The
information from the tests is strictly confidential and will not be
disclosed to anyone other than yourself (or your guardian if you are
younger than 16 years), your GP and others who are directly involved
within your care, e.g. other consultant cardiologists.
CRY’s
screening programme is about identifying people at risk. However, it
is also about building our understanding of these conditions. Every
person we test will not only receive advice from a leading world
expert in these cardiac conditions affecting young people but also
they will make a real contribution to our understanding of these
conditions in the future.
The
information from these tests will be held on a database at CRY,
assuming consent has been given, and may be used anonymously for
research purposes.
CRY’s
screening research programme is overseen by Professor Sanjay Sharma.
Sanjay is Professor of Inherited Cardiovascular Disease and Sports
Cardiology at St George’s University of London, and Medical Director
of the Virgin London Marathon. In 2008 he was voted, as the only
British Representative, onto the European Association for
Cardiovascular Prevention and Rehabilitation (EACPR) Sports
Cardiology Section Nucleus, an elite committee tackling the complex
issues of sports cardiology.
CRY
actively promotes research in the field of inherited cardiac
diseases, sudden cardiac death, screening and sports cardiology in
an attempt to advance our understanding of conditions predisposing
to sudden cardiac death and prevent further tragedies. CRY sponsors
competitive research grants for outstanding individuals who wish to
specialise in this field and has contributed to numerous abstract
presentations in national and international medical conferences as
well as publications in distinguished journals.
