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Date

National  publication

Article title

Women who put thought into action

We have 12 members of staff, a two-storey office and I now know that Steve’s case was not one in a million.  In fact, eight apparently fit and healthy young people are dying every week from heart conditions they do not know they have. 

A deadly gene killed my wife - could my two year old son be next?

Since his birth two hears ago, I’ve been living in fear that I’ll lose him in the same tragic way that I lost his mum Chantel.  And I don’t know how I’ll cope if that happens.

31/08/04

Daily Express

Killer that claims four young lives each week

Caroline Gard has endured every parent’s worst fear.  In 1997, when her son Andy was just 17, he died suddenly and without warning, alone in his bedroom.  She now campaigns for cardiac screening to be available to all youngsters.

A new chapter

Dari Taylor MP welcomes the government’s decision to include recommendations from her Cardiac Risk in the Young private member’s bill kin the National Service Framework

CRY Chairman and Consultant nominated for Screening Bill working group

CRY Chairman Dr Greg Whyte and CRY's consultant Dr Sanjay Sharma are the first nominations for the working group (Sudden Death in the Young / Screening) to be chaired by Professor Bill McKenna, world expert on young sudden cardiac death.

18/07/04

BBC News Online

A matter of young life and death

It is hard to imagine how a teenager who is healthy and lively one day can suddenly drop dead the next for no apparent reason. Such is the tragedy of sudden cardiac death in the young. 

13/07/04

Bella magazine

Save your child from sudden death

Schoolgirl Ruth Salisbury was watching a video with friends when she complained of feeling dizzy.  Seconds later she was dead – the victim of a little-known phenomenon called Sudden Death Syndrome. 

05/07/04

Press Release 
Wimbledon Tennis

Game, set and match to local girl, Laura
Laura John (14) from Southampton yesterday took on the prestigious role as official ‘coin tosser’ for the Men’s Singles Final at the Wimbledon Tennis Championships – representing the national charity, Cardiac Risk in the Young (CRY).

13/06/04

The Observer

Parents call for action on sudden death
There are effective treatments to prevent these deaths but there is no targeted provision in the healthcare system to manage this.  Families with these problems are not being systematically referred to specialist or properly evaluated.

08/06/04

Best magazine

Our whole family was living with a timebomb
Family members started to talk about how many people had suffered from heart conditions, and then I realised there was a massive family link with ARVC that couldn’t be ignored.

17/05/04

Daily Mail

An hour later she was dead.
A smiling girl posed beside her birthday cake at her 18th party.  An hour later she collapsed and died dancing with her friends. 

26/04/04

Woman

My daughter died as I watched her swim
She got into the pool and the next minute I saw them dragging her out of the water.  I ran to the poolside and someone said she was fitting.  As soon as I saw her, I could see she was dying – she’d stopped breathing, so I tried to give her mouth-to-mouth resuscitation.  All her friends were watching – it was horrific.

22/04/04

Take a Break

End of a miracle
“They don’t put tubes in people who have just fainted,” I said.  “Please, what’s going on?” By now he was sobbing. “I don’t know,” he said.

17/04/04

Cycling Weekly

Unexpected Tragedies
Sports clubs and schools have to take responsibility for their students fitness to participate, as there is currently a wide variation in the way that GPs treat symptoms of cardiac problems in young people.

12/03/04

Department of Health Press Release
press release

Department of Health Press Release
"I have seen the tragedy of sudden death first hand, when the 22 year old son of a good friend collapsed suddenly and died...Today's announcement will help prevent such deaths and I am delighted that the Government has taken this terrible condition seriously." Dari Taylor MP.

12/03/04

Cardiac Risk in the Young ‘Screening’ Bill - Hansard

Cardiac Risk in the Young ‘Screening’ Bill - Hansard
“I look forward to the opportunity the government is promising us - being able to influence change and save young lives. It is absolutely crucial that we keep the pressure up to maintain the focus on cardiac risk in young people. This is the basis of CRY’s campaign.” Alison Cox, Founder & Chief Executive.

