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Date

National  publication

Article title

Women who put thought into action

We have 12 members of staff, a two-storey office and I now know that Steve’s case was not one in a million.  In fact, eight apparently fit and healthy young people are dying every week from heart conditions they do not know they have. 

A deadly gene killed my wife - could my two year old son be next?

Since his birth two hears ago, I’ve been living in fear that I’ll lose him in the same tragic way that I lost his mum Chantel.  And I don’t know how I’ll cope if that happens.

31/08/04

Daily Express

Killer that claims four young lives each week

Caroline Gard has endured every parent’s worst fear.  In 1997, when her son Andy was just 17, he died suddenly and without warning, alone in his bedroom.  She now campaigns for cardiac screening to be available to all youngsters.

A new chapter

Dari Taylor MP welcomes the government’s decision to include recommendations from her Cardiac Risk in the Young private member’s bill kin the National Service Framework

CRY Chairman and Consultant nominated for Screening Bill working group

CRY Chairman Dr Greg Whyte and CRY's consultant Dr Sanjay Sharma are the first nominations for the working group (Sudden Death in the Young / Screening) to be chaired by Professor Bill McKenna, world expert on young sudden cardiac death.

18/07/04

BBC News Online

A matter of young life and death

It is hard to imagine how a teenager who is healthy and lively one day can suddenly drop dead the next for no apparent reason. Such is the tragedy of sudden cardiac death in the young. 

13/07/04

Bella magazine

Save your child from sudden death

Schoolgirl Ruth Salisbury was watching a video with friends when she complained of feeling dizzy.  Seconds later she was dead – the victim of a little-known phenomenon called Sudden Death Syndrome. 

05/07/04

Press Release 
Wimbledon Tennis

Game, set and match to local girl, Laura
Laura John (14) from Southampton yesterday took on the prestigious role as official ‘coin tosser’ for the Men’s Singles Final at the Wimbledon Tennis Championships – representing the national charity, Cardiac Risk in the Young (CRY).

13/06/04

The Observer

Parents call for action on sudden death
There are effective treatments to prevent these deaths but there is no targeted provision in the healthcare system to manage this.  Families with these problems are not being systematically referred to specialist or properly evaluated.

08/06/04

Best magazine

Our whole family was living with a timebomb
Family members started to talk about how many people had suffered from heart conditions, and then I realised there was a massive family link with ARVC that couldn’t be ignored.

17/05/04

Daily Mail

An hour later she was dead.
A smiling girl posed beside her birthday cake at her 18th party.  An hour later she collapsed and died dancing with her friends. 

26/04/04

Woman

My daughter died as I watched her swim
She got into the pool and the next minute I saw them dragging her out of the water.  I ran to the poolside and someone said she was fitting.  As soon as I saw her, I could see she was dying – she’d stopped breathing, so I tried to give her mouth-to-mouth resuscitation.  All her friends were watching – it was horrific.

22/04/04

Take a Break

End of a miracle
“They don’t put tubes in people who have just fainted,” I said.  “Please, what’s going on?” By now he was sobbing. “I don’t know,” he said.

17/04/04

Cycling Weekly

Unexpected Tragedies
Sports clubs and schools have to take responsibility for their students fitness to participate, as there is currently a wide variation in the way that GPs treat symptoms of cardiac problems in young people.

12/03/04

Department of Health Press Release
press release

Department of Health Press Release
"I have seen the tragedy of sudden death first hand, when the 22 year old son of a good friend collapsed suddenly and died...Today's announcement will help prevent such deaths and I am delighted that the Government has taken this terrible condition seriously." Dari Taylor MP.

12/03/04

Cardiac Risk in the Young ‘Screening’ Bill - Hansard

Cardiac Risk in the Young ‘Screening’ Bill - Hansard
“I look forward to the opportunity the government is promising us - being able to influence change and save young lives. It is absolutely crucial that we keep the pressure up to maintain the focus on cardiac risk in young people. This is the basis of CRY’s campaign.” Alison Cox, Founder & Chief Executive.

12/03/04

Parliamentary Press Release
press release

Cardiac Risk in the Young heart screening bill
Heart campaigners have thrown their support behind a new Private Member's Bill calling for legislation to grant effective, automatic screening on the NHS for all families at high risk of sudden cardiac death syndrome.

04/03/04

Daily Mail

Couple's agony as a third daughter falls victim to mystery sudden death
Pathologist said the hereditary condition could also have been responsible of the deaths of their two other daughters.  Tests are now being carried out on the rest of the family -  It is only detectable by Electrocardiogram (ECG) tests when people are alive.

07/01/04

Parliamentary Press Release
press release

European success in campaign to recognise "Sudden Death Syndrome" 
'Mission accomplished' Our campaign linking with MEP's Linda McAvan and Catherine Stihler and the World Health Organisation (WHO) to get an international code for sudden death syndrome conditions has been achieved.

Date

Regional publication

Article title

Its a cracker!

Deeside Rotary Club’s festive fundraising has been a real cracker, the treasurer reported this week. 

Young people given heart check chance

A ground-breaking cardiac clinic is preparing for its next screening session – and is appealing for those who want to be tested to come forward.

Family hopes for campaign success

A family devastated by tragedy is hoping the anniversary of their son’s death will bring about sweeping changes in healthcare. 

Your Member of Parliament

Speaking at the launch Mr Purnell said: “I think we are getting our message across.  There is a huge amount of support in Parliament for this campaign." 

