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Date
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National
publication
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Article title
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01/12/03 |
Health
Which |
Special
investigation: sudden death - unexpected and unexplained
Colin Meek
looks beyond the dramatic headlines to investigate what's known about
sudden unexpected and unexplained deaths
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01/12/03 |
Health
Which |
Blackout
fear like living Russian roulette
The post mortem couldn’t find a cause of death but no inquest was
held. A few years before
Pauline had blacked out during a swimming lesson.
The family were told the blackout was nothing to worry about.
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01/11/03 |
Pharmacy
Magazine |
Sudden
Adult Death Syndrome
Research
published in the Lancet last
year suggested that as many as eight lives were being lost each week in
the UK to “Sudden Death Syndrome” (SDS), an umbrella term used for the
many different causes of cardiac arrest in young people.
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27/10/03 |
The
Times |
Survival
of the fittest
Tony
Blair's
heart problems are not the only ones to have made it on to the political agenda
in recent weeks. Two Labour MEPs have
launched a campaign in the European Parliament to call on the World Health
Organisation to recognise and officially name sudden death syndrome.
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10/10/03 |
British
Medical Journal |
MEPs lead
campaign to get sudden unexplained deaths recognised as a syndrome
Deaths
that remain unexplained after a postmortem examination are
registered and coded as due to causes that may be vague or
incorrect, they add, making it difficult to construct an
accurate picture of the real scale of the problem.
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07/10/03 |
Parliamentary
Press
Release
press release |
Campaign to
recognise "Sudden Death Syndrome" goes to
Europe
On Wednesday, Labour MEPs Linda McAvan and Catherine Stihler are
launching a new pan European campaign in the European Parliament in
Brussels calling on the World Health Organisation to officially recognise
and name the syndrome.
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30/09/03 |
Daily
Mail |
I
was awake while my pacemaker was fitted
I was
informed that there was no way of knowing if my heart would suddenly stop
again. Worse still, my
resting heartbeat was just 38 beats per minute – the average is 70 |
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27/09/03
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The
Weekly News |
My
own story
Excitement, exercise and even the shock of being wakened by an alarm
clock can cause her heart to stop beating. Danii talks about
living with an implanted defibrillator to control Long QT. |
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11/09/03
|
Chat |
They
won't be the last
We were talking and she collapsed.
It was as if she just fell asleep.
I heard the doctor’s words in my head. These won’t be the last deaths…
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20/08/03 |
Now!
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I
was so close to dying and didn't realise it
Lucy, a consultant for celebrity agency Max Clifford PR, thought her dizzy spells over the years were caused by her
hectic lifestyle, but timely tests showed she had a potentially fatal
heart defect that could have killed her at any moment. |
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01/08/03 |
Cosmopolitan |
"I've
died five times"
The
next thing I remember is lying on the floor with a teacher standing over me.
He looked scared, and I could hear my mates crying. Everyone thought I was dead. |
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21/07/03 |
The
Guardian |
Why
Foe was the latest in a long line of needless fatalities
Post-mortem examinations have revealed that
Marc-Vivien Foé was the latest victim of the condition that is
responsible for a growing death toll of sporting talent. |
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15/07/03 |
Vogue |
Is
the gym killing you?
The problem is that
cardiovascular screening is not routinely available.
Even our Olympic athletes do not get it as part of their
pre-competition work-up. |
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01/07/03 |
The
Guardian |
The
hidden timebomb
The sudden death of footballer Marc-Vivien
Foé last week was no freak one-off. Thousands of apparently young
healthy adults die unexpectedly every year. |
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27/06/03 |
BBC
NewsOnline |
Sudden
heart death
Many cases may be caused by
heart arrhythmias - when the heartbeat races without warning, this
can cause fainting - or in very rare cases - collapse and death
even in very young adults. |
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02/05/03 |
BHF
press release |
BHF
scientists Discover New Test for Sudden Adult Death, SADS
A
new pan European study released today and funded by the BHF, has
identified an abnormality in the heart that will help predict
those people who may be at risk from so-called sudden adult death
syndrome (SADS). |
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01/05/03 |
Medical
Technology Bulletin |
Sudden
Death Syndrome: The UK's hidden menace
Finding
the cause of the heart problem is essential.
This is where medical technology steps in.
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29/04/03 |
BHF
press release |
Could
remedies be making people victims of
mystery heart killer?