12/03/04

Parliamentary Press Release
press release

Cardiac Risk in the Young heart screening bill
Heart campaigners have thrown their support behind a new Private Member's Bill calling for legislation to grant effective, automatic screening on the NHS for all families at high risk of sudden cardiac death syndrome.

04/03/04

Daily Mail

Couple's agony as a third daughter falls victim to mystery sudden death
Pathologist said the hereditary condition could also have been responsible of the deaths of their two other daughters.  Tests are now being carried out on the rest of the family -  It is only detectable by Electrocardiogram (ECG) tests when people are alive.

07/01/04

Parliamentary Press Release
press release

European success in campaign to recognise "Sudden Death Syndrome" 
'Mission accomplished' Our campaign linking with MEP's Linda McAvan and Catherine Stihler and the World Health Organisation (WHO) to get an international code for sudden death syndrome conditions has been achieved.

Date

Regional publication

Article title

Its a cracker!

Deeside Rotary Club’s festive fundraising has been a real cracker, the treasurer reported this week. 

Young people given heart check chance

A ground-breaking cardiac clinic is preparing for its next screening session – and is appealing for those who want to be tested to come forward.

Family hopes for campaign success

A family devastated by tragedy is hoping the anniversary of their son’s death will bring about sweeping changes in healthcare. 

Your Member of Parliament

Speaking at the launch Mr Purnell said: “I think we are getting our message across.  There is a huge amount of support in Parliament for this campaign." 

Parents' grief at mystery death

The parents of a 17-year boy will never know for certain why he collapsed and died while doing his paper round. 

Dad loads up for trek in memory of Max, 2

When Steven Smith’s two-year-old son Max collapsed and died from a heart condition that he had no idea existed he vowed to do more to raise awareness of children’s heart problems. 

Tragic teen's parents join heart campaign

Postcards featuring Mark’s face – as well as the faces of seven other SDS victims – are being distributed across the country urging people to support the cause and send cards to local MP’s. 

Parents back campaign after shock death of teenage son

When ‘super fit’ 17-year-old Mark Pover collapsed and died in his mum’s arms during a game of football, there had been no signs whatsoever that he had a heart problem.  Now Mark’s parents David and Cath Pover, from Carrbrook, Stalybridge, are trying to raise awareness about heart attack risks in young people. 

Footballers strike for charity

A football tournament organised in the memory of a 29-year-old man who died suddenly of a heart attack this year raised £725.

Pole vault fundraiser

The local branch of the Royal Bank of Scotland recently organised a pole vault event in aid of Cardiac Risk in the Young (CRY).

Never too young for an attack

A businessman whose son’s best friend tragically dropped dead in a nightclub at the age of just 21 has backed a campaign to highlight heart conditions in young people. 

Campaign for young victims

A 21-year-old Woodplumpton man who died after suffering a heart attack is to feature in a cardiac charity’s latest campaign.  Andrew  Parr, who was due to marry his fiancée this month, will appear on postcards produced by the charity Cardiac Risk in the Young.

Postcard campaign aims to save lives

National charity Cardiac Risk in the Young (CRY) will unveil a new postcard campaign on Friday that features the faces of eight young people from the North West who died suddenly of previously undetected heart conditions. 

Dangers that are all around

Alison Cox, chief executive of Cardiac Risk in the Young (CRY) says we should all be aware of the dangers, but take a common-sense approach. 

'I wouldn't want anyone else to go through the pain we have'

A mother today urged parents to get their children checked if there is the slightest chance they could have heart problems.  Jayne Carter said that they must act now if they want to be sure their child doesn’t collapse and die like her 13-year-old daughter Emma. 

Town couple's lifesaving mission

A Glenrothes couple are helping to raise awareness of the disease which claimed the life of their son.  Andrew and Maggie Tait hope it will spare other parents the pain of bereavement, which they have had to endure over the last four years. 