Parents' grief at mystery death

The parents of a 17-year boy will never know for certain why he collapsed and died while doing his paper round. 

Dad loads up for trek in memory of Max, 2

When Steven Smith’s two-year-old son Max collapsed and died from a heart condition that he had no idea existed he vowed to do more to raise awareness of children’s heart problems. 

Tragic teen's parents join heart campaign

Postcards featuring Mark’s face – as well as the faces of seven other SDS victims – are being distributed across the country urging people to support the cause and send cards to local MP’s. 

Parents back campaign after shock death of teenage son

When ‘super fit’ 17-year-old Mark Pover collapsed and died in his mum’s arms during a game of football, there had been no signs whatsoever that he had a heart problem.  Now Mark’s parents David and Cath Pover, from Carrbrook, Stalybridge, are trying to raise awareness about heart attack risks in young people. 

Footballers strike for charity

A football tournament organised in the memory of a 29-year-old man who died suddenly of a heart attack this year raised £725.

Pole vault fundraiser

The local branch of the Royal Bank of Scotland recently organised a pole vault event in aid of Cardiac Risk in the Young (CRY).

Never too young for an attack

A businessman whose son’s best friend tragically dropped dead in a nightclub at the age of just 21 has backed a campaign to highlight heart conditions in young people. 

Campaign for young victims

A 21-year-old Woodplumpton man who died after suffering a heart attack is to feature in a cardiac charity’s latest campaign.  Andrew  Parr, who was due to marry his fiancée this month, will appear on postcards produced by the charity Cardiac Risk in the Young.

Postcard campaign aims to save lives

National charity Cardiac Risk in the Young (CRY) will unveil a new postcard campaign on Friday that features the faces of eight young people from the North West who died suddenly of previously undetected heart conditions. 

Dangers that are all around

Alison Cox, chief executive of Cardiac Risk in the Young (CRY) says we should all be aware of the dangers, but take a common-sense approach. 

'I wouldn't want anyone else to go through the pain we have'

A mother today urged parents to get their children checked if there is the slightest chance they could have heart problems.  Jayne Carter said that they must act now if they want to be sure their child doesn’t collapse and die like her 13-year-old daughter Emma. 

Town couple's lifesaving mission

A Glenrothes couple are helping to raise awareness of the disease which claimed the life of their son.  Andrew and Maggie Tait hope it will spare other parents the pain of bereavement, which they have had to endure over the last four years. 

Couple warns: watch out for heart problem

“It’s difficult to find words that aren’t hackneyed, but it was the most heartbreaking thing and it took a very long time to come to terms with it.  She was an apparently fit and healthy young person, she fell ill very suddenly, and died hours later.” 

Pay tribute - Joyce Thorn exhibition

Artist Joyce Thorn pays tribute in her latest exhibition to her son and two grandsons who all died tragically. 

Race staged in perfect weather for ducks

The Mill at Rode held its first charity duck race on Saturday - and, as luck would have it, it was perfect weather for ducks.

Join the young farmers

From their charity work the group has raised thousands of pounds which they will be donating to different local charities.  These include £500 for the Haematology unit at Colchester Hospital and both CRY and Headway will get £750 each. 

Grandmother's artistic tribute

A Grandmother  devastated by the death of her son and two grandsons in just 18 months, is staging a tribute art exhibition in Chichester to raise money for three leading charities.

Sailing event boost for James's charity

A fun-packed sailing day in memory of a popular Great Amwell teenager, who died from a form of Sudden Death Syndrome, pulled in a terrific £230 for charity. 

Plea right from the heart

Young Teessiders whose lives were tragically cut short are forming a key part of a national campaign.  Charity Cardiac Risk in the Young (CRY) yesterday unveiled its latest bid to raise awareness of undetected heart conditions. 

Families' cry from the heart

The families of eight victims of Sudden Cardiac Death have helped to launch a campaign for more extensive heart screening in young people. 

Fire crew band date

Generous firefighters will be raising the roof – and cash – at a charity event in a village near Stourbridge.  Crews will be entertained by six of their own colleagues who make up the band Rogues Gallery. 

Runners on course for charity boost

Athletes from around Kirklees massaged tired legs and counted well-earned sponsorship money from Sunday’s Great North Run. 

Pub patrons get on bikes

Pub customers are taking time out from the bar to get on their bikes for charity.  A team of 28 cyclists, headed by Michael Willis, landlord of the Tite Inn, at Chadlington, started out on Monday on a 120-mile ride through Oxfordshire to Hurley, in Hampshire, and back again. 

Dance to raise funds

A barn dance to raise money for children with heart conditions has been organised by a Southampton fundraiser. 

Charity golf tournament raises £2,000

A charity golf tournament held in memory of a Kings Langley man who died suddenly, raised £2,300 at the weekend. 

Golfers chip in for Howard

An annual golf day held on Saturday in memory of Hemel Hempstead man Howard Jennings has been hailed as a great success. 

Everyone's a winner for James

A smashing day of family fun was served up at a charity tennis day held in memory of a popular Great Amwell teenager. 

Tears and tributes for a special young man

A procession of mourners brought the streets of Wecock to a standstill as they said farewell to a young boy.  Khalid Sibley’s sudden death, just weeks after this 10^th birthday, shocked his community. 

16/09/04

Frome Times

Postcards highlight the tragedy of those who die young

The picture of a man from Frome who died of an undetected heart condition features on a postcard aimed at highlighting unexpected cardiac death in young people. 

