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The truth about my girl's death

 

Daily Post (Welsh Edition) - 30th May 2005

By Carl Butler

 

Nurse was killed by shock of her alarm clock's ring

A mum’s seven-year campaign was vindicated last night after scientists proved her daughter was killed by a ringing alarm clock.  Swedish DNA tests confirmed nurse Lisa Jane Browne, 27, died because of an abnormality which made her heart stop from the sudden noise in January 1998. 

Now her mum and dad, Doreen and Terry Harley, of Connah’s Quay, want her inquest reopened. 

“Neither of us could ever accept that she died for no reason,” said Mrs Harley.  “Finally, to put everything in place, we need a death certificate showing the new cause of death.” 

The results came as other tests showed Lisa’s five-year-old nephew, Adam, is the fifth member of the family to carry the gene. 

A coroner was last night weighing up whether to reopen an inquest into the sudden death of a North Wales nurse.  The move comes after scientists finally proved Lisa Jane Browne died because of a genetic electrical abnormality in her heart. 

The 27-year-old died from sudden shock after her alarm clock went off at 6am on January 12, 1998.  An inquest recorded the cause of her death as unascertainable.  Since then, her family has campaigned to prove Lisa was killed by a rare disorder known as Long QT syndrome. 

Now DNA tests by Swedish scientists lasting nearly two years have proved they were right.  The results came as tests confirmed Lisa’s nephew, five-year-old Adam Willn, has Long QT Syndrome.  Lisa’s father Terry Harley, her sister, also a nurse, Rachel Willn, 29, of Nuneaton and Rachel’s two children Jack, eight and Adam all have the same abnormal gene. 

Now her parents, Terry and Doreen Harley, of Halkyn View, Connah’s Quay, want their daughter’s inquest reopened and her death certificate changed. 

“We asked for Lisa’s post-mortem tissue to be genetically tested two years ago,” said Mrs Harley, who is the regional representative for the charity Cardiac Risk in the Young (CRY). 

“Through one of the doctors concerned with CRY we were able to have PM tissue sent from the Countess of Chester Hospital (where Lisa worked as a paediatric nurse) to St. George’s Hospital in London. 

“They extracted the DNA and sent it to Sweden.  It took them 20 months to diagnose Lisa definitely had Long QT Syndrome, no doubt.” 

Cheshire coroner Nicholas Rheinberger has been asked by Mr and Mrs Harley to reopen the inquest – which he is considering. 

“Neither of us could ever accept that she had died for no reason,” Mrs Harley added.  “Finally to put everything in place we need a death certificate showing the new cause of death.  It is definitely the case that she had Long QT Syndrome and she died when her alarm clock went off.” 

Lisa’s sister Rachel was diagnosed with the defect after she was persuaded to undergo tests.  Rachel had surgery to fit a pacemaker, called an ICD.  Three years ago she was asleep when Adam woke up screaming and the sudden noise caused Rachel’s heart to stop.  The ICD kick-started her heart. 

Adam’s diagnosis was not a shock.  “My husband and I were mentally prepared.  He has the defect, so does Rachel and so does Jack, so there seemed a 50% chance Adam would have it too. 

“Jack and Adam will now be sent to a paediatric cardiologist who specialises in electrical abnormalities of the heart and he will decide what course of treatment is necessary for both boys.” 

The pathologist who carried out the post-mortem on Lisa could find no obvious cause of death and an open verdict was recorded. 

Prior to her death, the nurse had gone to the doctor complaining of palpitations, chest pains and light-headedness.  She was diagnosed with stress and depression and prescribed anti-depressants – drugs on a banned list for anyone suffering from Long QT Syndrome. 

Mrs Harley has been able to set up two screening sessions in Flintshire for young people and out of 79 tested, seven were found to have cardiac problems they were not aware of.  She would like to organise more sessions, but each one costs £7,000 and she needs a financial donor. 

Many of the conditions that cause Sudden Young Cardiac Death are treatable if diagnosed. 

 

Find out more about Long QT Syndrome

 

 

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