Couple warns: watch out for heart problem

“It’s difficult to find words that aren’t hackneyed, but it was the most heartbreaking thing and it took a very long time to come to terms with it.  She was an apparently fit and healthy young person, she fell ill very suddenly, and died hours later.” 

Pay tribute - Joyce Thorn exhibition

Artist Joyce Thorn pays tribute in her latest exhibition to her son and two grandsons who all died tragically. 

Race staged in perfect weather for ducks

The Mill at Rode held its first charity duck race on Saturday - and, as luck would have it, it was perfect weather for ducks.

Join the young farmers

From their charity work the group has raised thousands of pounds which they will be donating to different local charities.  These include £500 for the Haematology unit at Colchester Hospital and both CRY and Headway will get £750 each. 

Grandmother's artistic tribute

A Grandmother  devastated by the death of her son and two grandsons in just 18 months, is staging a tribute art exhibition in Chichester to raise money for three leading charities.

Sailing event boost for James's charity

A fun-packed sailing day in memory of a popular Great Amwell teenager, who died from a form of Sudden Death Syndrome, pulled in a terrific £230 for charity. 

Plea right from the heart

Young Teessiders whose lives were tragically cut short are forming a key part of a national campaign.  Charity Cardiac Risk in the Young (CRY) yesterday unveiled its latest bid to raise awareness of undetected heart conditions. 

Families' cry from the heart

The families of eight victims of Sudden Cardiac Death have helped to launch a campaign for more extensive heart screening in young people. 

Fire crew band date

Generous firefighters will be raising the roof – and cash – at a charity event in a village near Stourbridge.  Crews will be entertained by six of their own colleagues who make up the band Rogues Gallery. 

Runners on course for charity boost

Athletes from around Kirklees massaged tired legs and counted well-earned sponsorship money from Sunday’s Great North Run. 

Pub patrons get on bikes

Pub customers are taking time out from the bar to get on their bikes for charity.  A team of 28 cyclists, headed by Michael Willis, landlord of the Tite Inn, at Chadlington, started out on Monday on a 120-mile ride through Oxfordshire to Hurley, in Hampshire, and back again. 

Dance to raise funds

A barn dance to raise money for children with heart conditions has been organised by a Southampton fundraiser. 

Charity golf tournament raises £2,000

A charity golf tournament held in memory of a Kings Langley man who died suddenly, raised £2,300 at the weekend. 

Golfers chip in for Howard

An annual golf day held on Saturday in memory of Hemel Hempstead man Howard Jennings has been hailed as a great success. 

Everyone's a winner for James

A smashing day of family fun was served up at a charity tennis day held in memory of a popular Great Amwell teenager. 

Tears and tributes for a special young man

A procession of mourners brought the streets of Wecock to a standstill as they said farewell to a young boy.  Khalid Sibley’s sudden death, just weeks after this 10^th birthday, shocked his community. 

16/09/04

Frome Times

Postcards highlight the tragedy of those who die young

The picture of a man from Frome who died of an undetected heart condition features on a postcard aimed at highlighting unexpected cardiac death in young people. 

Dying young: Can we prevent sudden heart failure?

Kate and Robi Fox, from Woodridge, are only too familiar with the confusion that follows such a tragedy.  Their daughter Laura was just 13 years old when her life ended abruptly. 

Big day at Bourton Road

Stuart Helps of D & S Helps (Builders) was at Bourton Road last weekend to present a cheque to kick off Town’s fundraising for their CRY (Cardiac Risk in the Young) charity fun day. 

Broxbourne players net £400 for charity

Broxbourne Tennis Club members raised more than £400 for charity at the James Wood Memorial tournament at Mill Lane last Sunday.

Charity tennis tournament nets £400

A smashing day of family fun at a charity tennis tournament in memory of a popular teenager raised more than £400. 

