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Articles from national publications (1998 - 2009)

CRY aims to keep you in touch with media interest in healthcare awareness of Sudden Death Syndrome.  All articles have been sent in by the families concerned or by a press cuttings agency, and CRY has permission to reproduce the articles.



 

 

 

Date

National  publication

Article title

     

15/02/10

The Times 

The boy who died for 11 minutes

In September 2008, James Doherty, a 13-year-old junior tennis champion, was training with his coach when he collapsed at the back of the court. 

03/02/10 Channel Five News Sudden Death Syndrome (video)
Channel Five News (UK) lead with an item about sudden death syndrome on 3rd February 2010. The film featured contributions from CRY supporter Julie Donnelly who lost her son Adam, and from CRY's consultant cardiologist Professor Sanjay Sharma.

01/01/10

The Bulletin of the Royal College of Pathologists

 School visit to the Royal Brompton Hospital

Dr Mary Sheppard invited secondary school students with an interest i science and medicine to the Royal Brompton Hospital for an afternoon of short lectures and demonstrations. 

10/11/09 Arrhythmia Watch Call for post-mortem genetic testing to become routine in cases of sudden death
At a meeting on Sudden Cardiac Death (SCD) at the Royal Society of Medicine, sponsored by Cardiac Risk in the Young (CRY), doctors have called for coroners to routinely request consent from relatives to allow small amounts of tissue to be retained from young people (under 35 year olds) who die suddenly from heart disease or without explanation.

16/10/09

BBC London

Teenagers offered heart screening

A charity is offering 14-year-olds in London and the South East free heart screening in a bid to cut sudden deaths from undetected cardiac problems.

16/10/09

The Guardian

Why there was nothing 'human' about Jan Moir's column on the death of Stephen Gateley

Jan Moir's rant about the Boyzone star Stephen Gately is a gratuitous piece of gay-bashing.

01/10/09

In Force

Rugby legend cops charity cheque

Within kicking distance of the posts at Twickenham, England rugby legend Rob Andrew receives a cheque for £5,000 on behalf of the charity Cardiac Risk in the Young (CRY) from Det. Insp. Steve Jackson of City of London Police. 

01/10/09

The Guardian

Every parent's nightmare

We now know that the cervical cancer jab did not directly cause the death of 14-year-old Natalie Morton.  But parents will still worry. 

28/09/09 BBC website Sister's plinth focus on hearts
A woman who lost her 21-year-old brother to a heart condition is taking an awareness message to the fourth plinth in London's Trafalgar Square.
07/09/09 Badminton England website Young Athletes' Heart Concerns
According to the Cardiac Risk in the Young website, an estimated 12 people under 35 die from undiagnosed heart conditions each week. The term SDS encompasses a multitude of problems that can affect the hearts of young people. The most common abnormal heart rhythm is atrial fibrillation which causes an irregular heartbeat. 

01/09/09

Runner's World

For absent friends

"When my best friend Ralph Murwill did the Robin Hood Half last year, he was fit and healthy.  Ralph crossed the finish line in 1:51 - and died immediately afterwards. 

18/08/09

Daily Mail

Every week, 12 fit and healthy youngsters like Adam suddenly collapse and die.  So how can we save them?

Two days into their family holiday in Cyprus, Jed and Julie Donnelly were really starting to relax.  As they lay in the sun, their 17-year-old son Adam was playing volleyball with friends in the shallow end of the pool. 

06/08/09 ReallyRich.com Sudden Cardiac Death at 16 (video)
As part of our series on Inspirational Women, ReallyRich.com looks at how Mother of two, Sue Williams had to come to terms with suddenly losing her healthy teenage son David.
31/07/09 ePolitix website Alison Cox: Cardiac Risk in the Young
ePolitix.com speaks to Alison Cox MBE, founder and chief executive of Cardiac Risk in the Young (CRY), about the organisation and its screening programme.
02/07/09 ITV.com Wimbledon dream
James Doherty, 14, was a county tennis champion and one of Britain's most promising young players. But his dreams were shattered last September after he suffered a heart attack and collapsed on the court and stopped breathing for 11 minutes.
01/07/09 Evening Standard Wimbledon dream comes true for tennis hopeful who 'died' on court
A teenage tennis player who “died” for 11 minutes after collapsing during a match is to fulfil his dream of walking out onto Wimbledon's Centre Court.  James Doherty, 14, stopped breathing and his lips turned blue after a heart attack at the Hazelwood Tennis Academy in Enfield. Doctors believed he had little chance of surviving.
30/06/09 BBC website Heart tour 'saves 13 lives'
Thirteen young people have been detected with serious heart defects during a charity screening tour.
30/06/09 BBC website Testing for heart abnormalities
Paul Austin, 22, went along to get tested by cardiologist Dr Michael Papadakis.

23/06/09

The Daily Express

Screen hearts to save young lives

Daniel Young had just scored for his football team when he collapsed on the pitch.  Doctors later told his family that, due to an undiagnosed heart condition, the super-fit 16-year-old was probably dead before he hit the ground. 

31/05/09

Sunday Telegraph

How to reduce the risk of heart disease

(An independent supplement from Infocus Media)

Heart disease has long been known as the 'silent killer.'  Professor Peter Weissberg, Medical Director of the British Heart Foundation, says this holds true today. 

28/05/09

The Sun

Screen saver for hearts

A new campaign, launched this month by Little Britain comic David Walliams, hopes to reduce the number of preventable deaths by screening hearts of young people across the UK. 

27/04/09

The Daily Telegraph

Generous runners show they are are the best of British

The Great British public rose magnificently to the occasion of yesterday's Flora London Marathon.

24/04/09

Evening Standard

Richards mauls the Lions for overlooking Harlequin pair

Simon Halliday, the ex-England, Bath and Quins centre, is aiming to raise £10,000 for the CRY charity by completing the London Marathon. 

