|
In Britain, 12 young people die every week from
heart conditions they had no idea about. The charity Cardiac
Risk in the Young, is aiming to bring that number down and recently toured
the country to give people a chance to get their heart checked out.
Thousands signed up to be screened, and Crawley News Sports reporter SAM
MUNNERY was one of them.
I felt a certain degree of anxiety when rolling
into the Philips UK headquarters in Guildford, about to have my heart
checked out.
As someone who tries to keep reasonably active, I
was always confident that the organ pumping blood around my body was in good
nick - but you just never know for sure.
The doubt comes from the stories I've read - from
international footballers like Mark Vivien Foe (Cameroon) to local sportsmen
like cyclist John Ibbotson and Brockham footballer Stuart Attridge.
Crawley Town fans may also remember Clement Pinault, the brother of Reds
midfielder Thomas, who died of a heart attack while playing for French side
Clermont Ferrand.
All apparently in the peak of condition, all
suffering a sudden, tragic death.
The specific reasons for the deaths of these
athletes were different abut are covered under the umbrella term Sudden
Arrhythmic Death Syndrome (SADS). It doesn't care whether you play
professional sport or not.
I'd want to know if there was a problem, but a
small part of me doesn't. I wouldn't want to be told I couldn't run,
swim or cycle anymore, but then again I'd rather that than die.
So there I was, walking up the steps into a former
Philips trailer in the company's car park, ready to find out how my ticker
was ticking. The trailer used to be a mobile training centre for
Philips staff, but the electrical giant donated it to the Tadworth-based
charity Cardiac Risk in the Young (CRY) which has converted it into a mobile
heart screening centre.
The link to Philips is a natural one, as the
company makes a lot of the testing equipment used by CRY, and has helped to
fund the charity's tour of England this summer. The CRY 'Test My Heart
Tour 09' offered free heart testing to young people aged 14 to 35, a
valuable opportunity to uncover any nasty surprises.
The screening unit completed its tour with a stop
at several Philips sites in the UK, including Chichester, Chelmsford
(Suffolk), Hamilton (Scotland) and here in Guildford, to allow Philips staff
to benefit from their employer's generosity.
And it was clear many of them had taken up the
offer. Around 180 employees and employee relatives had registered for
a free screening at Guildford and the waiting area was always full.
After filling out a disclaimer form - you have to
accept that being tested could result in you having to stop strenuous
exercise, if your heart has a defect - I was weighed, measured and put back
in my seat to wait for the first test.
Most of the people coming in were in their 20's,
all looked quite healthy and none seemed nervous. Neither was I now,
for that matter.
After a short 15-minute wait, my name was called
and I went in to a small room containing a bed, a complicated looking
machine and a cardiac physiologist called Teresa Brennan, from St George's
Hospital in Tooting.
She was carrying out the electrocardiogram (ECG)
test that everyone who is screened would have. It measures the
pathways of electrical conduction around the heart, checking there are no
interruptions or irregularities.
As she told me to lay on the bed and attached a
series of silver stickers to my body, I notice the amiable Teresa was an
expert at the 'distraction chat' that we have all experienced when you have
an injection as a child. I pointed this out to her.
"You have to use your people skills. I love
people and find it easy to make them feel relaxed," she replied, attaching
wires to the silver stickers.
"When people come into the room they are quite
concerned and you pick up on it. So the first thing I do is to put
their mind at rest.
"It's vital to do that as you get a clearer
reading. There are so many artefacts that can interfere with it.
You pick up noise from the body - tension shows as noise."
Luckily Teresa did such a good job that I was
ultra-relaxed and gave a nice, clear reading. It took just 20 seconds
and I didn't feel a thing.
Then it was off the room next door where
cardiologist Dr Navin Chandra was waiting with my results. We
discussed the printout of my heart's electrical activity, and fortunately
all appeared to be normal. If it wasn't, Dr Chandra would have
recommended an ultrasound scan, which gives more of a detailed assessment of
the heart by looking at its structure.
For the purposes of this article however, I was
given one anyway. The ultrasound is the same as that carried out on
pregnant women, and it's a real eye opener.
For the first time, I could see and hear my heart
beating on a screen as cardiac physiologist Neville Croft, of Leeds
Nufffield Hospital, moved the sensor across a layer of gel on my chest.
