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The organisation linked to a Woking man whose
heart condition caused him to die suddenly and come back to life has
published a survey suggesting health trusts are unprepared to deal with
similar cardiac death.
Bradley Farrow, from Sheerwater, suffers from
Brugada syndrome that causes his heart to race and move into cardiac arrest.
He helped launch a support group in 2002 linked to
Cardiac Risk in the Young, where young people could meet to discuss the
syndrome.
CRY was instrumental with other campaigners for
securing the implementation of Chapter Eight: Arrhythmias and Sudden Cardiac
Death into the Coronary Heart Disease: National Service Framework.
The framework sets out guidelines on how NHS
services should identify people who are at increased risk of sudden cardiac
death and how to assess them and their families to reduce their chances of
dying from an arrhythmic condition.
Results published by CRY show a year since chapter
eight, 97 per cent of trusts interviewed had not developed a strategy for
implementing the chapter's guidelines for young people.
Nearly all trusts interviewed were aware of
chapter eight.
Wendy Lockwood, head of communications at Surrey
Heath and Woking Primary Care Trust, said: "We were not surveyed but we are
working on strategies to deliver the national service framework."
Alison Cox, founder and chief executive of CRY
said: "The research we had commissioned confirms our worst fears, that very
little has been done to address what we perceive to be a growing problem
among young people.
"Electrocardiogram testing in the young is vital
if we are to reduce the number of unnecessary deaths.
"But this needs to be followed up with a referral
to a cardiac specialist."
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