14/04/09

Evening Standard

Inspiring tales of the long-distance runners

It's the final push, as dedicated runners gear up to take on the Flora London Marathon a week on Sunday.  Jennifer Livesey, is running for CRY, in memory of her boyfriend Simon. 

06/04/09 BBC website Clinic for younger heart victims
A screening clinic has been launched to reduce the number of young people who suffer cardiac arrests.  The clinic, set up by charity Cardiac Risk in the Young (CRY), was opened at Liverpool John Moores University (LJMU) by Culture Secretary Andy Burnham.

01/04/09

Rugby World

Fitting tribute (letter of the month)

"I'd like to thank the rugby community as well as a wider group of people for their immense support and fund-raising activities following the unexpected death of my brother, Simon McNamara, from SADS last July, aged 25."

01/03/09

In Force

Force Stars to shine at awards

Forge the BAFTAS and the Oscars...the most important awards night of the year occurs on Saturday, June 20, when the stars of this force will be treading the red carpet at this year's City of London Police Awards and Charity Dinner Dance. 

22/01/09

Cycling Weekly

Your heart through the ages

John Ibbotson was a professional cyclist who died at the age of 27 due to a heart abnormality that showed no previous symptoms.  Cardiac screening could have detected it and when his family set up a fund to support young cyclists wanting to follow in Ibbotson's footsteps, they insisted cardiac screening be part of the process. 

11/11/08

BBC website

Sudden noises danger for sisters

When Chloe and Evie Church wake for school, they cannot use an alarm clock like other children.  The sisters, aged 11 and nine, have a syndrome that means a loud noise or a sudden shock could be dangerous or even fatal.

13/10/08 BBC website Life without my noisy boy
A year ago, Claire Prosser's teenage son died suddenly of an undiagnosed heart condition. Here, she explains what helps her cope - and what not to say to a grieving parent.

13/10/08

BBC Radio 4

Life After Tom

Charting Claire Prosser's first year without her teenage son, Tom, who died suddenly from an undiagnosed heart condition, and exploring the process of rebuilding after the unimaginable has happened.

13/10/08

Now

'She was my world.  We hugged, she kissed me...48 minutes later she was dead'

When James Brown, 32, kissed his wife Katrina, 30, that morning, he had no idea it would be their last goodbye.

02/10/08

Cycling Weekly

Get the knowledge

If you are interested in finding out more about sports nutrition and fitness testing to boost your winter training, Fit-For coaching may have just the thing for you. 

02/10/08

BBC website

Sudden Death Syndrome

Every single week, 15 young people from all walks of life die from the condition known as Sudden Death Syndrome. Now research done in the Midlands has found a new way of diagnosing people at risk so they can get treatment before tragedy strikes

01/10/08

BBC Television

Inside Out - BBC East Midlands (Video - 59MB)

This television programme looks at the issue of young sudden cardiac death in the UK.  CRY supporter Andrew Gadsby talks about the loss of his son Matt, and the programme also features contributions from CRY's Honorary President Sir Ian Botham and CRY Research Fellow Dr Carey Edwards.

01/10/08 BBC website Inside Out (BBC East Midlands) - Sudden Cardiac Death
Eight young people a week are estimated to die from heart failure in England. Dr Sanjay Sharma, a consultant cardiologist from the charity Cardiac Risk in the Young, answers questions about sudden cardiac death in the young.

29/09/08

British Medical Journal

Preparticipation screening for cardiovascular abnormalities in young competitive athletes

The cardiovascular benefits of regular physical exercise are well established. However, a small proportion of young (aged 35 years or under) athletes with unsuspected heart disease are at increased risk of exercise related sudden cardiac death. The majority of such deaths are attributable to cardiac anomalies, most of which can be identified during life.  more

27/09/08

Cycling Weekly

Cardiac Risk in the Young

In October 2005 John Ibbotson died suddenly at the age of 27.  The cause of his death was a heart abnormality that simply caused it to stop beating. 

14/08/08

The Glasgow Herald

Racing to stop a silent killer

A screening programme has been set up in a bid to prevent fatal heart attacks in young athletes. 

09/08/08

The Daily Express

Family live with the fear of death at any moment

Four members of the same family are ticking time bombs.  Rob Griffiths, 44, and three of his children - Rhys, 20, Rhiann, five, and Nelly, two - all suffer from Long QT Syndrome, which can cause the heart to stop suddenly. 

08/08/08

The Sun

My tots defy death

Dad Rob Griffiths hugs his little girls - who like him have a genetic condition that can spell sudden death. 

16/07/08

Evening Standard

March for heart victims

Hundreds of people will march along the banks of the Thames this weekend in memory of children and teenagers who have died from undiagnosed heart conditions. 

03/07/08

BBC News website

Sporting 'heart screening' call

Screening sportsmen for signs of hidden heart conditions could save lives, a study has concluded.  Each year in the UK, hundreds of apparently fit people suffer 'sudden cardiac death'.

31/05/08

The Sun

Son's sad legacy (dad has same rare disease that killed his lad)

A dad whose talented footballer son died from a rare disease has been told he has the same condition.  Roger Maddams, 47, could have a heart attack at any moment due to Sudden Unexpected Death Syndrome - which killed son Jack, 17, in his sleep. 

24/05/08

BBC website

(Video Nation)

Cardiac Risk (Video)

Mark Fox threw himself into health charity work after his twin sister died suddenly of a heart condition when she was 13 years old. He's made a film about the affect it's all had on him.

08/05/08

Irish Football Association website

Evans backs cardiac screening of young players

The Northern Ireland U19 girls and U17 boys have had ECGs (electrocardiograms) carried out by the CRY (Cardiac Risk in the Young) Screening Service at the University of Ulster, Jordanstown. Northern Ireland international, Jonny Evans has praised the Association’s Child Welfare Department for initiating the testing of the young players.

April 2008

The Bulletin of the Royal College of Pathologists

Sudden cardiac death in the young and helping bereaved families

Dr Mary Sheppard has been working as a specialist cardiac pathologist for the past 12 years at the Royal Brompton Hospital.  Many people think cardiac pathology is boring.  However, there is a personal and moving aspect to the job, which Dr Sheppard shares with us here. 