Dying young: Can we prevent sudden heart failure?

Kate and Robi Fox, from Woodridge, are only too familiar with the confusion that follows such a tragedy.  Their daughter Laura was just 13 years old when her life ended abruptly. 

Big day at Bourton Road

Stuart Helps of D & S Helps (Builders) was at Bourton Road last weekend to present a cheque to kick off Town’s fundraising for their CRY (Cardiac Risk in the Young) charity fun day. 

Broxbourne players net £400 for charity

Broxbourne Tennis Club members raised more than £400 for charity at the James Wood Memorial tournament at Mill Lane last Sunday.

Charity tennis tournament nets £400

A smashing day of family fun at a charity tennis tournament in memory of a popular teenager raised more than £400. 

Golfers tee off for charity

A memorial golf tournament in honour of Kings Langley man Howard Jennings - who died suddenly of a heart attack in 1996 - will be held on Saturday, September 18. 

09/09/04

Frome & Somerset Standard

Charity postcards available at office

The national charity Cardiac Risk in the Young (CRY) now has its new postcards available in the Frome and Somerset Standard Office.  The postcards feature pictures of eight young people who have lost their lives suddenly to undetected heart conditions.  

08/09/04

Evening Gazette (Middlesbrough)

Hidden heart defect checks on offer

Organisers of a screening session for hidden heart defects say they hope it will offer peace of mind for young people and their families. 

08/09/04

The News, Portsmouth

Community united in grief for young Khalid

A community shocked by the sudden death of a young boy has plastered his home with messages of condolence. 

06/09/04

Lancashire Evening Telegraph

Bowling reward

A charity bowling match raised £214 for CRY.

Campaign to prevent heart risk in young

The faces of eight North-East victims of Sudden Cardiac Death are to be used as part of a life-saving campaign. 

03/09/04

Brighouse Echo

Hundreds benefit from Dominic's festival legacy

The memory of  young Clifton footballer Dominic O'Loughlin who died from a rare heart condition, lived on as hundreds turned out to a special fund-raising event at the weekend. 

Club serves up special day for James

A popular Great Amwell teenager who died suddenly from a mysterious medical condition will be remembered at a charity tennis day on Sunday. 

Club's special James tribute

Family, friends and sporting colleagues of popular Great Amwell teenager James Wood - who died from a form of Sudden Death Syndrome – pay special tribute to him with a day of family fun.

03/09/04

The Northern Echo

Expert calls for screening to stop more youngsters dying

One of the country’s leading experts on Sudden Cardiac Death is backing a North-East family’s call for greater awareness of a killer heart condition. 

03/09/04

The Northern Echo

Just a heartbeat away from tragedy

After Anne-Marie fainted for the third time her parents were understandably worried.  But the fit, healthy 13-year-old from Ferryhill seemed none the worse for her fainting fits and three different doctors, two GP’s and accident an accident and emergency doctor, could find nothing wrong. 

If we can stop just one SADs death its worth it

A mother who lost her daughter after she died suddenly is leading a campaign to highlight the dangers of the killer disorder.  Doreen Harley, originally from Longton, works for CRY, a charity set up to help bereaved families of Sudden Adult Death syndrome (SADs), and raise awareness of the condition. 

02/09/04

Somerset Standard

Frome man will be part of national campaign

A popular Frome man is one of the faces at the forefront of the latest campaign being run by a country-wide charity.  Julian Wort died suddenly of a rare heart condition four years ago, having shown no symptoms of any ill health.

Kathy helps raise awareness

Kathy Moyle, from East Budleigh, has helped launch a nationwide campaign to raise awareness of a rare genetic heart condition that has decimated her family. 

01/09/04

Oldham Evening Chronicle

On their bikes in Ashley's memory

The family and friends of a teenager who died after collapsing during a cross-country competition are using pedal power to raise money for charity. 

Footballers turn out to remember teammates

The tragically short lives of two popular and talented sportsmen were commemorated with a charity football match. 

Double tragedy as fit son and his mother drop dead 19 years apart

Twenty members of a family are being screened after the sudden deaths of a mother and son in similar circumstances – 19 years apart. 

27/08/04

Clacton Gazette

Mother dies

Donations made to CRY at a service held to celebrate the life of Tammy Warren.

Scaling heights for charity

A friend of a teenager who died suddenly has scaled the highest mountain in Africa to raise money for charity.

27/08/04

Evening Chronicle (Newcastle)

Family raises cash for CRY

Fundraising in memory of a super-fit student Jimmy Wilson who died suddenly got off to a great start when relatives and friends stepped out on a sponsored walk.

27/08/04

Express & Echo (Exeter)

Tragic Gran's bid to help save lives

A Devon grandmother who has lost three members of her family to a rare genetic heart disorder has helped launch a nationwide campaign to raise awareness of the condition. 

23/08/04

Express & Echo (Exeter)

Chris' mission to help others

The coach of Exeter Harriers is on a mission to help others after discovering he has a genetic heart condition – which left him clinically dead until medics were able to save him. 

Veteran rows one million metres

A retired ambulance technician has rowed all the way to Barcelona.  But Bob Bailey did not need to invest in a sombrero or sun cream as he has managed the feat from the comfort of his air-conditioned gym. 

Crystal prize for winners

There is an exciting curtain raiser at 5.30 pm between Ulster Schools’ and RS Armagh, which is in aid of the charity CRY (Cardiac Risk in the Young). 

