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In the news: Dari Taylor MP's screening Bill


A collection of news articles relating to Dari Taylor MP's Cardiac Risk in the Young (Screening) Bill.  Declarations of support from other MPs; the thoughts of families; and reaction to the withdrawal of the Bill and the subsequent Government decision to set up an advisory group.

 

Dari Taylor's Web site

 

 

Date

National  publication

Article title

     
Summer 2004 pH7 Parliamentary Health Magazine

A new chapter

Dari Taylor MP welcomes the government’s decision to include recommendations from her Cardiac Risk in the Young private member’s bill kin the National Service Framework

12/03/04 Department of Health Press Release
press release
Department of Health Press Release
"I have seen the tragedy of sudden death first hand, when the 22 year old son of a good friend collapsed suddenly and died...Today's announcement will help prevent such deaths and I am delighted that the Government has taken this terrible condition seriously." Dari Taylor MP.
12/03/04 Cardiac Risk in the Young ‘Screening’ Bill - Hansard
Cardiac Risk in the Young ‘Screening’ Bill - Hansard
“I look forward to the opportunity the government is promising us - being able to influence change and save young lives. It is absolutely crucial that we keep the pressure up to maintain the focus on cardiac risk in young people. This is the basis of CRY’s campaign.” Alison Cox, Founder & Chief Executive.
12/03/04 Parliamentary Press Release
press release
Cardiac Risk in the Young heart screening bill
Heart campaigners have thrown their support behind a new Private Member's Bill calling for legislation to grant effective, automatic screening on the NHS for all families at high risk of sudden cardiac death syndrome.
08/07/02 House of Commons 
press release
All Party Parliamentary Group for Cardiac Risk in the Young
MP Kevan Jones has been working with CRY over the last few months, to bring together interested parties in Westminster and form the group.
27/06/02 Hansard Cardiac Risk in the Young  - sudden death
Is the Leader of House aware that, every week, four to eight apparently fit and healthy young people die of undiagnosed heart problems in the UK?
21/06/01 Parliamentary Debate (Hansard) Heart Disease (young people)
There is a need to raise awareness among general practitioners, a need for greater awareness on the part of coroners. 
     
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Date

Regional Publication

Article title

     
05/03/05 The Northern Echo Genetic testing offered to heart risk families

Families at risk from a rare form of heart failure will be offered free genetic tests to pinpoint the threat, the Government announced yesterday.  The move marked a personal triumph for North-East MP Dari Taylor.

01/10/04 The Northern Echo

Families' cry from the heart

The families of eight victims of Sudden Cardiac Death have helped to launch a campaign for more extensive heart screening in young people. 

02/09/04 The Journal (Budleigh Salterton)

Kathy helps raise awareness

Kathy Moyle, from East Budleigh, has helped launch a nationwide campaign to raise awareness of a rare genetic heart condition that has decimated her family. 

08/04/04

Bolton Evening News

Action plea over heart risk in young

A Bill, which is due for its second hearing in Parliament soon, proposes the screening of all young people who have had family members die suddenly from heart conditions they did not know they had.  It comes after pressure form the charity Cardiac Risk in the Young (CRY) with the support of Bolton Southeast MP Dr Brian Iddon.

05/04/04

Dorset Echo

MP heeds parents' CRY
"It is clearly a worthwhile cause. There is almost nothing worse that can happen to you than to have one of your children drop dead suddenly without warning."

04/04/04

New Forest Times

MP's call for early screening for sudden death risks rejected
“Despite the support from MPs from all parties for this Bill to ensure that families most at risk are screened, the Health Minister’s response was surprisingly negative.  It seems that this campaign will have to continue and be intensified.”

03/04/04 The Argus, Brighton

CRY is working to save the young from death

On January 30th, our son James died suddenly at home with nor warning or indication that anything was wrong with his health. 

20/03/04

Highland News

Heartbeat appeal praised in House of Commons

The Highland News Group’s highly successful Heartbeat appeal was praised in a House Of Commons debate on the risk of cardiac disease among the young.

19/03/04

Deeside Chronicle

Tami backs Bill for cardiac risk testing

Alyn and Deeside MP Mark Tami is backing a Bill which calls for automatic screening on the NHS for all families considered to be at high-risk of cardiac conditions that may lead to sudden cardiac death.

19/03/04

Frinton and Walton Gazette

Couple welcome moves to combat sudden cardiac deaths

The parents of a fit and healthy teenager who died from a sudden cardiac death have welcomed new moves to help tackle the condition.  Andrew Gard, who lived in Frinton and was a promising member of Clacton Hockey Club, died seven years ago - just days before his 18th birthday.

19/03/04

Southern Daily Echo (Southampton)

When death strikes without warning

The death of a Hampshire woman has sparked government moves to combat a heart problem that kill 400 apparently healthy young people every year:   Ministers have vowed to act following the tragic case of Sarah Woodhead, who was just 28 when she became a victim of Sudden Death Syndrome (SDS)

18/03/04

Clitheroe Advertiser & Times

MP Backing Campaign

Ribble Valley MP, Nigel Evans has called for new legislation to help prevent sudden cardiac death

18/03/04

Middleton & N. Manchester Guardian

MP backs Bill to fight killer heart defects

Middleton MP Jim Dobbin has called for the passage of legislation to help prevent “Sudden Cardiac Death”, which currently claims the lives of up to eight apparently healthy young people every week in the U.K

18/03/04

Newbury Weekly News

Sir George backs heart campaign

NORTH West Hampshire MP Sir George Young is backing a campaign to introduce automatic screening on the NHS for families at high risk of sudden cardiac death.