19/03/08

REM.fm (radio)

Interview with Dr Sanjay Sharma (Audio Clip)

Dr Sanjay Sharma talks to REM (Radio Europe Mediterranean) about young sudden cardiac death and his work with CRY.

13/03/08

TheFA.com

FA back CRY scheme

The FA, the PFA, the Football Foundation and charity Cardiac Risk in the Young (CRY), recently launched a joint initiative which aims to raise awareness of sudden cardiac death in the young.

10/03/08

BBC News website

'My fight to find out why Adam died'

Adam Payne was just eight years old when he collapsed during a football match and died.  For months nobody was able to tell his family why it had happened, but doctors said they suspected epilepsy to be the cause of death.

10/03/08

BBC News website

Fast-track lab for sudden deaths

A new national fast-track laboratory is aiming to offer definitive explanations of sudden cardiac deaths in people under the age of 35 within a few weeks.

04/03/08

The Daily Mail

No one knew about Hannah's heart problem until it killed her.  Now a new test could save many other young lives

Seven-year-old Hannah Turberville had just enjoyed a fantastic skiing holiday in the French Alps. On the last night, after a family meal out, Katy, 39 heard a strange sound from the children's room and went to investigate.  

February 2008

BBC Southern Counties Radio

Interviews with Alison Cox and Vanessa Tardif (Audio clips)

CRY Chief Executive Alison Cox and CRY Supporter Vanessa Tardif were interviewed about young sudden cardiac death on BBC Southern Counties radio (click on names for audio clips).

24/01/08

Cycling Weekly

Triumph over tragedy

In May last year we lost our son to an undiagnosed heart condition.  Charlie was an extremely healthy eight-year-old who collapsed whilst playing rounders at school. 

03/01/08

Cycling Weekly

Cardiac Screening

In October 2005, John Ibbotson died suddenly at the age of 27.  He was a talented all-rounder who turned pro at 20 and raced in Belgium and Italy before finding his true metier as a coach.  The cause of his death was a heart abnormality that simply caused it to stop beating. 

31/12/07

The Independent

Athletes warned to watch for heart symptoms after footballer's death

Young athletes have been warned not to ignore the symptoms of heart problems or head injuries after the death of Phil O'Donnell, one of Scotland's best-known professional footballers. 

30/12/07 BBC News website

One woman's mission of the heart

Alison Cox started Cardiac Risk in the Young (CRY) in 1995 and has expressed her sympathy for Mr O'Donnell's family, including his wife and four children.

21/12/07

The Daily Mirror

My heart's racing, Mum....the next morning he was dead

Sue Williams, 51, wasn't too worried when, one night before Christmas, her super-fit 16-year-old said his heart was beating too fasts.  How could she know he would never wake up?

01/12/07

The Sun

My Tom's death at just 14 was like tsunami of the soul

Today should have been my son's 15th birthday.  Instead I am writing about life after Tom.  Tom died in his sleep in October this year of an undiagnosed, heart-related condition. 

27/11/07 BBC News website

Facing life after losing your son

Today should have been my son's 15th birthday. Instead I am writing about life after Tom.  Tom died in his sleep in October this year of an undiagnosed heart-related condition.  He had been fit, active, healthy, doing well at school, bright and happy. We were not, in any way, prepared.

21/11/07

The Daily Mirror

I found my darling daughter dead on my birthday

Hilary Simpson was sure daughter Sarah was off work sick until she opened the bathroom door.  Hilary explains how her terrible discovering has left the family in shock. 

08/10/07

The Wright Stuff (Channel 5)

Young Widows

Channel 5 discussion show 'The Wright Stuff' featured the issue of young widows and asked: what’s it like to have the love of your life taken away when you’re still in your twenties or thirties? Is the experience different if you’ve had time to prepare for your partner’s death compared to it happening quite suddenly? Is it worse to lose your other half at a young age rather than when you’re both older? Do men and women cope differently?  CRY supporter James Brown appeared on the show to talk about the loss of his wife Katrina.

October 2007

Cosmopolitan

It was just an ordinary day.....

Laura Manni was looking forward to sharing her future with Greg, unaware of the heartache ahead. 

September 2007

British Journal of Cardiac Nursing

Silent at Heart: using art to raise awareness

The 4th September marks the opening of an exhibition which aims to raise awareness of cardiac risk in the young.  It includes artwork from professional artists as well as a number of talented A-level students.

September 2007 New Woman

'She was my wife, my life......then she was gone'

Think back to the quick hug you and your loved one had this morning.  Now imagine it was your last.  That's the image James Brown, 31, plays over in his mind every day.

Autumn 2007

The London & UK Date Book

CRY Reception

Friends and supporters of CRY, along with numerous Members of Parliament, gathered at the House of Commons in the Terrace Marquee on 11th July for a reception. 

30/08/07 The Independent

He was sent to a specialist and told: 'Hang up your boots or you could die' (Andy Scott)

Antonio Puerta was buried yesterday, in Seville, the city where he lived, loved and died while playing football.  As he was interred, the family of Clive Clarke was at Nottingham's Queens Medical Centre, giving thanks for escaping a similar tragedy. 

August 2007

Great North Run

Members Update

Running for a Reason

'My name is Michele Wilson, I am 22 years old and I am running the BUPA Great North Run this year and raising money for the charity CRY. 

25/07/07

Daily Telegraph

Screen tests for rising stars will help to save young lives

Howard English was the first person of my age that I knew to die from a heart attack.  It's a long time ago now, but the images of bewilderment among everyone on the pitch and the frantic calling for an ambulance are still etched on our minds.  (John Inverdale writes)

24/07/07 Daily Express

Gone in a heartbeat

Bradley Farrow discovered he had Brugada syndrome when he apparently fainted while working at his weekend job in a security company at the age of 16. 