14/08/04

Huddersfield Daily Examiner

In gear for big run

Charity runner Alison Honour has adopted a strict training regime before she tackles the Great North Run. 

13/08/04

Solihull News

Cash boost

The Dominic Lilley family fun day looks set to raise over £4,000 for charity CRY and Birmingham’s City Hospital. 

Fundraisers go hot on the trail

There was a scorching glow in the night sky above Rode on Saturday, as local daredevils tip-toed across hot coals for charity.  About 20 fearless volunteers stood up for the challenge of a lifetime at The Mill at Rode, a fire-walk in aid of the Julian Wort Memorial Fund and Cardiac Risk in the Young (CRY).

12/08/04

Herne Bay Times

MP joins battle to thwart killer

Bay MP Roger Gale has attended the national launch of a hard-hitting and thought-provoking new campaign highlighting a tragic condition known as Sudden Cardiac Death in the young. 

11/08/04

South Shields Gazette

Family stepping in to fund research

A family is planning a sponsored hike along the South Shields coast to raise funds for research into Sudden Adult Death Syndrome (SADS).  The Wilson family, their friends and neighbours, will be walking for CRY (Cardiac Risk in the Young) in memory of James Wilson, 24. 

10/08/04

Birmingham Evening Mail

Wing wonders score for Dom

Villa heroes scored a winner by helping to raise thousand of pounds towards a club worker who fell into a coma. 

06/08/04

Brighton & Hove Leader

Tot walks a mile in cousin's memory

When you’re only 20 months old, a walking a mile is some achievement.  Such a brave effort was in tribute to her cousin, Emma, who died aged 13 and as a result £100 was raised for CRY (Cardiac Risk in the Young).

Tackling sudden killer

North Thanet MP Roger Gale is backing a hard hitting and thought provoking national campaign highlighting the tragic condition known as Sudden Cardiac Death in the Young. 

02/08/04

Birmingham Evening Mail

Heroes in support

Stars of Aston Villa's 1982 European Cup winning squad dusted off their boots for a charity match in aid of Dominic Lilley - a former club employee who has just come out of a coma.

02/08/04

Sunderland Echo (City)

Stepping out for the Gentle Giant

The parents of a super-fit student who died suddenly are retracing his footsteps to raise cash in his memory.

29/07/04

Evening Gazette (Middlesbrough)

Tragedy families backing drive

A new campaign to publicise undetected heart conditions in young people is being backed on Teesside.

29/07/04

Somerset Standard

Pub issues invitation for a hot date

A landlord is urging people to hot foot it to his put next month as part of a charity event.  Paul Clarke, from The Mill at Rode, is offering people the chance to walk over hot coals on August 7 to help raise money for the charity CRY. 

23/07/04

Deeside Chronicle

It's my party and I'll CRY if I want to

Cheryl Evans asks for donations to CRY instead of presents for her 40th birthday.

22/07/04

Bolton Evening News

Heart campaign gets MP's backing

Leigh MP Andy Burnham is supporting CRY's new postcard campaign.

21/07/04

Evening Advertiser (Swindon)

MP backs heart death campaign

South Swindon MP Julia Drown has backed a hard-hitting national campaign highlighting the hundreds of sudden cardiac deaths in young people.

20/07/04

Flintshire Evening Leader

Campaign targets tragic 'killer'

Ian Lucas MP attends the launch of CRY's new postcard campaign.

20/07/04

South Wales Evening Post

Cardiac campaign

Gower MP Martin Caton has attended the national launch of a hard-hitting campaign highlighting the tragic condition known as sudden cardiac death in the young.

16/07/04

Harwich & Manningtree Standard

Big-hearted Lisa deserves our thanks

Lisa is using her experiences and health problems to help other young people and their families who face similar difficulties.

15/07/04

Birmingham Evening Mail

Postcards of tragedy

It’s now 24 years ago but it’s a day that still haunts Roy Ball who watched his only son collapse and die in front of him during a football match.  Today, Andrew Ball’s young face is part of a new national campaign to highlight the tragic condition.

15/07/04

Sheerness Times Guardian

Charity fun day in Charlotte's name

A fund-raising event held in memory of a schoolgirl who died suddenly has raised around £1,500 for charity. The Blacksmith’s Arms pub in Clyde Street, Sheerness, was transformed into an activity madhouse for a day as customers took part in a series of ways of raising money.

09/07/04

Evening Press (Selby)

Ducks, no grouse

Annual duck race held by Kirkbymoorside Young Farmers' Club.

Heart group auction

A policeman is holding a charity auction to help fund free heart tests for a rare condition likened to an adult cot death.

07/07/04

Express & Star (Wolverhampton)

Indie band gig raises cash for hospital

The gig was organised by friends of Dominic Lilley, a freelance sound engineer and bass guitarist in Indie band The Program.  A total of £2,800 was raised at the event with the proceeds split between the hospital and national charity CRY.

07/07/04

Lancashire Evening Post

Heart attack linked to death of groom-to-be, 21

A young man who collapsed in a nightclub and later died had unknowingly suffered a heart attack three weeks previously, an inquest was told.

07/07/04

Sunderland Echo (City)

Footballers remember friend

Football enthusiasts gathered to raise cash in memory of David Chance.

01/07/04

Evening Gazette (Middlesbrough)

Grieving mum's vow after tragedy

The unexpected death of her teenage son prompted a grieving mum to help others at risk of a similar fate.

