BBC Radio Solent – George & Amelia Ashby, Graham Hunter and Dr Steven Cox
Starting at 41:01 in the programme, George Ashby and his mum, Amelia Ashby talk about discovering George's heart condition, his surgery and the importance of screening, on BBC Radio Solent.
Later on in the programme, at 1:41:33 Graham Hunter and CRY CEO Dr Steven Cox talk about their reactions to George's story, the more than 1,400 young people who have been screened thanks to the Hunter family, CRY's research and the pledge to create a National Strategy for the Prevention of Young Sudden Cardiac Death.
Garden Centre Fundraises for Cardiac Risk in the Young
The Herts Advertiser, 19th June 2019
Burston Garden Centre in St Albans has raised nearly £9000 for Cardiac Risk in the Young (CRY). The Garden Centre made CRY its chosen charity after a member of staff lost his son to an undiagnosed heart condition. In the last couple of years since then, they have raised more than £8800 for CRY through various activities and events. "This is a charity that is close to our hearts, so we are delighted to have raised such a significant amount for Cardiac Risk in the Young," said owners of Burston Garden Centre, Enid Pearson and Eileen Preistland. CRY aims to prevent sudden cardiac death by providing young people with heart screenings which can detect hidden conditions which often present no signs or symptoms. "On behalf of all of us at CRY, I would like to say a huge 'thank you' to the team at Burston Garden Centre for all their hard work and commitment to CRY's cause," said CRY's Chief Executive Steven Cox. "The staff, and their customers, have raised a tremendous amount of money for CRY to help support our ongoing mission to prevent the incidence of young sudden cardiac death and we are incredibly grateful for their efforts." Read More
Young People to Receive Heart Screenings in Memory of Miriam Lee
Northamptonshire Telegraph, 20th June 2019
Miriam Lee passed away at just 17 years old of an undiagnosed heart condition. Since her death in 2016, her mother, Nicola, has been raising funds for Cardiac Risk in the Young (CRY). Having set up the Miriam Lee Memorial Fund with CRY, Nicola aims to provide ECG screenings for young people between the ages of 14 - 35. "Twelve young people die every week from undetected heart problems and virtually all of them have no symptoms. It often involves people who are very fit," she said. "It's so important that there's something for young people and if we can save one life, or pick up one condition that could cause someone a problem, we'll be happy."
A screening for 100 young people costs around £5000 and Nicola has currently raised about £1800 through various fundraising activities. She is hoping to further supplement the fund through an upcoming Family Fun Day event which is set to be held between 2pm and 5pm on June 29 at the Ise Valley Scout Hut in Grantown Close, Kettering. "There are some specific conditions that the screening will pick up that a trip to a GP might not and it can pick things up that are genetic," Nicola stated. "We don't know whether it would have discovered what eventually caused Miriam's death but these screenings undoubtedly save lives." Read More
Mum and son cycle around the Isle of Wight for CRY
West Sussex County Times, 19th June 2019
Having been diagnosed with a previously unknown heart condition George Ashby and his mum Amelia will be cycling 66 miles around the Isle of Wight to raise money for Cardiac Risk in the Young (CRY) to help save lives of other young people.
Three Peaks Challenge in memory of Joe Leyland
Tamworth Informed, 16th June 2019
Control room operators Ian Leyland, Josh Snape, Annie Sant, Nikki Harris, and control room managers Charlotte Raftery, James Ball, Lucy Styles and PC Jen Rawsthorne will be taking on the three peaks challenge on 26th June in memory of Ian's son Joe. Money raised will be going to Cardiac Risk in the Young (CRY). To date Ian has raised £31,500 for the charity.
£20,000 raised for heart screenings in memory of Carli Lansley
14th June 2019
The Carli Lansley Memorial Fund, lead by Carli's husband Karl, raised £20,000 in six months to put towards Cardiac Risk in the Young (CRY) heart screenings for young people aged 14 to 35.
Former rugby trio will be crossing the Brecon Beacons and climbing Pen y Fan for CRY
Whitchurch Herald, 13th June 2019
Jo Thelwell, Lucy Jones and Paula Reynolds, formerally of Whitchurch Ladies RUFC, plan to cross the Brecon Beacons and climb Pen y Fan to raise funds for Cardiac Risk in the Young (CRY) on Saturday 6th July.
They have chosen to raised funds for CRY after Jo lost her partner Nathan Jenkins, aged 41, suddenly in 2013 to Sudden Adult Death Syndrome. Lucy is taking part after losing her step Dad David Pritchard from a pulmonary embolism.
