CRY Cardiac Risk in the Young

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CRY's Co-ordinated  Fast Track Service For Affected Families

"As well as working with the Department of Health and others to develop high quality cardiac services for young people and families, CRY also provides a significant amount of funding to the NHS to help ‘fast-track’ the complex range of services needed following a sudden cardiac death to determine the risk to other family members. CRY is to be congratulated for its ongoing role in the development of these services."

Professor Roger Boyle CBE, National Director of Heart Disease

 

 

Fast track coroner/pathology service managed by histopathologist Dr Mary Sheppard

  • funding coroners’ young sudden cardiac death referrals to the CRY Centre for Cardiac Pathology at the National Heart & Lung Institute Imperial College London, Royal Brompton Hospital

 

Fast track screening service managed by consultant cardiologist Dr Sanjay Sharma

  • after a loss

  • for those with signs and symptoms

  • for those that cannot get a GP referral through CRY screening clinics and family screening events

  • CRY Inherited Cardiovascular Disease clinic at King’s College Hospital, London

 

Fast track athletes screening service managed by sports scientist Professor Greg Whyte

  • at the CRY Centre for Sports Cardiology based at the Olympic Medical Institute

 

CRY Surgery Supporters Club

  • gives counselling, support and help for those diagnosed

  • holds bi-annual meetings with a counsellor and consultant cardiologist

 

Bereavement Support

  • Inquest Support with a CRY trained bereavement supporter who had her Inquest re-convened and the verdict of unascertained reclassified as long QT

  • Bereavement support through a network of trained individuals whose family suffered a Young Sudden Cardiac Death

  • Regional Bereavement Support Days in the North, Midlands, Southwest and Southeast

The development of this programme was funded by a grant from the Department of Health

 

 

Ongoing research into young sudden cardiac death

  • pathology

  • conditions as they affect athletes

  • conditions as they affect the young (35 and under) general population

  • bereavement

 

Information

  • all information written by experts in “user friendly” language

  • BHF funded CRY SADS booklet; in excess of 20,000 copies circulated worldwide

  • Family Conference Day where bereaved families and those diagnosed can learn about the conditions and ask questions of experts in the field

  • 2 day International Conference for medical personnel interested in Sports Cardiology and Inherited Cardiovascular Conditions

 

These fast track services are in accordance with the NSF Chapter 8 guidelines

 

 

 

Click here to download a PDF poster

of CRY's services

 

 

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