01/07/04

Sheerness Times Guardian

First award is presented in girl's memory

The first national award in memory of a Sheppey youngster who died on a school trip has been presented to a teenager from the Isle of Wight.

01/07/04

The Advertiser (Chandler's Ford)

Heart charity's fun day

Members of a dancing school may have been singing in the rain complete with umbrellas at a charity summer fair at the weekend, but there wasn’t a drop of the stuff to be seen.

25/06/04

Birmingham Evening Mail

Punk hits right note

When 20-year-old music fan Dominic Lilley slipped into a coma after a sudden heart attack, it was the music of The Clash that brought him round.

24/06/04

Sheerness Times Guardian

Award in memory of Charlotte

The first national award in memory of a Sheppey youngster who died while on a school tip in 2002 is to be awarded this Saturday. The Charlotte Wright Child of Kindness Award was created by the RSPCA at the request of Charlotte’s godmother and animal rights campaigner Angela Walder, of Oak Lane, Minster.

24/06/04

Ulster Gazette & Armagh Standard

Keady wins memorial cup

The Inaugural Cormac McAnallen Memorial Tournament for Year 8 and 9 boys in the Armagh and Tyrone Counties took place in Saint Catherine’s College recently.  Saint Patrick’s High School, Keady,  were the overall winners.

18/06/04

The Irish News (Belfast)

Cormac's school pays respect to his memory

Gaelic football and education, counties Tyrone and Armagh, were all major aspects of the life of the late Cormac McAnallen.  These elements were brought together this week when the school where he taught.  St Catherine’s College in Armagh, hosted a competition to honour his memory.

17/06/04

Derbyshire Times

Family that still needs answers

The painful first anniversary since their 11-year-old son died so suddenly and unexpectedly, has just passed for Wendy and Robert Hayes. They still do not have a definite answer why Sam died in May last year.

17/06/04

Derbyshire Times

Tragedy struck without warning

There was no warning that Carole and John Crawford’s ‘fit’ teenage son would die in his bedroom at night as mysteriously as a cot-death baby.  But along with their heartbreak and devastation, the couple needed answers to why he had died.

10/06/04

Barry & District News

Trio run in memory of 'a really nice guy'

Jonathon Ashton, Chris Morgan and Bradley Hughes, last month completed a 10-mile charity run from Cardiff to Barry in memory of their friend James as part of a series of events to raise money for CRY.

07/06/04

Lancashire Evening Telegraph

Free heart screening sessions

A free CRY screening event held in Darwen on June 19th.

04/06/04

Frinton & Walton Gazette

Heart checks for young

Britain's first clinic dedicated to spotting hidden heart problems in young people has opened in Essex.

03/06/04

Flintshire Evening Leader

12-mile pub crawl all in a good cause

A GROUP of friends from Mold will walk 12 miles and enjoy a tipple as they visit 11 pubs along the way to raise funds for a local charity.

02/06/04

Evening Chronicle (Newcastle)

Heart check saved my Matthew's life

A mum whose son suffers from a rare heart condition is backing calls for youngsters to be screened following the death of an 11-year-old boy. 

02/06/04

Hertfordshire Star

Ensuring teenager's shock death was not in vain

Parents of an East Herts teenager who died from the equivalent of cot death want at-risk youngsters to have their hearts tested.

01/06/04

Gloucestershire Echo

Screening will be a life-saver

Lucinda Flannery has spoken of her relief after tests revealed she and her children are free of the heart condition that is thought to have claimed her brothers life.

Why was he taken from us?

The grieving parents of a teenager who died suddenly more than three months ago are still waiting to be told the cause of his death.  Chef James Dougherty, 18, of Richard Street, Barry, fell asleep and died in the bedroom of his home on February 13.

Checking up on hearts

Four apprentice footballers were among the first people to benefit from a new heart-screening clinic that was being officially opened.

28/05/04

Hoddesdon & Broxbourne
Mercury

Learning from death of young
I’m not pointing the finger of blame at anyone - at the time, there was a lack of knowledge about SADS on all sides.  If James had seen a cardiologist, his problems may have been spotted.

27/05/04

Barry & District News

Weekend to benefit CRY

A weekend of events at the Old College Inn, in memory of James Dougherty.

24/05/04

Evening Chronicle (Teesside)

We could avoid heart tragedies

An MP is campaigning for youngsters to be screened for undetected heart condition after the death of an 11-year-old boy.  Leslie Elkington collapsed and died at Shield Row Primary School in Stanley, County Durham, after suddenly feeling dizzy during a SATS exam. 

19/05/04

The Burton & South Derbyshire Advertiser

Tom's marathon effort in memory of friend

A teacher who was left devastated by the sudden death of his 28-year-old friend during a half marathon has raised thousands of pounds for charity.

14/05/04

Wakefield Express

Fighting for heart awareness

When the Johnson family found out the condition could be hereditary they were faced with the biggest struggle of their lives.

06/05/04

Banbury Guardian

The early warning that could save lives
“Raising the money made it easier to cope after Ian died because we were doing something for other people to stop it happening again.”  

06/05/04

The Forester (Forest of Dean)

Woman died from rare heart syndrome

A 41-year-old Forest of Dean woman became a victim of the rare Sudden Adult Death Syndrome, a Gloucester inquest was told.

06/05/04

Ulster Gazette & Armagh Standard

Teams play in Cormac's memory

Saint Catherine’s College, Armagh, and Saint Joseph’s High School, Coalisland, U16 Ladies Gaelic Football teams took to the field at Eglish GAA ground on Saturday in memory of the late Cormac McAnallen. 

