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Alyn and
Deeside’s MP Mark Tami and AM Carl Sargeant are backing a campaign to
raise awareness about sudden cardiac death in the young.
They joined Doreen Harley, the
regional representative for Cardiac Risk in the Young (CRY), to launch a
postcard campaign depicting victims of sudden cardiac death.
For each month of the
campaign, the faces on the postcards will change.
The CRY postcards will be sent
to MPs to lobby for their support in getting screening for high-risk
families.
One of those featured on the
launch postcard is Doreen’s eldest daughter, Lisa Jane Browne, who died in
January 1998, aged 27.
Cardiologists believe Lisa
died from Long QT Syndrome, an electrical abnormality of the heart which
cannot be detected after death. It appears Lisa died when startled by the
sudden noise of her alarm clock.
Since Lisa’s death, her family
have all been screened. Dad Terry, sister Rachel and nephew Jack have all
been diagnosed with Long QT Syndrome, nephew Adam is still awaiting DNA test
results to see if he too has the condition.
Doreen said: “If Lisa had been
offered an ECG test, it is more than likely that she would be here today.
CRY’s ultimate aim is to get an ECG offered to all teenagers around the age of
14.
“We get an MOT done on our
cards – why should we not be able to have our children tested?”
Mr Tami said: “CRY hopes the
impact of the cards will maintain the momentum set last year when the
Department of Health agreed to add a chapter to the National Service Framework
on Coronary Heart Disease, dedicated to deaths among young people. I am
determined to ensure as many MPs as possible back the CRY campaign.”
Mr Sargeant added: “It’s
acknowledged that many of the hundreds of sudden deaths which occur every year
in the UK could be prevented if simple cardiac screening was made more
accessible.”
If anyone can help with the
distribution of the postcards, call Doreen on 01244 821215.
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