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Devon families have backed
calls for young people with a family history of sudden and unexplained
death to be given automatic heart screening on the NHS.
A
Private Member’s Bill, being presented by Dari Taylor MP
tomorrow, calls for automatic screening for people at a high risk of
sudden cardiac death syndrome.
The charity CRY -
Cardiac Risk in the Young - is backing the Bill.
It has also won support
from Wonford mother Donna Pyle.
Mrs Pyle’s husband
Andy, died of Sudden Adult Death Syndrome on March 17th 2000,
aged just 32.
Since then Mrs Pyle, has
been trying to get her husbands heart tissue tested to establish whether
he had a hereditary strain of the heart condition called Long QT Syndrome,
which can cause the heart to
stop suddenly. And she wants
her sons Jake nine and Jamie five, to undergo genetic tests to see if they
have the condition.
She has met top heart
specialists in London for an initial consultation, which was arranged
through her GP and CRY.
The Royal Devon &
Exeter Healthcare Trust has also sent tissue samples from Mrs Pyles
husband Andy’s heart to undergo genetic testing at a laboratory in
Oxford.
Donna told the Echo:
”I am definitely in favour of screening, It would save lives and raise
awareness. People can be quite frightened of finding out about heart
defects but screening is a positive thing.” “It needs to be done as
soon as possible”
Kathy Moyle, from East
Budleigh, who has lost four relatives of Sudden Death Syndrome, has also
backed the Bill.
It is supported by MPs
and sporting stars including cricket legend Ian Botham.
CRY
said that immediate screening of families after a sudden death was vital
for identifying genetic faults in the heart and prevent further deaths.
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