27/04/04

Brighton Argus

Deaths they can't explain - suddenly collapsed and died
He suffered three collapses himself and tests revealed he was suffering from a genetic heart disease, Brugada Syndrome, which he now knows killed his brother aged 26.

15/04/04

Derbyshire Times

Tragic battle wins support
After they lost their son the family was advised to have tests in case they were suffering similar heart defects.  But when Mrs Hayes struggled to receive quick and complete screening for her family she campaigned with Cardiac Risk in the Young.

13/04/04

Portsmouth News

Death comes from a hidden threat
SADS, a term for the many different causes of cardiac arrest claims the lives of up to eight apparently healthy adults every week in the UK. 

09/04/04

Clacton Gazette

New heart clinic for young people

A new ground breaking cardiac clinic is to open up next month.  The initiative at Colchester General Hospital has come about following pressure from the parents of 17-year-old Frinton youngster, Andy Gard, who died from a sudden cardiac death seven years ago.

08/04/04

Bolton Evening News

Action plea over heart risk in young

A Bill, which is due for its second hearing in Parliament soon, proposes the screening of all young people who have had family members die suddenly from heart conditions they did not know they had.  It comes after pressure form the charity Cardiac Risk in the Young (CRY) with the support of Bolton Southeast MP Dr Brian Iddon.

05/04/04

Dorset Echo

MP heeds parents' CRY
"It is clearly a worthwhile cause. There is almost nothing worse that can happen to you than to have one of your children drop dead suddenly without warning."

04/04/04

New Forest Times

MP's call for early screening for sudden death risks rejected
“Despite the support from MPs from all parties for this Bill to ensure that families most at risk are screened, the Health Minister’s response was surprisingly negative.  It seems that this campaign will have to continue and be intensified.”

CRY is working to save the young from death

On January 30th, our son James died suddenly at home with nor warning or indication that anything was wrong with his health. 

02/04/04

Birmingham Evening Mail

Tragedy of heart scan

A mother told today how her young daughter died from a heart condition – soon after a hospital insisted she was healthy.

31/03/04

Eastbourne Gazette

Three ECG scanners for our town
The family launched a massive fundraising appeal after a rare heart condition caused the tragic death of their teenage son and they have now been able to buy the town three electrocardiogram scanners.

29/03/04

Somerset Standard

Life-saving machine donated to hospital
“This is a state-of-the-art piece of equipment and because we have been able to have it earlier we can now use it and it may certainly save lives.”

26/03/04

Eastbourne Herald

Family raises funds for scanners
‘His death came out of the blue.  He was a very sporty and active person – we had no idea there was a problem apart from a sudden fainting spell three months before.’

24/03/04

Exeter Express & Echo

My worst fears have come true
“Its very worrying, we are all on edge.  We were supposed to have tests way back in 1979 when Pauline died, but they never happened.”  

20/03/04

Highland News

Heartbeat appeal praised in House of Commons

The Highland News Group’s highly successful Heartbeat appeal was praised in a House Of Commons debate on the risk of cardiac disease among the young.

Students on the Minster trail

York youngsters were joined by Lobo the dog on a ten-mile walk around the city to raise cash for charity. 

19/03/04

Deeside Chronicle

Tami backs Bill for cardiac risk testing

Alyn and Deeside MP Mark Tami is backing a Bill which calls for automatic screening on the NHS for all families considered to be at high-risk of cardiac conditions that may lead to sudden cardiac death.

19/03/04

Frinton and Walton Gazette

Couple welcome moves to combat sudden cardiac deaths

The parents of a fit and healthy teenager who died from a sudden cardiac death have welcomed new moves to help tackle the condition.  Andrew Gard, who lived in Frinton and was a promising member of Clacton Hockey Club, died seven years ago - just days before his 18^th birthday.

19/03/04

Southern Daily Echo (Southampton)

When death strikes without warning

The death of a Hampshire woman has sparked government moves to combat a heart problem that kill 400 apparently healthy young people every year:   Ministers have vowed to act following the tragic case of Sarah Woodhead, who was just 28 when she became a victim of Sudden Death Syndrome (SDS).

18/03/04

Clitheroe Advertiser & Times

MP Backing Campaign

Ribble Valley MP, Nigel Evans has called for new legislation to help prevent sudden cardiac death.

18/03/04

Middleton & N. Manchester Guardian

MP backs Bill to fight killer heart defects

Middleton MP Jim Dobbin has called for the passage of legislation to help prevent “Sudden Cardiac Death”, which currently claims the lives of up to eight apparently healthy young people every week in the U.K.

18/03/04

Newbury Weekly News

Sir George backs heart campaign

North West Hampshire MP Sir George Young is backing a campaign to introduce automatic screening on the NHS for families at high risk of sudden cardiac death.

17/03/04

Sunderland Echo (City)

New group to tackle problem of sudden death syndrome

A Father left devastated by the loss of his son to a form of Sudden Adult Death Syndrome, today welcomed Government moves to help prevent more deaths from the condition.

16/03/04

Birmingham Evening Mail

Hopes dashed on heart test

Young mother of two Kerrie Scott spoke today of her disappointment at the failure of MPs to make a screening test compulsory for potential victims of a killer heart condition.  It was a random version of the test on her baby son Tyler that revealed the rare heart defect Cardiomyopathy and ultimately saved his life.

