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Bereavement
Support Groups: groups who contributed
to the CRY Bereavement Support Day to
help people
understand more about how to cope with the sudden loss of a young person
through cardiac related conditions.
Medical
Technology: innovative companies, providing
intelligent systems for diagnostic, monitoring, and screening whom all
support the work of CRY
British Heart Foundation
The aim of the British Heart Foundation (BHF)
is to play a leading role in the fight against heart disease so that it is
no longer a major cause of disability and premature death
SADS
Foundation (US)
The SADS
Foundation is dedicated to providing information, assistance & hope.
It mission is to identify those who are genetically predisposed to sudden
death due to cardiac arrhythmias, and thereby save the lives of children
and young adults.
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Cardiac
Information
- A
Heart for Sport (US)
- Anticoagulation.org.uk
The Birmingham Primary Care site for Warfarin dosing software, BAP-PC,
providing training in anticoagulation management andpatient
self-management to health professionals. The site links to academic
publications on anticoagulation, INR, DVT, air travel, near patient
testing (point-of-care) and CDSS.
-
Arrhythmia Alliance
Promoting better understanding, diagnosis, treatment and quality of life
for individuals with cardiac arrhythmia
- Arryhthmogenic Right Ventricular Cardiomyopathy
(ARVD)
- Association
for Glycogen Storage Disease (GSD)
- Blood
Pressure Association Help to lower high blood pressure to beat stroke and
heart disease.
-
BPlog.com Blood pressure information
- Bristol
Royal Infirmary Inquiry Page
- British
Cardiac Society
- British
Cardiac Patients Association
- British Heart Foundation
- The Canadian
SADS Foundation
- Cardiaccare
The Cardiac Care update provides a brief overview of recent research
findings, treatments and reviews on a wide range of issues relating to
cardiac care.
-
Cardiac Inherited
Diseases Group A multidisciplinary group of medical
professionals based in New Zealand, whose core aim is the prevention of
sudden death in the young
-
Cardiac Matters The
causes, symptoms and treatments of various cardiac conditions
- Cardiomyopathy Association
(UK)
- Cardiomyopathy
Association (Australia)
- Cardiomyopathy
Association (USA)
-
Cardiothoracic
Surgery Network
-
Cardiovascular
Diseases Specialist Library
-
The
Central Cardiac Audit Database
-
Childrens
Heart Federation
-
Children's Heart Foundation
- Drug Safety Research Unit
Drug-induced Arrhythmia Risk Evaluation (DARE) study. Cardiac
arrhythmia following exposure to drugs is an important public health issue
for patients, prescribers and the pharmaceutical industry.
-
ECG
Tutorial
-
Echo UK - the Tiny Tickers charity
-
Essex Cardiac Network
CRY's
first ECG clinic in a PCT hospital is based at the Colchester General
Hospital.
-
The
Foundation for the Study of Infant Deaths (FSID)
is
the UK's leading cot death charity working to prevent infant deaths and
promote baby health. FSID carries out
its aims by funding research, supporting bereaved families and promoting
information on how to reduce the risk of cot death to health
professionals and the public.
-
Grown Up Congenital Hearth
(GUCH)
-
Guidant
section provides interactive quizzes and multimedia resources
- Heart1.com
health and medical information community for consumers offers news
features, technology reports, searchable databases as well as
interactive tools.
-
Heart
and Coeur French and English Cardiology & CHD directory
-
Hearts
for life
-
Heartline
Association For children with heart conditions and their
families
-
Heart
rhythm disorders Animations of heart rhythm disorders (Info from Medtronic)
-
Heart
Surgery Forum
-
Huesman
Heart Foundation Inc.