12/07/07

ITV London Today

David Walliams at the CRY Parliamentary Reception (Video Clip)

CRY Patron David Walliams supports the 2007 CRY Parliamentary Reception at Westminster.

24/06/07 The London Metro

Philips Advertorials

CRY is working alongside Philips to raise awareness of Sudden Adult Death Syndrome. 

June 07 Candis

Tragic inheritance

Nobody knew that chartered accountant Colin Blundell, 25, had a heart condition before he blacked out while climbing in Snowdonia last November, falling 30m (100 ft) and dying of head injuries. 

June 07 Runner's World

Heart of the matter

After losing his wife to a previously undetected heart problem, James Brown runs to raise awareness of this rare but high-profile killer of young people. 

19/05/07 The Guardian

Under the microscope

"Because we don't have direct patient access we are considered the backroom boys," says Dr Mary Sheppard, while sipping coffee in the royal Brompton Hospital cafe. 

02/05/07 Daily Mirror

I died seven times ..... and that was just the start of my problems

When Scott Fleming, 29, went to play football one Sunday, he was expecting a gentle run around the pitch.  Instead he died.  Scott, from Blackburn, West Lothian, tells his story.

24/04/07 Daily Mirror

Riddle of dead lad

Schoolboy Matthew Hughes kissed his mum goodnight - and was found dead in bed next morning from a mystery heart problem.

10/04/07 Bella

How could my super-fit husband just die?

After a whirlwind romance, Sarah Gadsby looked forward to her new life as a footballer's wife.  But she could never have imagined the heartache that would follow. 

05/03/07 The Times

Striking at the heart of the young

A year and a half before her death Nina Jelen had been taken to A&E at the Walton Centre in Liverpool, after suffering an unexplained seizure in her sleep. 

01/02/07 The Independent

A commotion in the ocean

Heard the one about the comedian with no experience of open-water swimming taking on the English Channel, known throughout the world as the blue riband event for the sport? 

Christmas 2006 ITV Tyne Tees

John and Diane Ber on ITV Tyne Tees News (Video Clip)

The parents of Kasia Ber reflect on the loss of their daughter, and talk of their determination to help CRY prevent more tragic deaths occurring.

02/12/06 Daily Express Girl, 17, killed by the sudden noise of her mobile phone

A teenager was literally scared to death by the sudden ringing of her mobile telephone, an inquest was told yesterday.  It rang with an alarm call at 7am and Kasia Ber, 17, was so startled it triggered heart failure.  Unknown to anyone, she was suffering from a coronary condition in which attacks can be triggered by a sudden shock or an unexpected loud noise. 

02/12/06 BBC Online

Phone 'shocked' teenager to death

The parents of Kasia Ber are calling for more research into sudden death among young people as it is thought that a mobile phone ring may have sparked their daughter's death.

December 2006 ITV Tyne Tees

John and Diane Ber talk to ITV Tyne Tees News (Video Clip)

The parents of Kasia Ber talk about their loss, and CRY's campaign.  Dari Taylor MP criticises GPs who dismiss possible cardiac symptoms in young people as just stress.

09/11/06 Four Four Two

Bill Shankly's words about football...........

In September, Hinckley United's Matt Gadsby collapsed unchallenged whilst playing against Harrogate Town in the Nationwide Conference North.  Despite paramedics trying to resuscitate him for over an hour, the 27-year-old didn't respond to treatment and died.  The defender's death shocked the sport and reminded everyone that football is just a game.  The incident also evoked memories of previous tragedies on the pitch.

08/08/06 Daily Express

The day my heart stopped

I tried to ask what was happening, but the words would not come out.  I had woken up in a hospital bed, with my face covered by an oxygen mask, with my brother and sister, both in tears, sitting next to my bed.  I began to panic.  Had I had an asthma attack? 

01/08/06 Daily Mirror

Born out of grief

At the age of just 30, my good-looking, funny husband - the man I'd met at university 10 years before and thought of as my soul mate - had just suddenly died.  I had no time to say goodbye or tell him how much I loved him. 

16/07/06 BBC Online

Call for heart checks on babies

All babies should have an ECG heart scan in their first month of life to check for life-threatening problems, say Italian cardiologists.  Steve Cox, deputy chief executive of Cardiac Risk in the Young (CRY) said: "This new study is a very encouraging step in our fight to prevent eight needless young deaths every week."

29/04/06 The Sun

Killed by a clock

Yesterday Cheshire coroner Nicholas Rheinberg ruled Lisa died of heart failure due to the disorder.  Four relatives were later successfully treated for the illness.  

29/04/06 Daily Telegraph

Shock of alarm clock ringing killed nurse

A paediatric nurse died from heart failure brought on by the shock of hearing her alarm clock ringing, an inquest was

29/04/06 Daily Mirror Nurse's death by a clock

A nurse died from heart failure when her alarm clock went off at 6am. Lisa Browne, 27, had a heart disorder and the shock caused it to stop.

29/04/06 Daily Mail

Nurse was killed by shock of her ringing alarm clock

A nurse died from heart failure brought on by the shock of hearing her alarm clock ring, an inquest heard yesterday. Lisa Browne, 27, had an undiagnosed disorder which stopped her heart beating after the sudden shock of her 6am alarm call. Experts discovered last year that the paediatric nurse, who died in 1998, had the rare disorder Long QT Syndrome.

April 2006 Runner's World

Costume drama

Fancy-dress runners in training are like baby pigeons: you know they exist but you never see them.  Then a big race such as the Flora London Marathon arrives and you find yourself lining up at the start next to Batman, a hotdog, Minnie Mouse and a giant banana. 

24/03/06 The Daily Telegraph

Callard's feat

Jon Callard proved the quickest of Simon Halliday's rugby clan who ran the Bath half-marathon last Sunday to raise more than £130,000 for CRY, the charity helping research into cardiac deaths among the young.