16/03/04

Evening Chronicle (Newcastle)

Tragedy brings vow on health screening

A health screening programme for Britain’s youngsters came a step nearer today following the tragic death of Levon Morland.  Health Minister Melanie Johnson promised the Commons experts would investigate the situation.

15/03/04

Shropshire Star

MP's support for heart disease Bill

Telford MP David Wright lives on a diet of fags, booze and fried food despite knowing that his health will suffer, the House of Commons heard.  Mr Wright was speaking during a debate on a proposed new health Bill to tackle heart disease.

15/03/04

South Wales Post

Heart death task force welcomed
A Swansea mum has welcomed news of a new Government task force to tackle cardiac deaths in the young

Despair as care Bill is withdrawn

Devon campaigners have reacted with disappointment after a bill calling for automatic screening for young people from families with a history of sudden and unexplained death was withdrawn. 

13/03/04

Express & Star (Wolverhampton)

Action over heart deaths in the young

The Government is to set up a special advisory group to help tackle sudden cardiac death in young people and improve the services for people who suffer from irregular heartbeats and similar conditions.

13/03/04

Lancashire Evening Telegraph

Save our young from early death

Two East Lancashire MP’s have backed a Private Member’s Bill calling for a change in the law to help prevent sudden heart deaths in young people.  The Bill could prevent deaths from rare heart conditions, which currently claim the lives of hundreds of apparently healthy young people every year.

13/03/04

Northern Echo (Teesside)

Group is created to investigate deaths

Public Health Minister Melanie Johnson announced the move to tackle so-called sudden cardiac death and improve services for people with irregular heartbeats.It came in response to a back bench Bill sponsored by Dari Taylor, Labour MP for Stockton South, who won the support of sports stars and celebrities for her campaign.

13/03/04

South Wales Evening Post

Heartache of a child's death

Gower MP Martin Caton yesterday spoke in the House of Commons about the heartache endured by families who lose a child to a hidden heart defect.  The MP was speaking in support of a private member’s Bill presented by Stockton South MP Dari Taylor.

13/03/04

Yorkshire Post (North)

Bid to fight killer that strikes without warning

New moves to help tackle sudden heart deaths in young people and improve services for people with conditions like irregular heartbeats were announced by the Government yesterday.

12/03/04

Birmingham Evening Mail

Learn from our heartache
He had some tightness in his chest and it was put down to him having asthma, but not once was he sent for a heart scan

12/03/04

Exeter Express & Echo

Families of sudden death victims welcome screening Bill
Immediate screening of families after a sudden death is vital for identifying genetic faults in the heart and prevent further deaths.

12/03/04

Lancashire Evening Post

Genetic timebomb dad backs NHS screening
Tests revealed James died of an abnormal thickening of the heart muscle.  The condition, Hypertrophic Cardiomyopathy, is usually hereditary

12/03/04

Rotherham Star

Mums back call for heart checks
The mothers want the Government to routinely offer heart screening to all teenagers in schools, in the way that inoculations are automatically given to young people to protect them from disease

12/03/04

South Wales Evening Post

Paulette makes a cry from the heart

A Clydach mum joined health campaigners in the House of Commons to cal for young people with a family history of sudden and unexplained death to be given automatic screening on the NHS.

11/03/04

Derbyshire Times

Youngster's death drives top level support
“We need to spread awareness so doctors can refer patients to experts with the right testing and this should be worked into the NHS framework.

11/03/04

Middlesbrough Gazette

Screening hope
Margo concluded her daughter had died from Sudden Adult Death Syndrome. This condition often brought on by an abnormal heart rhythm. Since her daughters death Margo has raised thousands of pounds for the charity CRY and held a cardiac screening event for her community

11/03/04

Shropshire Star

Screening call for high risk patients

Health campaigners today called for young people with a family history of sudden and unexplained death to be given automatic heart screening on the NHS to detect the problem.  A Private Member’s Bill, being presented by Dari Taylor MP, calls for automatic screening for people at a high risk of sudden cardiac death syndrome.

05/03/04

Ealing & Acton Gazette

Why did he die?
The Coroner passed a verdict of death by natural causes although mystery surrounds why an apparently fit and healthy boy could died without warning.

04/03/04

Birmingham Evening Mail

Girl's mystery death may have been Long QT syndrome
The Pathologist said Alison died from Sudden Adult Death Syndrome which may have been caused by Long QT syndrome.  Long QT can only be identified by an ECG heart test while someone is alive

01/03/04

Somerset Standard

CRY for the heart pays off for Mary
Cash for the ECG machine came from fete stalls, charity barn dances and Mary even packed bags in supermarkets for extra funds.

26/02/04

Western Gazette

Sir Elton signs up to help duo

A pair of runners preparing for this year’s London Marathon were given a boost when pop supreme Sir Elton John backed their charity fund-raising cause. 

20/02/04

Express & Echo (Exeter)

Heart tests for Jake, 9

A nine-year old Exeter boy whose father died suddenly, aged just 32, is to undergo a new series of tests on his heart to see if he is at risk of the same condition. 

20/02/04

Manchester Metro News

Trying to unravel mystery tragic deaths
“The way he died, I couldn’t understand it.  I wasn’t prepared for it.  The reason why it happened is so devastating.

18/02/04

The Belfast Chronicle

A father's goal
Determined to prevent other young people dying prematurely and other families going through unnecessary turmoil, John made it his sole foal to raise awareness in Northern Ireland of the risks of Sudden Death Syndrome among young people.