-
ICD
Support Group of North Staffordshire
-
International
Society for Heart and Lung Transplantation
- London
IDEAS Genetics Knowledge Park has a broad remit to research genetics
of common disease, including cardiomyopathy and inherited high
cholesterol, and to investigate the social and ethical impact of
genetics advances. A range of training and educational initiatives has
also been launched, to benefit both professionals and public. To find
out more, visit their new website at
www.londonideas.org
-
Marfan
Association
-
The Myocarditis Foundation
-
National
Heart Forum
-
QTSyndrome
- SADS
Australia
- SADS UK
-
SafeBeat
A Foundation for the education and advocacy
of proactive prevention of sudden cardiac arrest of the adolescent
athlete and young American population thru heart screening, including an
electrocardiogram
-
Stanford Hypertrophic Cardiomyopathy Center
-
Sudden Cardiac Death (in the
young) Support Group Group based in Ireland - set up in 2006
to support affected families and effect
change so that others may live
-
Take Action for Healthy BP program
General
Health Information
-
Access Nurses travel nursing jobs
- Action
on Salt resource to learn about the health effects and problems associated
with salt in food. Promotes healthy diet and reducing salt intake
-
AllRefer.com - health provides information and news on diseases,
symptoms, tests. Focuses on family and community health
- AntiCoagulation
Europe for people on oral
anticoagulation therapy (soon to be launched)
- Blood
Pressure Association fighting high blood pressure to reduce stroke
and heart disease
-
British
Dietetic Association
-
British
Medical Association
-
British
Psychological Society
-
Care
and health.com
-
Charity Aid
Foundation (CAF)
-
Charity Choice - directory of charities
-
Child Death Helpline
-
Compassionate Friends
-
CRPhealth.com
-
Department
of Health
-
Doctor's
Guide
-
The
Doctors Desk
-
Doctors
Online
(requires access to NHS NET)
-
Dr
Net
-
Effective
Health Care Bulletins
-
English
National Board for Nursing, Midwifery and Health Visiting (ENB)
-
Foundation
for the study of Infant Deaths (FSID)
-
General
Medical Council
-
The Genetic Interest Group (GIG)
-
The
Government Information Service
- Health6.com - Comprehensive Health Directory
-
Healthcare
Commission
-
Healthfinder
-
Health
on the Internet
-
Healthsitesuk
A portal for non-medical people and doctors
to easily find health information
-
Home
blood pressure monitors Up to date details of accurate blood
pressure monitors.
-
The Kate and Daniel
Trust bereavement counselling service based in West Yorkshire.
- London
IDEAS Genetics Knowledge Park has a broad remit to research genetics
of common disease, including cardiomyopathy and inherited high
cholesterol, and to investigate the social and ethical impact of
genetics advances. A range of training and educational initiatives has
also been launched, to benefit both professionals and public. To find
out more, visit their new website at
www.londonideas.org
-
Mayo
Health Clinic (USA)
-
Medibyte.com
was established as a natural progression from the successful continuing
medical education courses run by Medipass Intensive Weekend Courses -
now the leading provider for MRCP II courses in the UK. We provide:
online medical education bringing valuable knowledge to a screen near
you, at a time that suits you, books
and CDs augmenting our services, intensive
residential courses, delivering high impact medicine in a short space of
time.
-
Medical
Help
-
Medical
Research Council
-
Medical
Resources USA
-
MediPAL Hard wearing plastic
medical ID card showing medical history, current medication, allergies,
contact name and number, GP details, blood type.
-
Monitors
for blood pressure
- n2n
magazine A fresh and professional approach to modern nursing.
Keep up-to-date with all the latest news and events that affect you and
the nursing profession, along with features and articles covering
topical issues in the major nursing specialities and medical industry.
-
National
Institute for Clinical Excellence
-
Netdoctor
- NHS
-
NHS
Centre for Reviews and Dissemination
-
NHS
- Electronic Quality Information for Patients
-
The
NHS Information Authority
-
NHS
National R&D Programme on Health Technology Assessment
-
Nurse Portal
-
Nursing Jobs
-
NursingNet
-
Nursing
Standard
-
Nursing
Times Nursing magazine has daily clinical news, searchable archive
of articles and UK nursing jobs
-
Official
documents
-
Organising
Medical Networked Information (OMNI)
-
The
patients association
-
Patient.co.uk
-
The
Royal College of Pathologists
-
Royal
College of General Practitioners
-
Royal
College of Surgeons of England
-
The
Royal Pharmaceutical Society of Great Britain
-
Royal
Society of Medicine
-
Salt
diet and health
-
schoolzone Educational resource
-
Studenthealth.co.uk
A resource written
by GPs aimed specifically at student health matters offering
printable advice leaflets on topical and student related issues.
-
UK
Consultants online
-
UK
National Coordinating Centre for Health Technology Assessment
-
UKSelfhelp
Constantly updated web
site of over 770 national UK Self Help Groups and Support
Organisations
-
WellChild
-
The
Wellcome Trust
Online
Journals
Medical
Databases
Sports Organisiations
Websites in memory...
Other sites that
support CRY
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