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 Tim
Loughton, MP for East Worthing and Shoreham
"That this House congratulates
Cardiac Risk in the Young (CRY) on investing £300,000 to fund the
setting up of a research centre for expert cardiac pathology at the
National Heart and Lung Royal Brompton Hospital, including funding to
facilitate the system of coroners' young sudden cardiac death fast track
referrals to this expert centre; further congratulates CRY on its work
to raise awareness of the second anniversary of the new Chapter 8 in the
National Service Framework on Arrhythmias and Sudden Cardiac Death
published on 4th March 2005, which aims to reduce the rate of eight
cardiac-related deaths of fit and healthy young people a week; welcomes
the launch on 6th March of the results of a recent survey of hon.
Members and primary care trusts (PCTs) which indicated that there is
increasing awareness of young sudden cardiac death and the issues
pertinent to Chapter 8 as a result of the work of some hon. Members and
PCTs; recognises the work of CRY's cardiac specialists and the
development of CRY's sports and schools screening programmes; notes the
donation of over £400,000 of cardiac equipment to general practitioner
surgeries and hospitals; welcomes the development of a network of
bereavement supporters; and looks forward to the next CRY Raising
Awareness Week on 9th to 14th July."
Early Day Motion, March 13th 2007.
Click here to see MPs who have signed this EDM
Tim
Loughton, MP for East Worthing and Shoreham
"That this House congratulates
Cardiac Risk in the Young (CRY) on its work to raise awareness of the 1st
anniversary of the new Chapter 8 in the National Service Framework on
Arrhythmias and Sudden Cardiac Death published on 4th March 2005, which
aims to reduce the average eight cardiac-related deaths of fit young
people a week; welcomes the launch on 1st March of the results of a recent
survey of primary care trusts, general practitioners and the public
addressing issues pertinent to the new Chapter 8; recognises the work of
CRY's cardiac specialists and CRY's sports and schools screening
programmes, the donation of over £400,000 of cardiac equipment to general
practitioners surgeries and hospitals and the development of a network of
bereavement supporters; and looks forward to the next CRY Raising
Awareness Week from 3rd to 8th July."
Early Day Motion, February 28th 2006.
This EDM has been
signed by 127 MPs
Tim
Loughton, MP for East Worthing and Shoreham
"That this House congratulates
Cardiac Risk in the Young on their 10th anniversary this year; notes that
their first CRY Raising Awareness Week is being held on 11th to 18th June;
applauds its successful lobbying campaign for the Cardiac Risk in the
Young (Screening) Bill which instigated the new chapter on Arrhythmias and
Sudden Cardiac Death in the National Service Framework to be published on
4th March; supports their National Postcard Campaign highlighting eight
young (under 35) sudden cardiac deaths a week; and recognises their
achievements in setting up screening clinics at the CRY Centre for Sports
Cardiology at the Olympic Medical Institute and at Leeds, Colchester and
Northwick Park, the donation of over £400,000 of cardiac equipment to
general practitioner surgeries and hospitals, the development of a
national network of 21 trained bereavement supporters to help bereaved
families cope with their tragedies and their Surgery Supporters Club for
young people that have been diagnosed with a life-threatening cardiac
condition."
Early Day Motion, March 2nd 2005.
This EDM was signed by 118 MPs.
EDM tabled again June 8th
(following 2005 General Election) -
signed by 158 MPs
.jpg) Kevan
Jones, MP North Durham & Chairman of CRY APPG
"That
this House congratulates CRY for raising awareness of Sudden Cardiac Death
Syndrome; applauds CRY for the support it offers those who have suffered
loss from sudden cardiac death; praises its promotion of heart screening
as a simple way of diagnosing most cardiac abnormalities; notes the
tremendous contribution CRY has made to medical research into Sudden
Cardiac Death Syndrome"
Early Day Motion April 29 2004.
This EDM was signed by 108 MPs.
 John
Reid, Secretary of State for Health
"The new expert group on arrhythmia
and sudden cardiac death will soon begin work on developing standards in
an area that previously fell outside the scope of the National Service
Framework"
 Oliver
Letwin heeds parent's CRY
"We need to make the medical
profession much more generally aware of potential heart problems in the
young.
"It is clearly a worthwhile cause.
There is almost nothing worse that can happen to you than to have one of
your children drop dead suddenly without warning."
.jpg) Andrew
Murrison speech in the Cardiac Risk in the Young ‘Screening’
Bill (2004)
On Wednesday, those of us who attended the CRY
reception met several people with first-hand experience of such covert
conditions. I was reminded of my cousin, David Horn, who collapsed and
died in his school playground when he was 10. As is invariably the case,
the event had profound and enduring consequences for David's family. For
his parents and grandparents, nothing was ever the same again. That
experience was shared by several people at the CRY reception.
...We know that a great deal has been achieved by CRY.
We know that a simple electrocardiograph helps enormously to distinguish
the worried well from patients with problems. Electrocardiography may not
yet be routinely carried out in all GP premises but there is no particular
reason why it should not be. Reporting can, of course, be done elsewhere,
or even, these days, automatically. CRY has provided a large number of ECG
machines for that purpose, which I hope will encourage doctors to
investigate symptoms that previously might not have been investigated.
 Department
of Health sponsor CRY for £100,000 over 3 years for counselling support
Public
Health Minister Yvette Cooper, April 2002 "We are keen
to support the CRY programme and I am
delighted to report that Section 64 funding has been granted to CRY of £100,000
over the next three years for it's bereavement counselling. This is a very
important
initiative for CRY. The support
which families give each other is crucial at this difficult time.
I am pleased to see so many interested people here who want to know about
this work.”
 Ivan
Henderson interviewed by CRY for Kids Editor, Julie Tanner
I thought it
was one of the most hard-hitting events organised in the House of Commons that I
have ever seen. Real stories by
real people. It was very touching,
and it was good to have the announcements of the grant and to see some campaigns
were coming to fruition. By taking
CRY to the House of Commons more MPs are now aware of its existence and the
campaign
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Rt
Honourable Richard Caborn