22/03/06 The Daily Telegraph

Penguin moved too fast for me

A huge amount of money was raised for CRY, a charity researching cardiac problems in young people, and to see the mammoth Paul Ackford storm home in under two hours was one of the athletic sights of the year.

18/03/06 Financial Times

Sad end to physical exertion

"We've run tests at Eton, Millfield and Worcester College bi-annually and we've picked up four of five problems that have been rectified, which is four of five lives saved, as far as I'm concerned." 

16/03/06 Daily Telegraph

Halliday's heroes

The former Bath and England centre, who could yet emerge as a powerful figure in a new management structure for the national team, has put together an impressive list of former internationals to run the Bath half-marathon and raise money for Cardiac Risk in the Young (CRY). 

16/03/06 The Sun

Zaps from heart monitor save my life

Mike, 23, came within seconds of being one of the 70,000 victims of Sudden Cardiac Death (SCD) every year in Britain.  SCD happens when the heart's timing system goes wrong.  It is more common in older people but strikes all ages. 

08/03/06 Daily Telegraph

King of the props Leonard is up for hare and tortoise race

CRY - Cardiac Risk in the Young - is an organisation close to many of the players' hearts, after a mutual friend, Howard English, died on the rugby field at the age of 32, and then amazingly his son, Sebastian, died 11 years later at the age of 15, from the same heart defect. 

06/03/06 Woman magazine

We never thought of making a will

The grief came after his cremation.  I filled his side of the bed will pillows, but I couldn't sleep.  I'd clutch his jumper, which I refused to wash, and inhale his scent.  It seems such a waste.  We had all our plans and dreams before us.  We were going to grow old together, but now it's all gone.  Life's so empty.

02/03/06 The Guardian

Campaigners seek action to prevent sudden heart deaths among young

CRY research yesterday suggested that of 36 PCTs questioned only one had so far set up a strategy to deal with the problem.  The Department of Health stressed trusts had been given five years to complete the task and many were making progress but Mrs Cox said the deaths were too regular not to prioritise. 

01/03/06 Now magazine Goodbye my love

Becky Feltham, 27, had found the man of her dreams - but one night he went to bed and never woke up.  Later, she discovered that he was a victim of the rare Sudden Arrhythmic Death Syndrome.

01/03/06 Press Release Early findings show Government framework to reduce sudden cardiac deaths in young people is ineffective

Cardiac Risk in the Young (CRY) publishes the results of a new survey which indicates that one year on since the introduction of Chapter 8: Arrhythmias and Sudden Cardiac Death of the National Service Framework for Coronary Heart Disease, a staggering 97% of all Primary Care Trusts (PCTs) interviewed said they had failed to develop a strategy for implementing any of the new Chapter’s specific guidelines for children and young people.

23/02/06 The Sun Julie Mills, 28

By the time she reached the cardiac unit her heart had already stopped.  The surgeon woke all his operating team in the middle of the night to help him to fit the artificial heart, allowing Julie's real heart to recover. 

21/12/05 Evening Standard

Halliday defies pain to raise charity cash

“I will be running the marathon in Sebastian’s name for Cardiac Risk in the Young (CRY).  It’s a charity which provides specialist screening services and counselling for bereaved families."

December 2005 Essentials

I had only 20 minutes to live

In fact, I’ve achieved so much over the past few months.  I’ve got a new job; have moved into a flat with my friend Sam, and I’m involved in amateur dramatics.  I’ve even taken part in a couple of shows in the West End. 

27/11/05 Sunday magazine

Killed...by an alarm clock

Doreen Harley, 57, of Connah’s Quay, Flintshire, got in touch with CRY (Cardiac Risk in the Young), a national support group for families of sudden-death victims of heart problems.  She was referred to a specialist cardiac screening unit in London. 

19/11/05 The Weekly News

Deadly 'timebomb' killed my friend and then his son

However, in the 10th anniversary year of the national heart charity – Cardiac Risk in the Young (CRY) – who work to raise awareness of the problem, I’m very proud to have been asked to join the likes of Steve Redgrave, Rob Andrew and Ian Botham in becoming a patron. 

20/07/05 Evening Standard

Great Scott's gesture

Andy Scott will donate 20 per cent of the proceeds from the pre-season friendly to the Cardiac Risk in the Young charity (CRY).

15/07/05 Football First

Scott's relieved just to be alive

Scott will soon play in an Orient shirt for the final time as the club play two benefit matches to raise money for his family and also for the charity CRY, which aims to raise awareness of cardiac problems in the young.

04/07/05 Evening Standard

I say all kids should have their hearts checked before they play sport

I don’t profess to know as much as the doctors but I do know these tragedies could be prevented – that’s where the frustration creeps in and that’s why I will keep beating the drum for CRY until people stand up and take notice. 

12/06/05 Sunday Express

The grieving family who live in fear that even a phone's ring could bring instant death

Heartbroken Margaret Banks has been warned to throw away her alarm clock after her grandson was killed by the ringing of his mobile phone.  Ryan Hulme, 19, collapsed and died from shock when he got a call as he used his PlayStation at home. 

08/06/05 ITV - This Morning

Sudden Death Syndrome

CRY supporter Rob Thorne appeared on 'This Morning' to talk about sudden death syndrome, the loss of his son, and the CRY postcard campaign.

31/05/05 Daily Express

Death by alarm clock

Lisa Jane Browne, 27, was found dead in bed after her alarm went off at 6am.  Doctors believe the shock of the loud bell sent Lisa’s heart into an abnormal rhythm as a result of rare hear disorder Long Q-T Syndrome.

17/05/05 The Guardian

'Why did he die?'

Fred Pearce's son Joe died suddenly at the age of 19.  Fred talks about his loss, and his efforts to find out what caused Joe's death.

02/05/05 Daily Telegraph

'Grief like this can drive you insane'

When she arrived, Howard was still connected to the resuscitation equipment, but its use had been futile from the start.  He had died instantaneously on the field – a 32-year-old, super fit sportsman in his prime whose heart had inexplicably stopped. 