17/03/04

Sunderland Echo (City)

New group to tackle problem of sudden death syndrome

A Father left devastated by the loss of his son to a form of Sudden Adult Death Syndrome, today welcomed Government moves to help prevent more deaths from the condition.

16/03/04

Birmingham Evening Mail

Hopes dashed on heart test

Young mother of two Kerrie Scott spoke today of her disappointment at the failure of MPs to make a screening test compulsory for potential victims of a killer heart condition.   It was a random version of the test on her baby son Tyler that revealed the rare heart defect Cardiomyopathy and ultimately saved his life.

16/03/04

Evening Chronicle (Newcastle)

Tragedy brings vow on health screening

A health screening programme for Britain’s youngsters came a step nearer today following the tragic death of Levon Morland.  Health Minister Melanie Johnson promised the Commons experts would investigate the situation.

15/03/04

Shropshire Star

MP's support for heart disease Bill

Telford MP David Wright lives on a diet of fags, booze and fried food despite knowing that his health will suffer, the House of Commons heard.  Mr Wright was speaking during a debate on a proposed new health Bill to tackle heart disease.

15/03/04

South Wales Post

Heart death task force welcomed
A Swansea mum has welcomed news of a new Government task force to tackle cardiac deaths in the young

13/03/04 Express & Echo (Exeter)

Despair as care Bill is withdrawn

Devon campaigners have reacted with disappointment after a bill calling for automatic screening for young people from families with a history of sudden and unexplained death was withdrawn. 

13/03/04

Express & Star (Wolverhampton)

Action over heart deaths in the young

The Government is to set up a special advisory group to help tackle sudden cardiac death in young people and improve the services for people who suffer from irregular heartbeats and similar conditions.

13/03/04

Lancashire Evening Telegraph

Save our young from early death

Two East Lancashire MP’s have backed a Private Member’s Bill calling for a change in the law to help prevent sudden heart deaths in young people.  The Bill could prevent deaths from rare heart conditions, which currently claim the lives of hundreds of apparently healthy young people every year.

13/03/04

Northern Echo (Teesside)

Group is created to investigate deaths

Public Health Minister Melanie Johnson announced the move to tackle so-called sudden cardiac death and improve services for people with irregular heartbeats.It came in response to a back bench Bill sponsored by Dari Taylor, Labour MP for Stockton South, who won the support of sports stars and celebrities for her campaign.

13/03/04

South Wales Evening Post

Heartache of a child's death

Gower MP Martin Caton yesterday spoke in the House of Commons about the heartache endured by families who lose a child to a hidden heart defect.  The MP was speaking in support of a private member’s Bill presented by Stockton South MP Dari Taylor.

13/03/04

Yorkshire Post (North)

Bid to fight killer that strikes without warning

NEW moves to help tackle sudden heart deaths in young people and improve services for people with conditions like irregular heartbeats were announced by the Government yesterday.

12/03/04

Exeter Express & Echo

Families of sudden death victims welcome screening Bill
Immediate screening of families after a sudden death is vital for identifying genetic faults in the heart and prevent further deaths.

12/03/04

Lancashire Evening Post

Genetic timebomb dad backs NHS screening
Tests revealed James died of an abnormal thickening of the heart muscle.  The condition, Hypertrophic Cardiomyopathy, is usually hereditary

12/03/04

Rotherham Star

Mums back call for heart checks
The mothers want the Government to routinely offer heart screening to all teenagers in schools, in the way that inoculations are automatically given to young people to protect them from disease

12/03/04

South Wales Evening Post

Paulette makes a cry from the heart

A Clydach mum joined health campaigners in the House of Commons to cal for young people with a family history of sudden and unexplained death to be given automatic screening on the NHS.

11/03/04

Middlesbrough Gazette

Screening hope
Margo concluded her daughter had died from Sudden Adult Death Syndrome. This condition often brought on by an abnormal heart rhythm. Since her daughters death Margo has raised thousands of pounds for the charity CRY and held a cardiac screening event for her community

11/03/04

Shropshire Star

Screening call for high risk patients

Health campaigners today called for young people with a family history of sudden and unexplained death to be given automatic heart screening on the NHS to detect the problem.  A Private Member’s Bill, being presented by Dari Taylor MP, calls for automatic screening for people at a high risk of sudden cardiac death syndrome.

26/01/04

Express & Star (Wolverhampton)

Tragic mum wants child heart checks

The mother of a 15 year-old Bewdley boy who collapsed and died of an undetected heart condition is campaigning for new checks to help save the lives of other youngsters. 

23/01/04

 

 

Frinton & Walton Gazette

Cardiac clinic breakthrough

The parents of a teenager who died from a sudden cardiac death have welcomed two major new developments in the battle to raise awareness over the condition.  A new clinic is to be set up at Colchester General Hospital to test youngsters, and they are fully backing a Private Members Bill in Parliament. 

16/01/04

South Wales Evening Post

MP backs young heart victims call

Gower MP Martin Caton is backing the growing call for better screening for young people who may have hidden heart defects. 

06/01/04

Express & Echo (Exeter)

Tragic heart families win MP's support

Devon families have welcomed a breakthrough lending support to their campaign for improved screening to identify people at risk of the rare Sudden Death Syndrome.  The issue is to be highlighted in the House of Commons today by an MP introducing a Private Member’s Bill.

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