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Moves to fund more research into cardiac
conditions in young people like Kevin Sayer, who died suddenly in his sleep
when he was just 18, have been welcomed by his family. Cash has been
put aside to allow coroners to refer cases like Kevin's to expert
cardiologists.
The family of a Norfolk teenager who died from a
heart problem has welcomed moves to spend more money on research into
cardiac conditions in young people.
The otherwise fit and healthy Kevin Sayer, an
18-year-old footballer, died suddenly in his sleep three years ago from a
condition known as cardiiomyoptahy.
His family knew nothing of the illness and at the
inquest coroner William Armstrong said many medical experts and coroners
knew nothing about heart conditions in young people and could therefore not
accurately administers a cause of death.
Now campaign group Cardiac Risk in the Young (CRY)
has announced that funding of £300,000 will be invested nationwide so
coroners can refer cases to expert cardiologists to look at the reasons
behind such deaths and give better answers to bereaved families.
Kevin's mum Evelyn, 63, of Bergh Apton, said: "Too
often symptoms are overlooked because there are not enough people who know
about cardiac problems in teenagers. We were lucky because our coroner
knew what he was talking about but in many cases a definite cause of death
is not given and therefore there is no way their deaths can be used to help
others.
"Kevin was a fit teenager and there were no
warning signs. People need to know what to look out for. I
welcome this funding and hope it helps to save lives."
Ten years ago, Caroline Gard from Frinton near
Ipswich lost her son, Andy just days before his 18th birthday from a heart
attack and since then she has worked for CRY as a divisional representative
for the East.
She said: "Historically when there has been the
death of a young person it has been difficult, in some areas, for the
families to get an accurate report following the death.
"Some of the conditions which are very rare are
difficult to see during a post mortem, so it is difficult to say an exact
cause of death.
"When you have lost a child or young person who is
apparently fit and healthy it is very important to a family to find out what
the cause is. Just being told "it is one of those things" or "natural
causes" or something like that does not help a family with their grieving.
"Another reason, which is maybe even more
important, is that if it is one of the conditions which is hereditary then
the family really need to be aware of that so that any siblings or close
relatives can be tested."
CRY aims to raise awareness of sudden death of
young people due to largely undiagnosed heart conditions.
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