Dad Rob Griffiths hugs his little girls - who like him have a genetic condition that can spell sudden death.

Rob, 44, Nelly, two, and Rhiann, five, suffer from Long QT, which may stop the heart without warning.  Emotion, a shock or even an alarm going off can trigger an attack. 

Ex-soldier Rob - whose student son Rhys, 20, is also a sufferer - said: "You can't let it rule your life. Some people have cancer and they are a lot worse off than us." 

Logistics manager Rob and wife Jane, 43, of North Wooton, Norfolk, vowed to make life as normal as possible for the girls. 

Rob said: "You cannot wrap them in cotton wool."