Golfers tee off for charity

A memorial golf tournament in honour of Kings Langley man Howard Jennings - who died suddenly of a heart attack in 1996 - will be held on Saturday, September 18. 

09/09/04

Frome & Somerset Standard

Charity postcards available at office

The national charity Cardiac Risk in the Young (CRY) now has its new postcards available in the Frome and Somerset Standard Office.  The postcards feature pictures of eight young people who have lost their lives suddenly to undetected heart conditions.  

08/09/04

Evening Gazette (Middlesbrough)

Hidden heart defect checks on offer

Organisers of a screening session for hidden heart defects say they hope it will offer peace of mind for young people and their families. 

08/09/04

The News, Portsmouth

Community united in grief for young Khalid

A community shocked by the sudden death of a young boy has plastered his home with messages of condolence. 

06/09/04

Lancashire Evening Telegraph

Bowling reward

A charity bowling match raised £214 for CRY.

Campaign to prevent heart risk in young

The faces of eight North-East victims of Sudden Cardiac Death are to be used as part of a life-saving campaign. 

03/09/04

Brighouse Echo

Hundreds benefit from Dominic's festival legacy

The memory of  young Clifton footballer Dominic O'Loughlin who died from a rare heart condition, lived on as hundreds turned out to a special fund-raising event at the weekend. 

Club serves up special day for James

A popular Great Amwell teenager who died suddenly from a mysterious medical condition will be remembered at a charity tennis day on Sunday. 

Club's special James tribute

Family, friends and sporting colleagues of popular Great Amwell teenager James Wood - who died from a form of Sudden Death Syndrome – pay special tribute to him with a day of family fun.

03/09/04

The Northern Echo

Expert calls for screening to stop more youngsters dying

One of the country’s leading experts on Sudden Cardiac Death is backing a North-East family’s call for greater awareness of a killer heart condition. 

03/09/04

The Northern Echo

Just a heartbeat away from tragedy

After Anne-Marie fainted for the third time her parents were understandably worried.  But the fit, healthy 13-year-old from Ferryhill seemed none the worse for her fainting fits and three different doctors, two GP’s and accident an accident and emergency doctor, could find nothing wrong. 

If we can stop just one SADs death its worth it

A mother who lost her daughter after she died suddenly is leading a campaign to highlight the dangers of the killer disorder.  Doreen Harley, originally from Longton, works for CRY, a charity set up to help bereaved families of Sudden Adult Death syndrome (SADs), and raise awareness of the condition. 

02/09/04

Somerset Standard

Frome man will be part of national campaign

A popular Frome man is one of the faces at the forefront of the latest campaign being run by a country-wide charity.  Julian Wort died suddenly of a rare heart condition four years ago, having shown no symptoms of any ill health.

Kathy helps raise awareness

Kathy Moyle, from East Budleigh, has helped launch a nationwide campaign to raise awareness of a rare genetic heart condition that has decimated her family. 

01/09/04

Oldham Evening Chronicle

On their bikes in Ashley's memory

The family and friends of a teenager who died after collapsing during a cross-country competition are using pedal power to raise money for charity. 

Footballers turn out to remember teammates

The tragically short lives of two popular and talented sportsmen were commemorated with a charity football match. 

Double tragedy as fit son and his mother drop dead 19 years apart

Twenty members of a family are being screened after the sudden deaths of a mother and son in similar circumstances – 19 years apart. 

27/08/04

Clacton Gazette

Mother dies

Donations made to CRY at a service held to celebrate the life of Tammy Warren.

Scaling heights for charity

A friend of a teenager who died suddenly has scaled the highest mountain in Africa to raise money for charity.

27/08/04

Evening Chronicle (Newcastle)

Family raises cash for CRY

Fundraising in memory of a super-fit student Jimmy Wilson who died suddenly got off to a great start when relatives and friends stepped out on a sponsored walk.