Eight Year Old Boy Cycles for CRY in Memory of Dad, Darren Hall
The Herts Advertiser, 11th June 2019
Eight year old Ollie Higman-Hall will take on the challenge of cycling 10 miles via the Alban Way to raise money for Cardiac Risk in the Young (CRY) in memory of his father, Darren Hall. Darren passed away at 30 years old of an undiagnosed heart condition when Ollie's mother, Kirsty, was nine weeks pregnant with him. "It is 10 years ago next year since he died, and Ollie wants to remember his dad," Kirsty said. "He obviously never knew his dad and he struggles with that because he is so like his dad - he is so sunny with people, everyone adores him because is he a wonderful young man, wherever he goes he will chat to everyone."
According to Kirsty, Ollie passionate about his charity project, already managing to raise £750 for CRY. "Ollie is so excited," she said. "He asks every morning how the charity page is doing." Chief Executive of the charity, Steven Cox, said of Ollie and his mum : "I find it so humbling that people, such as Kirsty and Ollie - who have lost both their husband and dad - are able to see beyond their own horrendous experience to raise awareness of the work we do here at CRY - whether screening, research or bereavement support. Their fundraising efforts will play a vital part in helping to prevent other families from having to endure the same devastating grief as they have." Read More
Dad to Cycle 500 miles from London to Glasgow in Memory of his Sons
The Scottish Sun, 9th June 2019
Graeme Stewart lost his son, Lewis, when he was just 19 years old to an undiagnosed heart condition last year and his premature baby Lewis at just two days old seven years ago. Now, he will ride from his current home in London to his former home city Glasgow in memory of his sons. "London is where I call home now, but Glasgow is my birthplace and where Lewis lived for the majority of his life," he said. “For years I would travel between the two at weekends or during school holidays, usually by plane or train, sometimes by car, so that I could spend time with him. If I was somehow given the chance to see him again one more time, but the only way to Glasgow was by bike, then I’d absolutely get on and pedal till my legs stopped working." Graeme's journey will raise money for Cardiac Risk in the Young (CRY). “CRY’s bereavement counselling service has helped me enormously after Lewis’ death and I wanted to give something back to them," he explained.
"I find it so humbling that bereaved parents such as Graeme are able to see beyond their own horrendous experience to raise funds and awareness for CRY, playing a vital part in preventing other families from having to endure the same devastating grief as they have," said CRY's Chief Executive Dr Steven Cox. “This is a truly awesome challenge that will test Graeme physically and mentally, but it will not fail to impress and inspire others and, in turn, generate huge awareness for the work we are doing to prevent young sudden cardiac death. On behalf of everyone at CRY, I would like to wish Graeme a safe and successful journey.” Read More
Edinburgh Fringe Writer Uses True Story of Friend’s Passing as Inspiration for Play about SDS
The Sunday Post, 8th of June 2019
Tom Machell's school friend, Steph, died of sudden death syndrome at just 24 years old. As a writer, he was inspired to honour her memory and raise awareness of the condition that took her life with his debut play, 'Ticker', at the Edindurgh Fringe. “Steph was a copywriter, writing for lots of different magazines and she loved it and also loved theatre. I thought that if I could do something that I could dedicate to her then that would be great," he said. “I didn’t want to do a play about her specifically because I think she’d have found it the cringiest thing in the world but I spoke to her family and the idea of being able to raise awareness of the condition in a hopefully entertaining way would be great.”
The play follows Spencer, a young man whose girlfriend, Gabi, dies suddenly of a previously unknown heart condition. “He’s on his own," said Tom, describing his character. "He’s not talking to anyone about it and he’s very much feeling like an outsider because he’s not allowed to be part of the process of grief or the funeral planning because her family are doing that."
Dealing with shock and grief in the wake of someone dying of SDS, especially as a man, is one of the central themes of the play. "It was the idea of not talking about things,” Tom elaborated. “I was at a boys’ school and Steph came to it for sixth form. She had a big group of boy mates and I don’t think any of us have actually sat down and had a conversation about her death. We were all at the funeral, but we’ve not actually had a chat about it. I think that was an interesting theme to look at.”