The
BHF is funding a project to discover whether ‘apparently
healthy’ adults in could be at risk from potentially fatal heart
arrhythmias after taking over the counter remedies for common complaints
such as hay fever or indigestion
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08/04/03 |
Daily
Express |
My
husbands death helped me save my daughters
When
Julie John's apparently fit and healthy husband, Dave, inexplicably died
at 32, she was determined to find out why |
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28/03/03 |
BHF
press release |
BHF
calls for research into Sudden Adult Death Syndrome.
Leading charity asks if mystery sudden adult deaths could be just the
‘tip of the iceberg’. |
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01/03/03 |
Woman |
My
baby's cry could kill me
The
biggest danger is a sudden noise while the sufferer is asleep – this is
the time when the heart rate is slowest and can be shocked the most
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17/02/03 |
Woman's
Own |
It's
not just an old man's disease
The fact that heart conditions affect young people too needs to be
advertised as much as possible as even my own friends have trouble
believing me
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Date
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Regional
publication
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Article title
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24/12/03 |
North Wales Chronicle |
Cash needed to help save heart charity
A Flintshire
politician is calling for public money to be allocated to a
crisis-hit charity which has already saved the lives of seven
youngsters in the county. |
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19/12/03 |
Wakefield
Express |
Test
wait agony over fatal condition
An
inquest this week ruled sudden adult death syndrome (SADS) was to blame,
and Vicky’s devastated family now have to undergo tests to see if they
are carriers of the hereditary condition.
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12/12/03 |
Teesside
Gazette |
MP's
bid at heart of fight
Stockton South's Labour
MP Dari Taylor has won a place in the Commons ballot for Private Members
Bills. She intends to bring in a private Bill to deal with the little
recognised problem of cardiac arrest in the young. |
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11/12/03 |
Flintshire and Chester Standard |
'Vital' health charity in funding appeal
Mrs Harley said:
“The money has simply run out. It’s very frustrating. These
screenings have saved lives. They have saved the lives of seven
young people. They have saved the lives of one of my daughters
and her two children." |
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30/11/03 |
Southampton
Echo |
Dedicated
local hero
Mary was presented with a Local Hero Award by Sainsburys
Chairman Sir George Bull in recognition of her fundraising for Cardiac
Risk in the Young. |
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24/11/03 |
Lancashire
Evening Telegraph |
My
son would have been so proud
At the last screening, of the 30 people
who
attended, six had potential heart problems and underwent further
investigation and treatment as a direct result of the screening. |
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21/11/03 |
Rotherham
Advertiser |
Mystery
deaths research called for
A Euro MP has joined forces with two Rotherham mums who lost their sons in unexplained
circumstances to call for more research to be carried out |
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10/11/03 |
North
Wales Evening Leader |
Screening
success in heart defect syndrome battle
The
couple’s other daughter, and grandchildren have also been screened and both and have been diagnosed as
having Long QT Syndrome. |
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10/11/03 |
Teesside
Evening Gazette |
Mums
agony at delayed inquest
Heartbroken mum Pauline Hartley fears her son's death could remain
a mystery forever and be diagnosed as Sudden Adult Death Syndrome
SADS |
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18/10/03 |
Fife
Courier |
Tragic
couple backing MEP's health campaign
They hailed the awareness campaign as extremely important and said she hoped it
would prevent deaths in the same way as the cot death campaign had in
babies |
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16/10/03 |
Glenrothes
Gazette |
Loss
prompts couple to back fight
Maggie
and Andrew Tait are supporting a bid by Fife MEP Catherine
Stihler to have the shocking condition officially recognised by the World
Health Organisation |
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10/10/03 |
North
Wales Chronicle |
Mum
seeks recognition for condition which killed her 27-year-old
daughter
Recognising the condition would encourage more research to be
done, while raising
more awareness that screening can prevent some of these devastating deaths |
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30/09/03 |
Birmingham
Evening Mail |
Girl
16 dies in class
The
teenager was sitting at her desk on her first day as an A-level student
last September when she suddenly fell unconscious. |
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27/09/03 |
Teesside
Gazette |
Tragic
Mum keen to save lives
“If
the screening does show someone has a heart condition it will allow them
to seek treatment or medication” |
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04/09/03 |
Marylebone
& Paddington Mercury |
Victim's
family fundraise to solve sudden death mystery
“It
is wonderful how somehow the Lloyd family turned around this very
recent tragedy to help other people" |
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29/08/03 |
Surrey
Comet |
Raising
profile of undetected heart problems
CRY is running a
campaign to make doctors more aware of the rare heart conditions that can
cause youngsters to feel dizzy or faint after exercise. Usually the
symptoms are not significant but sometimes they can be the first sign
something is very wrong |
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21/08/03 |
Sutton
Guardian |
Living
with a ticking time bomb
"You can’t quantify
the cost of grief. Families sometimes become dysfunctional after such a
death”. She is convinced screening every youngster would be
cost effective.
