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The parents of a 16-year-old who died suddenly
from a heart defect have backed a campaign for routine cardiac screenings in
young people.
Porthill cricketer Nathan Butler was found dead by
his mother Angela last month.
she found him lying on his bedroom floor, part way
through getting dressed, at the family home on Hassam Parade, Woolstanton.
The funeral took place on March 3, where almost
1,000 people packed into St Wulstan's church to heart Nathan's father Philip
read out a poem in tribute to him.
The post-mortem report revealed the Stoke City fan
died of Hypertrophic Cardiomyopathy, which affects one in 500 people in the
UK.
the condition is found in those aged between 10
and 35 years old. While many could reach adulthood unaware they have the
condition, sudden death can be caused by muscle thickening around the heart
causing it to "stiffen" and reduce blood output.
Mrs Butler, aged 47, said: "After Nathan
died so suddenly, I though I was the only person in the world that this had
happened to.
"It was a great comfort to realise that other
families have suffered the same loss and can understand what I'm going
through.
"It must help with the grieving process."
Nathan's condition is hereditary, so his
13-year-old brother Josh was screened for muscle thickening and given the
all clear.
Both parents are now waiting to be screened so
they can identify which side of the family the genetic predisposition comes
from.
the Butler family is also planning a series of
fundraising events to raise money for Cardiac Risk in the Young (CRY), an
organisation which campaigns for cardiac screenings for young people.
Around eight young people in the UK are struck
down by undiagnosed heart conditions each week.
Both Italy and France already have this screening
in place.
Mrs Butler said: "My husband Philip plans to raise
money by running the Potters 'Arf with some friends. but this needs to
be an ongoing campaign to make people aware of the need for cardiac
screenings for young people."
The family had been overwhelmed by the support of
friends and relatives over the last few weeks - particularly Porthilll Park
Cricket Club where Nathan was known affectionately as Trigger.
The Butlers have set up a memorial fund and are
planning to create a junior and senior Trigger Trophy for the club's
greatest sports personality of the season - reflecting Nathan's own renowned
sense of humour.
Tributes have poured in from Nathan's former
schools, St Wulstan's Primary School and St John Fisher High School as well
as from Signal Radio where Nathan hoped to become a DJ.
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