Through this play, Tom hopes to raise funds for Cardiac Risk in the Young (CRY) in order to support the charity in providing heart screenings for young people and raising awareness of the condition which took his friend's life. “CRY are the big charity that support the screenings of ECGs, screening young people for irregular heart beats. They’re saving a lot of lives doing that," he said. "We’ll hopefully raise some money for CRY and get more people to get their hearts tested. The great thing about the previews is we’ve had lots of nice emails from people saying they’ve gone out and done it.” Read More
Dad Organises Heart Screening at Hornchurch School in Memory of His Son James Patterson
Romford Recorder, 7th June 2019
For the last nine years, Peter Patterson - whose son, James, passed away due to an undiagnosed heart condition in 2005 - has been making sure that students of his son's former school receive heart screenings annually. Working with Cardiac Risk in the Young (CRY), Peter raises money to fund the screenings through the James Patterson Memorial Fund. This year, the sons of four of James' friends were screened. "It was a successful couple of days as usual," Peter said, describing the event. "We had 183 pupils have heart screenings attend overall." Read More
Garstang Cyclist Rides from Isle of Wight to Inverness in Memory of His Brother
Lancashire Post, 5th June 2019
Mike Coleran rode 900 miles, from the Isle of Wight to Inverness, in memory of his brother, Keith. A former prison officer, Mike began his journey at Parkhurst Prison on the Isle of Wight and, covering on average 65 miles a day, completed the ride 14 days later. He raised £4864 for Cardiac Risk in the Young (CRY) which will enable 97 young people to have their hearts screened. "My brother Keith died suddenly of an undiagnosed heart condition more than 30 years ago, aged 37," Mike explained. "Maybe if he had been screened when younger he may have lived a full life.” Mike and his wife Joanna presented a cheque of the money raised to Paula and Barry Hesmondhalgh of the CRY Matthew Hesmonhalgh Memorial Fund. "I met Barry and Paula Hesmondhalgh who lost their son Matthew to an undiagnosed heart condition in 2011 and thought I would raise money for their cause," said Mike. Read More
CRY Chosen as Christmas Charity by Garstang Mayor
Lancashire Post, 5th June 2019
New mayor of Garstang Coun. Elizabeth Webster has announced her plans for a Christmas Fundraising event; the town's first ever Santa Dash. "My vision (is) of a sea of families dressed as Father Christmas, having fun walking or running through the town,” she said. The event is intended to benefit the three charities the mayor has chosen to support throughout her year in office. “It is an absolute honour to be mayor of Garstang and I hope I do Garstang proud. Choosing my charities for my mayoral year has been a very difficult decision as there as so many local worthy causes out there, but I’ve managed to narrow it down," Coun. Webster stated.
Among her list of three is Cardiac Risk in the Young. "This will come as no surprise to many as I have fund raised before for CRY – Cardiac Risk in the Young, The Matthew Hesmondalgh Fund. I couldn’t imagine funding raising for another year without Paula and Barry Hesmondalgh by my side," she said. “Again this charity is close to my heart as a good friend of mine lost her brother to an undiagnosed cardiac problem in his 20s which could have possibly been avoided if he had received a life saving scan provided for by CRY." She continued- “Money raised for CRY will directly benefit our youngsters aged 14 to 35 by paying for a screening appointments at Garstang Community Academy which will identify any potential problems.” Read More
Fundraising Flashmob in Memory of Gary Edwards
County Gazette, 4th June 2019
After Gary Edwards tragically passed away from an undiagnosed heart condition just 2 weeks before he was to be married, his mother, Hilary, has campaigned to raise money in his memory for charity Cardiac Risk in the Young (CRY) in order to provide heart screenings for young people in the Taunton area. Thus far, more than £10,000 has been raised through her efforts and for every £5000 raised, 100 young people will be screened. "My aim is to help prevent young sudden cardiac arrests by raising awareness and by fundraising so that we can have screenings of young people in the area," she said.
The most recent fundraising event was a flashmob, dancing in Taunton's Orchard Shopping Centre, which raised £243.71 for CRY. "We ‘flashed’ and we ‘mobbed’ to bucket collect and hopefully to raise the profile of the charity if only in a small way," said dance teacher Nikki Mumby. "Hilary joined one of my Zumba Gold classes last year and she finds that the movement, the music and the camaraderie in class are all helping her to feel just a little better after the tragic loss of Gary. I too have lost a child and some of my class members have also experienced loss, which is why we like to help her in her fundraising for CRY." Read More
Lions Club Sponsored Swim Raises More Than £4000 for CRY
Frome Times, 4th June 2019
Since it first began in 1986, the Lions Club of Frome's sponsored swim has raised over £220,000 for local charities. This year, the Lion's chose The Julian Wort Memorial Fund - local branch of charity Cardiac Risk in the Young (CRY) - as the charity to benefit from their swim. According to Shirley Wort from the Memorial Fund, the money raised through the event will go towards holding a cardiac screening in Frome next year. Read More