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A Swansea campaigner for cardiac screening for
young people is angry over delays in service improvements in Wales.
Paulette Smith warned red tape could result in
youngsters dying unnecessarily from hidden heart defects.
Paulette, from Heol-y-Ffin in Clydach, was one of
a team of UK-wide crusaders who last year took part in a postcard campaign
aimed at lobbying MPs to ensure guidelines over hidden heart defects were
inserted in the new national service framework on coronary heart disease.
Her pressure group, Cardiac Risk in the Young, or
CRY, successfully got a chapter included on sudden death syndrome with
guidelines on improving screening.
But now it has emerged that Wales has been left
out because the Assembly has not yet agreed it.
CRY chief executive Alison Cox is frustrated that
few English health trusts have yet to start to implement a new strategy
based on the chapter eight guidelines, a year on.
But Wales hasn't even got off the starting blocks.
Paulette, who lost her son Christiaan to the
condition when he was just 24, said: "I am just so angry about this.
Gower MP Martin Caton was a big supporter of ours, yet it turns out the
framework doesn't apply to Wales. We seem to be constantly hitting
brick walls and having stumbling blocks put in front of us."
She added: "While it's too late for my family,
there are many other young people who could be saved if this new advice was
followed in Wales. Young lives are now being put at risk."
Ironically, one of the cardiologists who helped
brief the UK Government on the new chapter works at Singleton Hospital.
Mark Anderson warned there were many young people
who were living with an undiagnosed time bomb, Swansea GP Peter Edwards,
medical director of Swansea Board, said: "Chapter eight relating to children
has not yet been issued in Wales, and is therefore only applicable in
England at this time.
"The Assembly is considering the recommendations
of the chapter prior to its release here."
Around eight apparently fit and healthy people
under the age of 35 drop dead from undiagnosed heart rhythm defects each
week in the UK.
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