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The
unexplained, sudden death of anyone up to the age of 35 is frequently
recorded as death from natural causes but experts are increasingly coming
to believe that many of them are actually due to Sudden Death Syndrome –
also known as Sudden Cardiac Syndrome.
Often
there are no warning signs. Usually
the person will have died while going about his or her everyday life.
Recently
the condition has been highlighted by a number of high profile deaths.
The
dynamic Manchester City midfielder Marc Vivien Foe, 28, died from a
heart-related illness while playing for his country, Cameroon, in the
Confederations Cup last year; Daniel Yorath, 15, whose sister Gaby presents ITV’s On The Ball, died in his back garden while playing
football with his dad, the former Wales coach, Terry Yorath and junior
swimmer Laura Moss, 13, who was a member of the elite Olympic Swim 2000
Squad, died warming up at a school swimming gala.
And
last week Metro News reported how 15-year-old Mohammed Ejaz Majid died
after collapsing during morning assembly at Burnage High School. He was described as fit and healthy. His family were told he died of a heart condition that they
never knew he had. His older
sister, Bulqees Majid, 19, described her brother’s death as a
“terrible loss”.
The
organisation Cardiac Risk in the Young (CRY) was set up in 1995 to raise
awareness of Sudden Death Syndrome. It
wants to introduce a national screening programme using an ECG – a
painless test that records the heart’s electrical activity – which can
highlight problems and further tests can then be carried out to determine
an exact diagnosis.
Alison
Cox, founder and chief executive of CRY, said: “Our conservative
estimate is that eight young people die from SDS every week.
The problem is that the deaths go down as asthma, unascertained
epilepsy, drownings or natural causes.
“SDS
is a silent killer. The
person can be dead within 20 seconds.
We had one case where there was a child who died as she was handing
a cup of tea to one of her parents.
“The
deaths are absolutely catastrophic for the family.
They have no understanding of what has happened.
They are left wondering how is it possible for a fit and healthy
young person to be dead so quickly.
“The
death of a much-loved adult is horrendous – but when it’s a young
person who has their life ahead of them it is horrific.”
The
charity is now calling on the government to introduce a national screening
programme and a bill enabling that to happen is currently going through
Parliament and will have its second reading on March 12.
The
World Health Organisation is also set to investigate the levels of sudden
deaths amongst children and young adults
CASE
STUDY: PETER JORDAN, 25
Peter
Jordan was a fit and healthy 25-year-old who enjoyed life when he died
suddenly and without warning.
It
was November 15 1998 and his younger sister Costandina Shackleton says his
death still haunts her today.
Peter;
a pastry chef, was asleep in bed when his fiancé noticed he wasn’t
breathing. She called an
ambulance and despite frantic attempts to resuscitate him he died.
Account
director, Constandina, 28, from Wilmslow, was close to her big brother.
They spoke daily on the telephone at 4.10 pm.
She still thinks about him at that time every day and misses those
phone calls.
His
cause of death was given as restrictive cardiomyopathy.
It is characterised by increased stiffness of the heart muscle,
usually due to scar tissue, which prevents adequate filling of the
chambers of the heart.
There
were no warning signs and the suddenness of death has had a profound
effect on Constandina. She
said: “If I had a headache I would think I was going to die because of
what happened to Peter.
“The
way he died, I couldn’t understand it.
I wasn’t prepared for it. The
reason why it happened is so devastating.
“There
is a void and at first I couldn’t explain or make any sense of it.
He was a normal 25-year-old with his life in front of him.”
She
discovered CRY and learned about the symptoms that led to Peter’s death,
becoming a divisional representative for the organisation.
She
says: “We need to raise awareness without frightening people.
Having a simple ECG test could save lives.”
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