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A loving dad is calling for all children to be
given life-saving health checks after losing his 17-year-old daughter to a
rare heart disorder.
Kasia Ber died suddenly when a mobile phone alarm
triggered an irregular heart rhythm, caused by the congenital condition Long
QT Syndrome, in December 2005.
Her devastated father John now wants electro
cardiograph (ECG) screenings for all young people to stop other families
going through the trauma of losing their loved ones.
Well-wishers, including a large group of Kasia's
friends, have rallied to raise more than £7,000 for CRY - Cardiac Risk in
the Young - and the Kasia Ber Memorial fund.
Fundraisers plan to boost the total further when
they take part in this year's Boxing Day dip at Seaton Carew.
John, who lives in Brier Avenue, Horden, with his
wife Diane and 16-year-old son, Christopher said: "We want every young
person to be screened. It's a simple, painless procedure, and if it
saves just one person then it's worth it.
"Kasia's heart condition was triggered by a mobile
phone alarm which sent her heart into abnormal rhythm.
"Losing her has been hard. We've been at
rock bottom but we have to stay strong for our son, Christopher.
"We don't want anybody to go through what we're
still going through, that's why it's so important to carry on the research
and raise awareness.
"Everybody in Norden has pulled together to raise
money. It's been fantastic."
Kasia had accepted a place at university to study
law when tragedy struck.
She was a former student of the Debbie Barrett
Academy of Performing Arts and taught younger children to dance.
"Kasia was fun-loving, outgoing and super-fit.
The world was her oyster," said John.
"Around eight young people a week die of heart
defects but the figures could be higher because a lot go undetected."
Once heart problems are detected, the individual
can be prescribed medication or treatment such as beta blockers to keep
their condition under control.
Diane and two other family members have also been
diagnosed with Long QT Syndrome following an ECG check. They are now
receiving treatment.
Around 20 friends of Kasia's will brave the
freezing waters at Seaton Carew for the second year running when they take
part in the Boxing Day drip to raise funds.
Organiser Beth Moore, 21, said: "When Kasia died
it brought a lot of her friends close together. We wanted to so
something where we were all involved and we're hoping to raise as much money
as possible for CRY."
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