27/08/04

Express & Echo (Exeter)

Tragic Gran's bid to help save lives

A Devon grandmother who has lost three members of her family to a rare genetic heart disorder has helped launch a nationwide campaign to raise awareness of the condition. 

23/08/04

Express & Echo (Exeter)

Chris' mission to help others

The coach of Exeter Harriers is on a mission to help others after discovering he has a genetic heart condition – which left him clinically dead until medics were able to save him. 

Veteran rows one million metres

A retired ambulance technician has rowed all the way to Barcelona.  But Bob Bailey did not need to invest in a sombrero or sun cream as he has managed the feat from the comfort of his air-conditioned gym. 

Crystal prize for winners

There is an exciting curtain raiser at 5.30 pm between Ulster Schools’ and RS Armagh, which is in aid of the charity CRY (Cardiac Risk in the Young). 

14/08/04

Huddersfield Daily Examiner

In gear for big run

Charity runner Alison Honour has adopted a strict training regime before she tackles the Great North Run. 

13/08/04

Solihull News

Cash boost

The Dominic Lilley family fun day looks set to raise over £4,000 for charity CRY and Birmingham’s City Hospital. 

Fundraisers go hot on the trail

There was a scorching glow in the night sky above Rode on Saturday, as local daredevils tip-toed across hot coals for charity.  About 20 fearless volunteers stood up for the challenge of a lifetime at The Mill at Rode, a fire-walk in aid of the Julian Wort Memorial Fund and Cardiac Risk in the Young (CRY).

12/08/04

Herne Bay Times

MP joins battle to thwart killer

Bay MP Roger Gale has attended the national launch of a hard-hitting and thought-provoking new campaign highlighting a tragic condition known as Sudden Cardiac Death in the young. 

11/08/04

South Shields Gazette

Family stepping in to fund research

A family is planning a sponsored hike along the South Shields coast to raise funds for research into Sudden Adult Death Syndrome (SADS).  The Wilson family, their friends and neighbours, will be walking for CRY (Cardiac Risk in the Young) in memory of James Wilson, 24. 

10/08/04

Birmingham Evening Mail

Wing wonders score for Dom

Villa heroes scored a winner by helping to raise thousand of pounds towards a club worker who fell into a coma. 

06/08/04

Brighton & Hove Leader

Tot walks a mile in cousin's memory

When you’re only 20 months old, a walking a mile is some achievement.  Such a brave effort was in tribute to her cousin, Emma, who died aged 13 and as a result £100 was raised for CRY (Cardiac Risk in the Young).

Tackling sudden killer

North Thanet MP Roger Gale is backing a hard hitting and thought provoking national campaign highlighting the tragic condition known as Sudden Cardiac Death in the Young. 

02/08/04

Birmingham Evening Mail

Heroes in support

Stars of Aston Villa's 1982 European Cup winning squad dusted off their boots for a charity match in aid of Dominic Lilley - a former club employee who has just come out of a coma.

02/08/04

Sunderland Echo (City)

Stepping out for the Gentle Giant

The parents of a super-fit student who died suddenly are retracing his footsteps to raise cash in his memory.

29/07/04

Evening Gazette (Middlesbrough)

Tragedy families backing drive

A new campaign to publicise undetected heart conditions in young people is being backed on Teesside.

29/07/04

Somerset Standard

Pub issues invitation for a hot date

A landlord is urging people to hot foot it to his put next month as part of a charity event.  Paul Clarke, from The Mill at Rode, is offering people the chance to walk over hot coals on August 7 to help raise money for the charity CRY. 

23/07/04

Deeside Chronicle

It's my party and I'll CRY if I want to

Cheryl Evans asks for donations to CRY instead of presents for her 40th birthday.

22/07/04

Bolton Evening News

Heart campaign gets MP's backing

Leigh MP Andy Burnham is supporting CRY's new postcard campaign.

21/07/04