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A EURO
MP has joined forces with two Rotherham mums who lost their sons in unexplained
circumstances to call for more research to be carried out.
Linda
McAvan, one of the Yorkshire and Humberside MEPs is asking the World
Health Organisations to change the way it records cases of either cot
death or so-called Sudden Adult Death Syndrome.
Ms
McAvan says there is no international standard for recording such deaths
at the moment and as a result, researchers are not able to build up an
accurate picture.
Official
figures suggest there are between four and eight explained deaths each
week in the UK alone although campaigners fear the real figure could be
much higher.
At
the launch of her campaign outside Rotherham Town Hall she was joined by
Jean Johnson and Julie Carder, whose sons died from Sudden Adult Death
Syndrome and the Mayor and Mayoress of Rotherham, Cllr and Mrs Richard
Russell.
Ms
McAvan added: “We need to find out if there is a common factor, for
instance if these deaths are more prevalent among boys.
“Cot
deaths have reduced in number of 70% in the last ten years, after they
were defined as Sudden Infant Death Syndrome (SIDS) and the risk factors
identified.
“We
don’t know if this campaign would result in the same dramatic effect,
but we are asking for guidance offered to pathologists in different
countries.”
MUMS
SHARE SADS TRAUMA
Jean
Johnson and Julie Carder have both suffered the trauma of losing children
to Sudden Adult Death Syndrome.
Jean
(54) of Wickersley, was devastated by the unexpected death of 21-year-old
Craig in November last year and just nine months earlier Julie Carder had
lost her 15 –year-old son Ryan Bothamley to the same condition.
Jean
said: “Craig had just gone off to Sheffield Hallam University and he was
talking to a friend in the car.
“The
two of them got out of the car and Craig said he felt dizzy and just
collapsed. It just makes you
wonder what sets it off.”
Julie
(44) also of Wickersley said: “Until the government gets the correct
statistics they cannot carry out screening.
For instance, no-one checks children’s hearts.
“Children
are protected now against things – why can’t they be called to the GPs
for ECGs maybe at the age of 11 and again at 16.
“It’s
like a time bomb waiting to go off at any moment.
We need to get our children screened, it’s the only way that we
can stop some of these tragedies happening.
“People
ought to be made more aware.”
Jean
said: “We have been asked to come along and sign this document.
“We
are doing this so that one day it’s going to help people and that they
won’t have to go through what we are going through and still going
through, this is what Julie and I have been campaigning for.”
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