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A north-east family who lost two children to a
rare form of sudden heart failure have welcomed an initiative designed to
save lives.
A new sudden cardiac death database is being
funded by the Department of Health as part of a drive to try to reduce the
death toll of a syndrome which claims the lives of 12 under-35s every week.
Kath Conroy, grandmother of Anne-Marie and Daniel
Readshaw, from Ferryhill, County Durham, two 13-year-olds who died within
two years of each other, said: "I am absolutely in favour of this.
This is very good news."
Last night, Mrs Conroy revealed that her family
recently suffered a third tragic loss from sudden cardiac death.
On September 26, her daughter-in-law, Katharine
Conroy, was found dead in her home in Devon.
Initial tests were unable to determine the cause
of death, but after an investigation by the country's leading expert in
sudden cardiac death, it was found that Mrs Conroy, the mother of three
young girls, had died from a rare, undetected heart defect.
"We can't believe it has happened again. It
just shows how much this database is needed," the grieving woman's
mother-in-law said.
Designed by pathologists and heart specialists,
the database is intended to help experts understand the causes of
inheritable conditions that can cause sudden cardiac death.
It is hoped that this will help doctors to
identify people at risk and help them get access to the services they need.
The setting up of such a database was strongly
welcomed by Stockton MP Dari Taylor, who has campaigned for years in support
of the charity CRY, Cardiac Risk in the Young.
"I am very pleased. This is a big step
forward. We need a better understanding of sudden cardiac death so we
can come up with more effective screening and treatment to prevent these
deaths," she said.
North Durham MP Kevan ones, who has also been
active in the campaign, said: "This is excellent news. One of the key
things is to build up the body of research and evidence around sudden
cardiac death syndrome."
Alison Cox, chief executive of CRY, said: "Every
person has the right to know why their child has died. This database
will not only help to understand the true incidence of these deaths, but in
the future will help families to at least know the name of the condition
that caused these sudden deaths."
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