Sudden Death
Syndrome - SDS
Sudden Death Syndrome
(SDS) is an umbrella term used for the many different causes of cardiac arrest in young
people. CRY provides
medical information on the most common causes of unexpected sudden cardiac death in the young (35
and under). These conditions include thickening or abnormal structure of the heart muscle and irregularities of the electrical impulses that upset the natural rhythm of the heart.
Sudden Death Syndrome
events are defined as non-traumatic, non-violent, unexpected occurrences
resulting from cardiac arrest within as little as six hours of previously
witnessed normal health.
It is often difficult to consider that someone who is apparently young and fit may be at risk. There have been a number of reported incidents of misdiagnosis culminating in a tragedy that could have been avoided.
Sporty youngsters stress their heart the most. If they have an underlying cardiac abnormality they are more likely to be at risk. Sport itself does not lead to cardiac arrest but it can act as a trigger for a young person to die suddenly by exacerbating an undetected condition.
The majority of young sudden deaths are due to inherited forms of heart muscle disorder and irregular heart beat. Hypertrophic Cardiomyopathy is the most common of these conditions.
Research in the USA by Dr. Barry Maron shows that 1 in 500 people have Hypertrophic Cardiomyopathy alone - just one of the
cardiac conditions we cover.
In the UK unexplained "sudden death" is frequently recorded as due to natural
causes. Experts believe that most of these deaths are due to Sudden Death Syndrome. Until the law is changed and coroners have to refer hearts on to specialists we will not know the true figures.
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There is a simple way to diagnose most
of the abnormalities that can lead to sudden death. This is by
having an ECG (electrocardiogram) test. The test is quick, painless
and affordable. For extra clarity an echocardiogram (ultrasound scan
of the heart) can be taken if necessary.
We recommend ECG
screening if there have been any young sudden deaths in the family,
or if a young person is suffering from symptoms of:
Chest Pain (Exercise related)
Breathlessness
Palpitations
Dizziness
Fainting |

Watch CRY Patron David Walliams have an ECG test |
CRY offers subsidised screening (£35
for an ECG) to young people between the ages of 14 and 35. This is through
a number of clinics in the UK – in Colchester, Harrow and Jordanstown - and
also a mobile screening service.
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