17/04/05 News of the World

Doctors have told me if I kick another football I'll die

Andy Scott knows he should be dead – only a sixth sense prevented him from suffering a fatal heart attack on the pitch.  He has now been forced to quit football after doctors warned any physical exercise could kill him.

31/03/05 RFU Press Release

RFU support cardiac screening for young players

RFU Performance Director, Chris Spice said “The work undertaken by CRY is fantastic. We all want our young players to be in the best possible shape and the CRY awareness campaign is a very effective one."

02/02/05 BBC News Online

Call to check athletes' hearts

European heart experts are calling for all young athletes to be screened for potentially fatal heart problems before they compete.

02/02/05 English Institute of Sport

IOC adopt heart screening recommendations

Dr Greg Whyte (CRY Chairman and Director of Science and Research at the English Institute of Sport) welcomes the IOC Medical Commission's adoption of recommendations that athletes be screened for heart problems prior to competing.

28/01/05 BBC News Online

Mother's call for heart screening

A woman from north Wales whose daughter died of a rare heart condition is helping to launch a campaign to raise awareness of sudden cardiac deaths.

07/01/05 BBC News Online

Drive to cut young heart deaths

The issue of young people dying from undetected heart conditions is highlighted in a campaign to be launched in Wales on Friday.

04/12/04 New Scientist

The killer with no name

Now, researchers are calling for these unexplained deaths to be recognised and named as Sudden Adult Death Syndrome, or SADS, and officially recorded as such by governments and the World Health Organisation. 

01/12/04 Woman & Home magazine

Women who put thought into action

We have 12 members of staff, a two-storey office and I now know that Steve’s case was not one in a million.  In fact, eight apparently fit and healthy young people are dying every week from heart conditions they do not know they have. 

09/11/04 Best magazine

A deadly gene killed my wife - could my two year old son be next?

Since his birth two hears ago, I’ve been living in fear that I’ll lose him in the same tragic way that I lost his mum Chantel.  And I don’t know how I’ll cope if that happens.

31/08/04 Daily Express

Killer that claims four young lives each week

Caroline Gard has endured every parent’s worst fear.  In 1997, when her son Andy was just 17, he died suddenly and without warning, alone in his bedroom.  She now campaigns for cardiac screening to be available to all youngsters.

Summer 2004 pH7 Parliamentary Health Magazine

A new chapter

Dari Taylor MP welcomes the government’s decision to include recommendations from her Cardiac Risk in the Young private member’s bill kin the National Service Framework

28/07/04 Press Release

CRY Chairman and Consultant nominated for Screening Bill working group

CRY Chairman Dr Greg Whyte and CRY's consultant Dr Sanjay Sharma are the first nominations for the working group (Sudden Death in the Young / Screening) to be chaired by Professor Bill McKenna, world expert on young sudden cardiac death.

18/07/04 BBC News Online A matter of young life and death

It is hard to imagine how a teenager who is healthy and lively one day can suddenly drop dead the next for no apparent reason. Such is the tragedy of sudden cardiac death in the young. 

13/07/04 Bella magazine

Save your child from sudden death

Schoolgirl Ruth Salisbury was watching a video with friends when she complained of feeling dizzy.  Seconds later she was dead – the victim of a little-known phenomenon called Sudden Death Syndrome. 

05/07/04 Press Release 
Wimbledon Tennis
Game, set and match to local girl, Laura
Laura John (14) from Southampton yesterday took on the prestigious role as official ‘coin tosser’ for the Men’s Singles Final at the Wimbledon Tennis Championships – representing the national charity, Cardiac Risk in the Young (CRY).
13/06/04 The Observer Parents call for action on sudden death
There are effective treatments to prevent these deaths but there is no targeted provision in the healthcare system to manage this.  Families with these problems are not being systematically referred to specialist or properly evaluated.
08/06/04 Best magazine Our whole family was living with a timebomb
Family members started to talk about how many people had suffered from heart conditions, and then I realised there was a massive family link with ARVC that couldn’t be ignored.
17/05/04 Daily Mail An hour later she was dead
A smiling girl posed beside her birthday cake at her 18th party.  An hour later she collapsed and died dancing with her friends. 
26/04/04 Woman My daughter died as I watched her swim
She got into the pool and the next minute I saw them dragging her out of the water.  I ran to the poolside and someone said she was fitting.  As soon as I saw her, I could see she was dying – she’d stopped breathing, so I tried to give her mouth-to-mouth resuscitation.  All her friends were watching – it was horrific.
22/04/04 Take a Break End of a miracle
“They don’t put tubes in people who have just fainted,” I said.  “Please, what’s going on?”
By now he was sobbing. “I don’t know,” he said.
17/04/04 Cycling Weekly Unexpected Tragedies
Sports clubs and schools have to take responsibility for their students fitness to participate, as there is currently a wide variation in the way that GPs treat symptoms of cardiac problems in young people.
12/03/04 Department of Health Press Release
press release
Department of Health Press Release
"I have seen the tragedy of sudden death first hand, when the 22 year old son of a good friend collapsed suddenly and died...Today's announcement will help prevent such deaths and I am delighted that the Government has taken this terrible condition seriously." Dari Taylor MP.
12/03/04 Cardiac Risk in the Young ‘Screening’ Bill - Hansard
Cardiac Risk in the Young ‘Screening’ Bill - Hansard
“I look forward to the opportunity the government is promising us - being able to influence change and save young lives. It is absolutely crucial that we keep the pressure up to maintain the focus on cardiac risk in young people. This is the basis of CRY’s campaign.” Alison Cox, Founder & Chief Executive.
12/03/04 Parliamentary Press Release
press release
Cardiac Risk in the Young heart screening bill
Heart campaigners have thrown their support behind a new Private Member's Bill calling for legislation to grant effective, automatic screening on the NHS for all families at high risk of sudden cardiac death syndrome.
11/03/04 BBC News

NHS 'must test for sudden death'

European heart experts are calling for all young athletes to be screened for potentially fatal heart problems before they compete.