12/02/04

Belfast Telegraph

Father's vow after teen's heart death
John Lundy from Portstewart, whose son Aaron was a champion golfer before he died suddenly aged just 19, said the death of GAA star Cormac McAnallen must prompt immediate action in raising awareness of what he described as a "silent killer"

10/02/04

Richmond & Twickenham Times

Dinner lady's charity work is a real life saver
I lost two nieces to cardiomyopathy, this is why I am so passionate about making people aware of our work and trying to get heart screening for all of our children so they do not have to die at a young age.

09/02/04

Gloucestershire Echo

We live in fear
If he has a similar heart defect to the one that claimed his brother’s life it may not show up in tests until his heart is fully developed. In the meantime he is undergoing regular check-ups after collapsing and suffering blackouts. 

07/02/04

Birmingham Evening Mail

A heartfelt plea
When Paul died they  were told he could have been treated if his condition had been known. His sister, who collapsed 4 weeks ago is now waiting to see if she needs heart surgery to have a special defibrillator fitted.

05/02/04

Sunderland Echo (City)

Fund-raisers send charity total soaring

Jeff Morland set up the Levon Morland Memorial Fund for CRY, which aims to research sudden death in the young and set up proper heart screening.  The fund nudged towards the £70,000 mark last Friday when an estimated £20,000 was raised at a dinner and sports auction at St James's Park.

03/02/04

Express & Echo (Exeter)

Heart battle victory won

An Exeter mother has won a crucial battle in her fight to discover if her two young sons have inherited the heart condition thought to have killed her husband.  Now a national charity has arranged for her to meet top heart specialists in London for an initial consultation.  

02/02/04

Somerset Standard

Mother's appeal for life saver and campaign to fight heart condition
“He did have symptoms six months prior but it was put down to asthma, unfortunately that wasn’t the case.  I just don’t want any other family to go through what we’ve been through.”  

31/01/04

Evening Gazette (Middlesbrough)

Mother's gift from the heart

A grieving mum is bringing a special heart monitor to Teeside to save others from the same fate as her late daughter. 

30/01/04

Dudley Express and Star

Sister's anxious wait over heart defect op
When 23-year-old had a blackout walking her dog three weeks ago she knew it was a warning sign that her heart condition could also become fatal

29/01/04

Kidderminster Chronicle

Support for family hit by son's sudden death
The sporty Bewdley High School pupil had an undetected heart condition known as hypertrophic cardiomyopathy, a thickening of the heart wall muscle which stops the heart beating properly.

Mum's campaign to save children

A grieving mother who lost her son to an undetected heart condition nearly eight years ago is campaigning for mandatory medical screening. 

26/01/04

Express & Star (Wolverhampton)

Tragic mum wants child heart checks

The mother of a 15 year-old Bewdley boy who collapsed and died of an undetected heart condition is campaigning for new checks to help save the lives of other youngsters. 

23/01/04

Frinton & Walton Gazette

Cardiac clinic breakthrough

The parents of a teenager who died from a sudden cardiac death have welcomed two major new developments in the battle to raise awareness over the condition.  A new clinic is to be set up at Colchester General Hospital to test youngsters, and they are fully backing a Private Members Bill in Parliament 

23/01/04

Yorkshire Evening Post

So sudden, so hard to bear
The baby now nine months old, stands a 50-50 chance of having the condition also, as do other immediate members of the family.  All are awaiting screening and expert medical checks.

23/01/04

Woking Informer

Mum on a mission to save kids
I was told that my son had Brugada - a sudden death syndrome and could drop dead at any time.  He is now fitted with a defibrillator and a pacemaker, the only way to keep him safe.

21/01/04

Worcester Evening News

Help the battle to save young lives
The Bewdley youngsters life was tragically cut short when he unexpectedly collapsed and died. His mum talks about her battle to overcome her loss and her plight to make sure no other youngsters die from what has become known as sudden death syndrome.

16/01/04

South Wales Evening Post

MP backs young heart victims call

Gower MP Martin Caton is backing the growing call for better screening for young people who may have hidden heart defects. 

10/01/04

South Wales Evening Post

Charity close to rugby legend's heart
When Rugby legend Robert Jones joined a charity aimed at stopping the deaths of young people with hidden heart defects, little did he think one of his own relatives would fall victim

09/01/04

Longbridge Evening Mail

Tragic girl tests plea
Alison was the third child of parents John and Evelyn to die suddenly and they campaign for a new law to ensure better screening of heart problems for young people and family members who have already suffered a sudden death of a relative.  

06/01/04

Express & Echo (Exeter)

Tragic heart families win MP's support

Devon families have welcomed a breakthrough lending support to their campaign for improved screening to identify people at risk of the rare Sudden Death Syndrome.  The issue is to be highlighted in the House of Commons today by an MP introducing a Private Member’s Bill.

02/01/04

Express & Echo (Exeter)

Health fear for tragic dad's boys

Worried mum Donna Pyle is desperate to find out if her two young sons are at risk fro a heart condition when may have killed her husband.  The Exeter family were left devastated when Mr Pyle collapsed and died aged 32 after his heart stopped without warning – known as Sudden Adult Death Syndrome.

01/01/04

Lanzarote Gazette

When death is hidden
The paramedics could not save the young holidaymaker.  Their efforts to bring him back to life continued for over half an hour.  But failure to revive him even left the ambulance crew in tears.