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February 22, 2006 is a day that will live with the
Gallagher family, Strabane, forever.
It was the day that their youngest daughter Lauren
passed away from a then undiagnosed heart condition, aged must 13.
The tragedy plunged parents Blanche and John back
into an abyss they had endured 23 years earlier when son Jonathan (9)
collapsed and died in a similarly unexplained manner.
Following Lauren's death, it emerged that she had
suffered from heart abnormalities. To prevent the same happening to
other youngsters, the family has united with charity Cardiac Risk in the
Young (CRY) and recently they helped launch a postcard campaign encouraging
people to write to their local MLA calling on them to support the CRY
screening programme.
In a frank and at times emotional interview,
Lauren and Jonathan's mother Blanche Gallagher this week told the Strabane
Chronicle what the CRY campaign means to her and her family.
"We were in Philadelphia on holiday with relatives
and it was Lauren's seventh birthday. We had a party and she was
really enjoying herself, Then, just as I watched her skipping, she
collapsed. It was the first time it had happened, and we didn't know
what was wrong. But by the time we had carried her out to the garden,
she had come round again. We took her to the Philadelphia Children's
Hospital where she was checked out and everything seemed fine," Blanche
explained.
Apparent fainting spells followed by a period of
perfect health would become a recurring theme in Lauren's short life and
despite constant testing, medical experts could not find any explanation.
Doctors originally put the seizures down to epilepsy.
Then in January 2006, Lauren passed out while
sitting in a chair. This time her mother's instincts told her that it
was more serious than before.
"She was sitting in a chair and she just passed
out. To me it didn't look good and I got this feeling, a numbness and
fear, so we called the paramedics. Again she recovered, and this time
I wrote to Dr Andrew Sands, a consultant from the Royal Victoria Hospital
who had been treating her. A few weeks later he rang and said he was
referring Lauren to a colleague of his, a heart specialist in Birmingham.
Then on February 22 at 6.30pm, we had just finished our dinner and Lauren
went in to sit down. All of a sudden she said: "Mummy, I think I'm
going to faint." An ambulance came, followed by a cardiac ambulance,
the paramedics did what they could but were unable to save Lauren," Blanche
explained.
It has since been confirmed that Lauren did have a
genetic cardiac abnormality known to experts as a Catecholaminergic
Polymorphic Ventricular Tachycardia (CPVT). A similar disorder was
responsible for the death of Tyrone Captain Cormac McAnallen.
Following the death of their second child, the
Gallagher family have helped raise thousands of pounds for CRY, a charity
founded in 1995 to raise awareness of conditions such as CPVT and Sudden
Cardiac Death. Late last year, CRY launched their Postcard Campaign
urging the government to offer their support. Blanche believes such
testing is vital since not all sudden cardiac deaths are genetic and that
pro-active screening is the only way to identify the majority of young
people at risk.
"CRY founder Alison Cox told us that if we could
get as many postcards signed as humanly possible, our MLA's would have to
realise that there are 12 young people a week passing away because of
undiagnosed or genetic cardiac defects," Blanche added.
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