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05/06/03 |
Wiltshire
Gazette |
Boy
puts players on marks for marathon
They were told that a heart could sometimes be likened to a computer
with a malfunction and just like with a computer one solution was to switch it off and
start it again |
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23/05/03 |
Brighouse
Echo |
Dad's
campaign is a life-saver
“We
wanted to do something so that Dominic’s memory would live on.
We hope that this equipment will prevent other families from
suffering as we have.” |
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13/08/03 |
Coleraine
Times |
Golfing
fundraiser is from the heart
Mr Lundy hopes the golfing tournament will act as a
springboard to raise the profile of the charity locally in the
Province after receiving support form the charity as a bereaved
parent. |
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22/05/03 |
Teesside
Evening Gazette |
At
the heart of our campaign
At the
latest screening, held in the United Reformed Church last month, a possible problem
was picked up with one of the 38 young people screened.
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10/04/03 |
Glamorgan
Gazette |
Runners
aim to aid heart group
After both their husbands
suffered heart attacks a mother and daughter-in-law have decided to take
the ultimate cardiac test.
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05/04/03 |
Teesside
Gazette |
Mum's
mission out of tragedy
An inquest in
January found no conclusive reason for the death, recording an
open verdict. |
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20/03/03 |
Worcester
Standard |
First
heart screening event in Worcester
Joy a fundraiser for Cardiac Risk in the Young (CRY)
used some of the funds to organise the first scientific lecture and ECG screening in the city
yesterday. |
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19/03/03 |
Watford
Observer |
It's
a personal Marathon for Kate
Kate, from the British Olympic Medical Centre at Northwick Park Hospital,
first became aware of CRY through her job as an exercise
physiologist. |
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18/03/03 |
Portsmouth
News |
Heartbroken
mum takes the plunge
Spurred
in to action after her 21-year-old son died without any warning. His death remained a mystery until a post mortem revealed he had a heart abnormality. |
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13/03/03 |
Chichester
Observer |
Robert
ready to honour his best friend
Robert will don
CRY's trademark heart costume for the marathon on 13th April to
honour his friend who died of suspected Sudden Death Syndrome aged
30. |
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10/03/03 |
Southampton
Echo |
Sisters
drive to repay CRY for heart help
The
sisters have commandeered mum Julie’s Volkswagen camper van, had
it sprayed bright pink, and are collecting celebrity autographs in
red hearts. |
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04/03/03 |
South
Wales Evening Post |
Dying
Young as the silent killer CRY's for help
Ironically, sporty youngsters are most likely to be at risk because
they put more stress on their heart with vigorous exercise, which
acts as a trigger. |
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04/03/03 |
South
Wales Post |
Heart
of the matter
Ironically, sporty youngsters are most likely to be at risk because
they put more stress on their heart with vigorous exercise, which
acts as a trigger. |
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28/02/03 |
North
Wales Chronicle |
Cardiac
screening dream realised
CRY
representative Doreen Harley, who campaigned tirelessly to have
the screening session in North Wales is hoping the event will save
lives. |
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24/02/03 |
North
Wales Post |
New
heart test vital to beat killer gene
Those tested will
receive results within 15 days. Anyone
found to have an abnormality will get a notice for further tests
at St George’s Hospital in London. |
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17/02/03 |
Flintshire
Evening Leader |
Screening
that may prevent tragedy & Soldier's
all heart for CRY
Each
person will have an ECG an Echo to check the heart, they will be
examined by a heart specialist and have their blood pressure
checked. |
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23/01/03 |
Frome
Times |
Local
barber will take to the skies
Steve undertakes this challenge to raise funds for local charity the Julian Wort
Memorial Fund, which supports Cardiac Risk in the Young |
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07/01/03 |
Sunderland
Echo |
Levon's
tragic death bringing hope to others
They knew he had Wolfe
Parkinson White syndrome, which causes heart flutters, but nobody told the family
it could be fatal – or that he could have been cured by an operation.
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06/01/03 |
Yorkshire
Evening Press |
In
memory of Mike
“There was a poster there
about CRY, and how they had raised money to buy Echo ECG machines, to help cardiologists diagnose these
conditions" |
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01/01/03 |
Lanzarote
Gazette |
Curse
of the fittest
Tragically, the syndrome seems to target youngsters who appear to
be supremely fit, even pursuing their careers in sport.
In every case they are unaware of the existing heart condition |
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