on the NHS for all high-risk families and has received backing from Ribble Valley MP Nigel Evans and Rossendale and Darwen MP Janet Anderson.

And their support for the Bill has been welcomed by Irene Wickers from Darwen, who won a Pride of East Lancashire Award for her work in setting up the North West branch of the charity Cardiac Risk in the Young (CRY).

Irene’s son Neil died suddenly in 2000 from a heart condition aged 31.  He collapsed at Albion Mill gym, Blackburn after his heart was weakened by a virus he did not know he had.

Irene, of Cyprus Gardens, said, “I think it is absolutely brilliant what we have been striving for since we formed CRY.  When we first got involved everyone seemed to think we were talking silly and that these sort of deaths did not happen.

“I wrote to Janet Anderson and other MP’s because we have got to really make a difference.

“In other countries such as Italy and America, all young people who play sport are screened and everyone who has a heart problem in their family are screened and that can only be a good thing.  It seems that nearly every week there is a young person who has died and a lot of the time sport seems to trigger it”.

Speaking at the charity’s parliamentary reception at the House of Commons, Mr Evans, said  “I am very pleased to have this opportunity to show my support for the important work funded by CRY. It is vital that we do everything we can to help raise awareness and support the introduction of new legislation to stop these terrible tragedies.”

The charity believes immediate screening of all close family members after a sudden death, is the only way to identify hereditary faults in the heart and prevent further losses within the same family.

Reports suggest those with a family history of sudden death or with ‘warning signs’ such as blackouts are still not being referred for further tests and are dismissed as too young to have heart problems.

At present the only option for people who want a second opinion is to have screenings carried out privately but this cost up to £350.

In around one in 20 cases of sudden cardiac deaths, there is no recognised cause, even after post mortem examination.

 

 

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