Primarily he looks for signs of hypertrophic
cardiomyopathy, which to everyone else is an abnormal thickening of the
heart muscle. No such issues were flagged up, as the ECG had
indicated, but it was reassuring to have all the same.
CRY has scheduled screenings in Belfast in
September, and in Colchester and the Isle of Man at the end of October.
With some, a cost is involved - the ECG at Colchester is £35 - but for
others that have received funding, people can sign up and be screened free
of charge.
Nothing local to Surrey is currently on the list
at www.c-r-y.org.uk, but if you are aged 14-35, regardless of whether you
play sport, undergoing a heart screening which is so quick and painless is a
far better option that finding out the hard way.
Cox's mission is not over
The nationwide tour undertaken by Cardiac Risk in
the Young has been hailed as a success by the charity's chief executive.
But Alison Cox MBE believes CRY still has a 'long
way' to go in raising awareness of Sudden Arrhythmic
Death Syndrome in
Britain.
Figures from the Office of National Statistics
show that on average, 12 people aged 35 and under die every week in Britain
from a previously unknown heart condition.
Mrs Cox is keen to see that figure drop and was
pleased with the results from CRY's Test My Heart Tour, which screened more
than 2,500 hearts and enabled those with problems to take more tests and
access further treatment if necessary.
She said: "We found two people with Brugada
Syndrome in just over 2,000 people. That's great because it only
affects one in 10,000 people.
"The only chance of finding it is through
pro-active screening so that's why we believe in our screening programme."
Mrs Cox founded CRY after her son Steven, now 33,
was diagnosed with a heart abnormality at the age of 18 while studying in
America on a tennis scholarship.
As a tennis player herself, Mrs Cox admits she had
heard of other players dying for apparently no reason, and when her son was
told of his condition, the penny dropped.
"When I was on the circuit, two people died from
Sudden Death Syndrome and these were top tennis players," she said.
"So when Steve was diagnosed I thought, I know
other people this has happened to in their 20s so how can you say nothing
can be done about it?
"That's when I started CRY. I worried how
many other people were out there with the same problem"
Her son's condition is a personal reminder of the
grief she would have suffered had he not been diagnosed, the grief
experienced by many other families who do not uncover a relative's problem
in time.
Mrs Cox's experiences sustain her drive to grow
CRY and develop new initiatives to get more people to attend screenings and
find out if they do have an underlying heart condition.
The screenings also feature ultrasound scans to
give more detailed assessments of the heart and, if it is required, the
charity will connect people with clinics and experts who can arrange further
treatment, including operations to cure the problem.
The success of the screenings and their rising
popularity is vindication of Mrs Cox's determination to found her charity in
1995, despite a dismissive response from parts of the cardiology profession.
She said: "CRY is the only organisation doing
anything about this. When I started it, I was told I was wasting my
time. A awful lot of consultants said I shouldn't do it.
But we have come from one death a week to 12 deaths a week.
"Now there is a lot of interest from the medical
profession which is key. The next stage is to empower GPs as much as
we can. Only 20 per cent of people with Sudden Death Syndrome have
symptoms and on 11 per cent would survive an attack. For many, the
first symptom is when they are dead."
Celebrities such as Sir Steve Redgrave, David
Walliams, James Cracknell and Sir Clive Woodward have all added their
patronage to the charity, while health secretary Andy Burnham is a keen
supporter of CRY's screening programme.
Their backing is vital as CRY aims to raise its
profile but for Mrs Cox there is still much more work to do.
She said: "My goal is that young people say to
each other: 'You mean you haven't been screened?"
"And the other is to offer the service for free so
many people have that opportunity."
Fact File
Experts estimate that at least 12 young people
died suddenly each week in the UK of cardiac abnormalities.
The majority of sudden heart-related deaths in
young people are due to inherited forms of heart muscle disorder and
irregular heart beat.
The most common cause of sudden death in young
people is Hypertrophic Cardiomyopathy (HCM) - an excessive thickening of the
heart muscle.
Sudden death in older people is usually due to
blocked arteries in the heart, whereas sudden death in young people (35
years of age or less) is usually from inherited heart conditions that run in
families.
|