04/03/04 Daily Mail Couple's agony as a third daughter falls victim to mystery sudden death
Pathologist said the hereditary condition could also have been responsible of the deaths of their two other daughters.  Tests are now being carried out on the rest of the family -  It is only detectable by Electrocardiogram (ECG) tests when people are alive.
07/01/04 Parliamentary Press Release
press release
European success in campaign to recognise "Sudden Death Syndrome" 
'Mission accomplished' Our campaign linking with MEP's Linda McAvan and Catherine Stihler and the World Health Organisation (WHO) to get an international code for sudden death syndrome conditions has been achieved.
01/01/04 Lanzarote Gazette When death is hidden
The paramedics could not save the young holidaymaker.  Their efforts to bring him back to life continued for over half an hour.  But failure to revive him even left the ambulance crew in tears.  
01/12/03 Health Which Special investigation: sudden death - unexpected and unexplained
Colin Meek looks beyond the dramatic headlines to investigate what's known about sudden unexpected and unexplained deaths
01/12/03 Health Which Blackout fear like living Russian roulette
The post mortem couldn’t find a cause of death but no inquest was held.  A few years before Pauline had blacked out during a swimming lesson.  The family were told the blackout was nothing to worry about.
01/11/03 Pharmacy Magazine Sudden Adult Death Syndrome
Research published in the Lancet last year suggested that as many as eight lives were being lost each week in the UK to “Sudden Death Syndrome” (SDS), an umbrella term used for the many different causes of cardiac arrest in young people.
27/10/03 The Times Survival of the fittest
Tony Blair's heart problems are not the only ones to have made it on to the political agenda in recent weeks. Two Labour MEPs have launched a campaign in the European Parliament to call on the World Health Organisation  to recognise and officially name sudden death syndrome.
10/10/03 British Medical Journal MEPs lead campaign to get sudden unexplained deaths recognised as a syndrome
Deaths that remain unexplained after a postmortem examination are registered and coded as due to causes that may be vague or incorrect, they add, making it difficult to construct an accurate picture of the real scale of the problem.
07/10/03 Parliamentary Press Release
press release
Campaign to recognise "Sudden Death Syndrome" goes to Europe
On Wednesday, Labour MEPs Linda McAvan and Catherine Stihler are launching a new pan European campaign in the European Parliament in Brussels calling on the World Health Organisation to officially recognise and name the syndrome. 
30/09/03 Daily Mail I was awake while my pacemaker was fitted
I was informed that there was no way of knowing if my heart would suddenly stop again.  Worse still, my resting heartbeat was just 38 beats per minute – the average is 70
27/09/03 The Weekly News My own story
Excitement, exercise and even the shock of being wakened by an alarm clock can cause her heart to stop beating.  Danii talks about living with an implanted defibrillator to control Long QT.
11/09/03 Chat They won't be the last
We were talking and she collapsed.  It was as if she just fell asleep. I heard the doctor’s words in my head.  These won’t be the last deaths…  
20/08/03 Now! I was so close to dying and didn't realise it
Lucy, a consultant for celebrity agency Max Clifford PR, thought her dizzy spells over the years were caused by her hectic lifestyle, but timely tests showed she had a potentially fatal heart defect that could have killed her at any moment.
01/08/03 Cosmopolitan "I've died five times"
The next thing I remember is lying on the floor with a teaching standing over me.  He looked scared, and I could hear my mates crying. Everyone thought I was dead.
21/07/03 The Guardian Why Foe was the latest in a long line of needless fatalities
Post-mortem examinations have revealed that Marc-Vivien Foé was the latest victim of the condition that is responsible for a growing death toll of sporting talent. 
15/07/03 Vogue Is the gym killing you?
The problem is that cardiovascular screening is not routinely available.  Even our Olympic athletes do not get it as part of their pre-competition work-up.
01/07/03 The Guardian The hidden timebomb
The sudden death of footballer Marc-Vivien Foé last week was no freak one-off. Thousands of apparently young healthy adults die unexpectedly every year.
27/06/03 BBC NewsOnline Sudden heart death
Many cases may be caused by heart arrhythmias - when the heartbeat races without warning, this can cause fainting - or in very rare cases - collapse and death even in very young adults. 
02/05/03 BHF
press release
BHF scientists Discover New Test for Sudden Adult Death, SADS
A new pan European study released today and funded by the BHF, has identified an abnormality in the heart that will help predict those people who may be at risk from so-called sudden adult death syndrome (SADS). 
01/05/03 Medical Technology Bulletin Sudden Death Syndrome: The UK's hidden menace
Finding the cause of the heart problem is essential.  This is where medical technology steps in.
29/04/03 BHF
press release
Could remedies be making people victims of mystery heart killer?
The BHF is funding a project to discover whether ‘apparently healthy’ adults in could be at risk from potentially fatal heart arrhythmias after taking over the counter remedies for common complaints such as hay fever or indigestion
08/04/03 Daily Express My husbands death helped me save my daughters
When Julie John's apparently fit and healthy husband, Dave, inexplicably died at 32, she was determined to find out why
28/03/03 BHF
press release
BHF calls for research into Sudden Adult Death Syndrome. 
Leading charity asks if mystery sudden adult deaths could be just the ‘tip of the iceberg’.
01/03/03 Woman My baby's cry could kill me
The biggest danger is a sudden noise while the sufferer is asleep – this is the time when the heart rate is slowest and can be shocked the most
17/02/03 Woman's Own It's not just an old man's disease
The fact that heart conditions affect young people too needs to be advertised as much as possible as even my own friends have trouble believing me
01/01/03 Cricket World Cardiac screening should be mandatory
CRY would like to see the same procedures adopted in the UK as are in place in Italy where it is mandatory that representative athletes of all ages have annual heart checks
01/12/02 Readers Digest Screening hearts
The first screening  involved 289 teenagers between the ages of 15 and 18 and took place in Stornoway on the Isle of Lewis in Spring 2002
30/09/02 Woman She was only a mum for 10 weeks
The illness was passed down through the generations. Her mother died in her 20s, doctors put it down to epilepsy because no one knew about SADS at the time.
20/08/02 The Times Young at risk of sudden death
Health campaigners believe that elecrocardiogram testing of postpubescent children could help to prevent SDS. ECGs are painless, non-invasive and can detect up to 97 per cent of heart muscle disorders.
18/08/02 The Sunday Times Too young to die
"It can seem life-shattering when they are told the news, but prevention is far better than the alternative."
08/07/02 House of Commons 
press release
All Party Parliamentary Group for Cardiac Risk in the Young
MP Kevan Jones has been working with CRY over the last few months, to bring together interested parties in Westminster and form the group.
01/07/02 Take a Break Letter from the heart - My Big Brother
After your funeral I came across the application form you’d filled in for Big Brother. My eyes moistened. 
27/06/02 Hansard Cardiac Risk in the Young  - sudden death
Is the Leader of House aware that, every week, four to eight apparently fit and healthy young people die of undiagnosed heart problems in the UK?
08/06/02 The Weekly News Daughter's sudden death leads to teenage heart screening in Western Isles
Until the end of this month, the UK’s first ethically approved ECG testing pilot scheme will run in and around the Isle of Lewis.
15/05/02 Zest One by one, members of my family were dying and I feared I'd be next
16 of her family died young. Only when she suspected her own children might be at risk that she discovered they'd been victims of sudden death.
14/05/02 Daily Telegraph Struck Down Without Warning
Amanda Belger was a healthy and fit 21-year-old mother of two young children when, a year ago, she collapsed and died.
16/04/02 More Magazine Why did he have to die?
Ian turned and said: ‘Next time we go away, we’ll have a little person with us.’ It hurts so much to remember that as we never got to go as a family.
29/03/02 Daily Record Tragic heart death of our soccer son
Unlike athletes on the continent, Andy didn’t have access to regular heart tests and they put his occasional lack of endurance down to over-exertion.
11/02/02 BBC Health Watchdog Cardiomyopathy
Falklands veteran John Ellis and his daughter Faith were both fit and healthy until they suffered sudden health crises. 
26/01/02 Mirror Magazine Five of my family died before the age of 22
In the last 13 years Michelle Griffiths has gone to the funeral of two of her sisters, her two brothers and her niece.
02/01/02 Daily Mail Our family curse
Tracing three generations across the globe, the father of two noticed that too many of them – nearly a third – had died suddenly while young.
01/01/02 GMTV website Sudden Death Syndrome
   

Jamie's parents, Keith and Debbie, were unaware of the existence of Sudden Death Syndrome.  Had they known of the CRY campaign they believe they would have fought for extra tests, meaning Jamie might still be alive.

18/10/01 BBC News Island Teens to have heart screening
An exciting new project which could save the lives of young people is scheduled to begin on the Isle of Lewis.
28/08/01 The Times Death by overwork
It could be the most perfectly designed killing machine of our time. It is usually implicated but never convicted;
28/08/01 The Times Why we really don't like Mondays
If you are male, congratulations on making it back to work today. You survived the weekend days when chance of a heart attack is at its height.
04/08/01 Siemens UK Sporting success
The charity Cardiac Risk in the Young uses a portable Siemens scanner on the British paralympic swimming team.
01/08/01 Daily Express Coroner calls for change
Over a period of seven weeks none of the experts - including five consultants - identified the illness.  Her heart was never even checked.
25/07/01 Best Magazine He died in my arms
One moment Ellis Curran 28 was playing with his children, the next, without warning, he collapsed and died in his fiancée's arms.
08/07/01 Eye on Wales (BBC Radio Wales) SADS (transcript).
But SADS isn't seen as as a political priority and didn't even merit mention when the National Assembly's heart disease strategy was unveiled
21/06/01 Parliamentary Debate (Hansard) Heart Disease (young people)
There is a need to raise awareness among general practitioners, a need for greater awareness on the part of coroners. 
05/03/01 The Times Project to cut heart deaths
A pioneering project aims to screen 1,000 children in the Western Isles of Scotland to spot potentially fatal heart defects early.
07/02/01 House of Commons House of Commons Launch of The Medical Technology Group
MPs, Ministers and Peers who supported the event aimed at raising awareness of the positive impact of technology on people's lives 

03/01/01

The Sun

Brother’s death has saved me
Richard 16, collapsed at home from a massive heart attack but tests showed that an undetected defect was also present in brother Stephen, 19.

03/01/01

Daily Express

How our son’s death saved the life of his brother
Stephen recovered from surgery which fitted a small defibrillator to his chest with electrodes to control the illness allows him to lead a normal life

09/10/00

Radio 4 Live

Sudden Death Syndrome
Those affected usually have no warning that they suffer from a serious heart problem and often symptoms like dizziness and breathlessness
01/10/00 Runners World Sudden Impact
    CRY is campaigning for widespread screening of youngsters  It runs a mobile screening unit that offers subsidised rates to athletics clubs.
01/08/00 BBC NewsOnline Sudden Death Syndrome
BBC Health links to groups who offer support and counseling to families who have suffered sudden death.
21/02/99 The Sunday Times On the trail of the silent killer of the young
In July 1997, two days before his 18th birthday, Andrew arrived home from his summer job at a toyshop, went upstairs to his room and dropped dead.
16/02/99 Daily Mail Young heart attack - these young, healthy people all died with no warning
There is no need for people to panic. These deaths are not common, but they are happening. Parents need to be aware of the symptoms
14/02/99 The Sunday Mirror Sudden adult cot death
The simple heart monitoring test, which would cost the NHS £34 per person to carry out, could help save most of the 10,000 potential sufferers in Britain
27/01/98 Daily Express My Laura didn't have to die...a simple test could have saved her life
Laura was going to represent her country for the first time in April and she was so proud.  The day before her funeral her England colours arrived.

 

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